Identifying patients’ priorities for quality survivorship: conceptualizing a patient-centered approach to survivorship care

Mead, Katherine; Raskin, Sarah; Willis, Anne; Arem, Hannah; Murtaza, Sarah; Charney, Laura; Pratt-Chapman, Mandi

doi:10.1007/s11764-020-00905-8

Cited by 34 publications

(36 citation statements)

References 48 publications

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“…Survivors prefer to be followed by oncologists due in part to the lack of follow-up care expertise in non-oncology providers (i.e., PCPs). Survivors also have a higher level of emotional trust with oncologists that was developed during treatment [41]. From the oncologist's perspective, seeing patients that are doing well after treatment may reduce work-related stress and burnout and contribute to higher job satisfaction [36].…”

Section: Discussionmentioning

confidence: 99%

Rationale and Design of a Telehealth Self-Management, Shared Care Intervention for Post-treatment Survivors of Lung and Colorectal Cancer

et al. 2021

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Survivors of lung and colorectal cancer have high post-treatment needs; the majority are older and suffer from greater comorbidities and poor quality of life (QOL). They remain underrepresented in research, leading to significant disparities in post-treatment outcomes. Personalized post-treatment follow-up care and care coordination among healthcare teams is a priority for survivors of lung and colorectal cancer. However, there are few evidence-based interventions that address survivors’ post-treatment needs beyond the use of a follow-up care plan. This paper describes the rationale and design of an evidence-informed telehealth intervention that integrates shared care coordination between oncology/primary care and self-management skills building to empower post-treatment survivors of lung and colorectal cancer. The intervention design was informed by (1) contemporary published evidence on cancer survivorship, (2) our previous research in lung and colorectal cancer survivorship, (3) the chronic care self-management model (CCM), and (4) shared post-treatment follow-up care between oncology and primary care. A two-arm, parallel randomized controlled trial will determine the efficacy of the telehealth intervention to improve cancer care delivery and survivor-specific outcomes. ClinicalTrials.govIdentifier: NCT04428905

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Section: Discussionmentioning

confidence: 99%

Rationale and Design of a Telehealth Self-Management, Shared Care Intervention for Post-treatment Survivors of Lung and Colorectal Cancer

et al. 2021

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“…In fact, many text message programs focus on improving physical behaviors such as physical activity, healthy eating, smoking cessation, and medication adherence [34]. However, previous research shows that mental and physical health are closely related and that consumers desire mental health information [5,46,47]. This program endeavored to fill this gap by co-designing messages for mental health after breast cancer treatment.…”

Section: Implications For Practicementioning

confidence: 99%

“…Existing services usually occur in person, during work hours, or far from home, which increases the financial burden [4] and limits accessibility. Moreover, these services are rarely co-designed with patients [5,6]. Accessible posttreatment health support programs are required.…”

Section: Introduction Backgroundmentioning

confidence: 99%

Co-designing a Lifestyle-Focused Text Message Intervention for Women After Breast Cancer Treatment: Mixed Methods Study

et al. 2021

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Background Breast cancer is the most common cancer among women globally. Recovery from breast cancer treatment can be mentally and physically challenging. SMS text message programs offer a novel way to provide health information and support, but few programs are co-designed with consumer representatives. Objective This study aims to report the procedures and outcomes of a co-design process of a lifestyle-focused SMS text message program to support women’s mental and physical health after breast cancer treatment. Methods We followed an iterative mixed methods two-step process: (1) co-design workshop with consumers and health professionals and researchers to draft text messages and (2) evaluation of message content, which was scored (5-point Likert scale; 1=strongly disagree to 5=strongly agree) for ease of understanding, usefulness, and appropriateness, and readability (Flesch-Kincaid score). Additional free-text responses and semistructured interviews were coded into themes. Messages were edited or deleted based on the evaluations, with consumers’ evaluations prioritized. Results In step 1, co-designed text messages (N=189) were semipersonalized, and the main content themes were (1) physical activity and healthy eating, (2) medications and side effects, (3) mental health, and (4) general breast cancer information. In step 2, consumers (n=14) and health professionals and researchers (n=14) provided 870 reviews of 189 messages and found that most messages were easy to understand (799/870, 91.8%), useful (746/870, 85.7%), and appropriate (732/870, 84.1%). However, consumers rated 50 messages differently from health professionals and researchers. On the basis of evaluations, 37.6% (71/189) of messages were deleted, 36.5% (69/189) were edited, and 12 new messages related to fatigue, self-care, and cognition were created. The final 130 text messages had a mean 7.12 (SD 2.8) Flesch-Kincaid grade level and 68.9 (SD 15.5) ease-of-reading score, which represents standard reading ease. Conclusions Co-designing and evaluating a bank of evidence-based mental and physical health-themed text messages with breast cancer survivors, health professionals, and researchers was feasible and resulted in a bank of 130 text messages evaluated highly by participants. Some consumer evaluations differed from health professionals and researchers, supporting the importance of co-design.

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“…As the number of cancer survivors increases worldwide, there have been many efforts to define and advocate for quality survivorship care, with the ultimate aim to improve survival, physical symptom management, psychosocial effects, and quality of life of cancer survivors [ 1 – 3 ]. There have been calls over the last few decades to improve the quality of survivorship care and promote the integration of primary care providers [ 4 ], and several models of follow-up post-treatment care for cancer survivors have been debated [ 4 – 8 ].…”

Section: Introductionmentioning

confidence: 99%

Effectiveness and implementation of models of cancer survivorship care: an overview of systematic reviews

Chan,

Crawford-Williams,

Crichton

et al. 2021

J Cancer Surviv

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Identifying patients’ priorities for quality survivorship: conceptualizing a patient-centered approach to survivorship care

Cited by 34 publications

References 48 publications

Rationale and Design of a Telehealth Self-Management, Shared Care Intervention for Post-treatment Survivors of Lung and Colorectal Cancer

Rationale and Design of a Telehealth Self-Management, Shared Care Intervention for Post-treatment Survivors of Lung and Colorectal Cancer

Co-designing a Lifestyle-Focused Text Message Intervention for Women After Breast Cancer Treatment: Mixed Methods Study

Effectiveness and implementation of models of cancer survivorship care: an overview of systematic reviews

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