Identifying key domains of health-related quality of life for patients with Chronic Obstructive Pulmonary Disease: the patient perspective

Paap, Muirne C. S.; Bode, Christina; Lenferink, Lonneke; Groen, Lianne C.; Terwee, Caroline B.; Ahmed, Sara; Eilayyan, Owis; Palen, Job van der

doi:10.1186/s12955-014-0106-3

Cited by 30 publications

(33 citation statements)

References 45 publications

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“…We are currently developing a computerized adaptive test to measure HRQoL in patients with COPD [25]. We will combine three of the above-mentioned PROMIS domains with a disease-specific module that covers other important topics that emerged in the interviews with patients and HCPs, including coping with COPD, dyspnea and autonomy.…”

Section: Resultsmentioning

confidence: 99%

“…In a recent study [25], we proposed a framework outlining a series of steps that could be taken to develop a multidimensional CAT to measure HRQoL in patients with COPD. The first step entails targeting relevant domains and subdomains, using interviews with patients and HCPs, literature and existing HRQoL models as input.…”

Section: Discussionmentioning

confidence: 99%

“…Official Dutch translations of the PROMIS banks were used [24]. In a previous study, we used a similar procedure to establish which domains were most relevant from the patient's perspective [25].…”

Section: Interviewmentioning

confidence: 99%

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Identifying key domains of health-related quality of life for patients with chronic obstructive pulmonary disease: interviews with healthcare professionals

et al. 2014

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Purpose The aim of this paper is to identify which domains of health-related quality of life (HRQoL) are most important for patients with chronic obstructive pulmonary disease (COPD), from the perspective of healthcare professionals (HCPs). Methods Thirteen Dutch HCPs [six pulmonologists, three pulmonology nurse practitioners, two physiotherapists and two general practitioners; 9 men; mean age 51.0 (SD = 10.6) years; mean years of experience 12.1 (SD = 7.2)] specialized in the field of COPD were recruited. The only inclusion criterion was that the HCP had to have extensive experience in treating COPD patients. The face-to-face interviews took 30-40 min.Results Physical health emerged as the most important theme from the spontaneous statements that HCPs made when asked about HRQoL in relation to COPD, closely followed by social health and coping with COPD-related complaints and restrictions. The most frequently selected PROMIS domains were fatigue, physical function, emotional support and depression. If the related domains satisfaction with participation in social roles and activities and ability to participate in social roles and activities were to be combined, it would come in second place after fatigue. Conclusion When comparing the domains chosen by HCPs to the ones chosen by patients in a recent study, there is a high degree of agreement, with the exception of depression. We argue that it is important to take into account both patient and HCP perspective when developing/selecting HRQoL instruments. Our results may be used to inform domain selection to measure HRQoL in patients with COPD, as well as instrument development.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Identifying key domains of health-related quality of life for patients with chronic obstructive pulmonary disease: interviews with healthcare professionals

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“…In chronic disabling diseases, in fact, the sexual function can be otherwise altered, with negative consequences on the relationship, and more generally on the so-called quality of life (17)(18). In men whose lives are often strongly affected by the disabling effects of chronic disease, sexuality can be a crucial moment of intimacy and a powerful source of pleasure, as well as of self-esteem and gratification and can help revive a positive affirmation of their role with their partner, whereas, in other contexts, such as work, sport, the social life, this role is limited or may have failed (19)(20)(21). COPD is not a single nosological entity, but is rather a definition that gathers and describes chronic pulmonary conditions that cause a more or less important limitation of respiratory flow (22).…”

Section: Introductionmentioning

confidence: 99%

Chronic obstructive pulmonary disease (COPD) and erectile dysfunction (ED): Results of the BRED observational study

Lauretti

Cardaci

Barrese³

et al. 2016

Arch Ital Urol Androl

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Most patients with chronic obstructive pulmonary disease (COPD) share many risk factors and similar aetiological agents with erectile dysfunction (ED). Both conditions also cause serious interference with quality of life and sexual relationships. In general, ageing and chronic illness decrease sexual interest, sexual function, and testosterone levels. This observational study included 66 male patients referred to our centre with different grades of COPD. We studied the different correlations between COPD and ED. The data collected from each patient regarded the following features: demographic and social condition; smoking status; clinical status; spirometric measurements. In this group, COPD was diagnosed in 78.8% and ED was present in 83.3% with increased severity in presence of LUTS and nicotinism.KEY WORDS: Chronic obstructive pulmonary disease (COPD); Erectile dysfunction; Endothelial dysfunction, Chronic inflammation. SummaryNo conflict of interest declared.ED shares several risk factors (4-5) with hypertension (two-fold risk), chronic cardiovascular disease (four-fold risk) (6), diabetes (three-fold risk) (7) and the resulting predisposing factors such as hypercholesterolemia (8), obesity as well as a sedentary lifestyle with contextual nicotinism, irrespective of the abuse entity, further increase the weight of the cause/effect relationship. In a consistently stable fashion, wider epidemiological studies reveal how men between 50 and 59 years are the most frequently represented category, while below 40 years of age, the prevalence of the disorder is between 1% and 10%, with an increase between 2 and 9% in the following decade, with a maximum of 15%, then up to 50-100%, from 70 years onwards. The association with various chronic conditions confirms an overall average increase of prevalence, which in the relationship between ED and diabetes, for example, is between 25 and 33%, with peaks up to 77% (9-10-11). Other predominantly chronic conditions may be associated with erectile disorder both in terms of cause and maintenance: renal or hepatic impairment; endocrinopathies such as hypogonadism, hypothyroidism and hyperprolactinemia; various neurological diseases such as postischemic outcomes, multiple sclerosis or Parkinson's disease and psychiatric disorders with particular regard to anxious and depressive syndromes (12-13). More recently, increasing importance has been attributed to the common association with obesity and metabolic syndrome (14), although it is not yet clear whether these two conditions are to be understood as a separate entity or an additional risk to diabetes or cardiovascular diseases and Lower Urinary Tract Symptoms (LUTS) (15), which in the results of the Cologne Male Survey correlate with ED at a rate of 72% (16). COPD and ED are two conditions that apparently have little in common. Certainly it is virtually impossible to compare their consequences on overall health and longterm prognosis (quod vitam), the therapeutic commitment in drug, instrument, rehabilitation and -consequently -...

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“…This clinically common chronic respiratory disease can further develop into pulmonary heart disease and respiratory failure (Paap et al, 2014). COPD causes high global rates of morbidity and mortality, seriously affecting the quality of life of patients around the world (Pauwels et al, 2014).…”

Section: Introductionmentioning

confidence: 99%

Non-invasive positive pressure ventilation offers greater improvement in COPD-related respiratory failure when combined with naloxone

Zhang

Zhao

et al. 2016

Bangladesh J Pharmacol

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Identifying key domains of health-related quality of life for patients with Chronic Obstructive Pulmonary Disease: the patient perspective

Cited by 30 publications

References 45 publications

Identifying key domains of health-related quality of life for patients with chronic obstructive pulmonary disease: interviews with healthcare professionals

Identifying key domains of health-related quality of life for patients with chronic obstructive pulmonary disease: interviews with healthcare professionals

Chronic obstructive pulmonary disease (COPD) and erectile dysfunction (ED): Results of the BRED observational study

Non-invasive positive pressure ventilation offers greater improvement in COPD-related respiratory failure when combined with naloxone

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