Identifying The Problems Experienced By Families Of Children With Burn Injuries After Discharge And The Causes Of These Problems

Abstract

Objective: Burns alter normal life processes suddenly. It is hard both to accept burns due to accompanying physical and psychological changes and to learn how to live with the generally altered appearance caused by them. The study was conducted to identify the problems experienced by families of children with burn injuries after discharge and the causes of these problems. Method: The descriptive study data were collected with the help of an introductory form, an information form for the problems experienced by parents and the State Anxiety Inventory. Statistical Package for the Social Sciences 16.0 program was used in data analysis. Study data were expressed as numbers, percentages, means using Student's t test. Results: The sample included 162 families of children with burns. Of these children, 54.3% were males, while 70.4% of them had scalding and 46.3% had superficial burns. Families had experienced problems with their children concerning bathings (81.5%), social communication (77.8%), getting dressed (63.0%), using medications (61.7%), doing exercises (54.3%), feeding ( 40.7%) and dressing wounds (34.6%). Mean state anxiety score was found to be 47.03±7.48. Conclusion:This study found that parents experienced various problems after discharge: Problems with using medication, dressing wounds, bathing, getting dressed, exercise, nutrition and social communication were experienced. It was determined that problems experienced affected the anxiety levels of the families. It is suggested for nurses to provide regular home visits or provide consultancy via telephone in order to identify problems.Identification of the problems expeirenced will also contribute to the preparation of the content discharge training programs.

Design and usability evaluation of a mobile‐based‐self‐management application for caregivers of children with severe burns

“…20 The mean and standard deviation (SD) were calculated for analysing the findings of application usability evaluation. The scores were classified into three levels as follows: weak (0-3), average (3-6) and good (6)(7)(8)(9). Using Kruskal-Wallis and Mann-Whitney U-tests in SPSS software, comments from different groups were compared.…”

“…Paediatrics with burns need care and treatment in specialised burn centres and at home. Hence, parents of burned children play a vital role in improving medical care and psychosocial recovery 5‐7 . However, caregivers often lack enough experience in caring for burned children, which leads to adverse outcomes such as delayed recovery, neuropathy, contracture, deformity, deviation in walking, joint instability, reduced quality of life and unplanned hospital readmissions 8,9 .…”

“…Hence, parents of burned children play a vital role in improving medical care and psychosocial recovery. 5 , 6 , 7 However, caregivers often lack enough experience in caring for burned children, which leads to adverse outcomes such as delayed recovery, neuropathy, contracture, deformity, deviation in walking, joint instability, reduced quality of life and unplanned hospital readmissions. 8 , 9 One of the effective strategies to promote knowledge and self‐care skills of burn patients and caregivers is self‐care education 10 via information technology (IT) tools.…”

Health care needs, eHealth literacy, use of mobile phone functionalities, and intention to use it for self-management purposes by informal caregivers of children with burns: a survey study

“…The researchers developed the questionnaire based on the literature review to determine the healthcare needs of informal caregivers post-discharge [8,23,24]. In order to assess face validity, first, the questionnaire was given to 15 caregivers of children with burns, and they were asked to comment on the level of difficulty, relevancy, and ambiguity of questions.…”

Evaluation of the effectiveness of a smartphone‐based educational intervention on the outcomes of children's burns: A randomized controlled trial

“…[7][8][9][10][11][12] Burned children require specialized treatment and consideration in burn centres and at home, where caregivers play a crucial role in their medical and psychosocial recovery. [13][14][15][16] Caregivers of burned children often lack the necessary experience to provide the best possible care to their children, which can lead to negative consequences such as delayed recovery, neuropathy, muscle contractures, deformities, gait abnormalities, joint instability, decreased quality of life, and rehospitalizations. [17][18][19] Additionally, parents of burned children are at high risk for mental health problems.…”