Identifying the unmet needs of breast cancer patients post-primary treatment: the Cancer Survivor Profile (CSPro)

Todd, Briana L.; Feuerstein, Michael; Gehrke, Amanda; Hydeman, Jennifer; Beaupin, Lynda Kwon

doi:10.1007/s11764-015-0428-0

Cited by 28 publications

(21 citation statements)

References 25 publications

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“…18,19 Reports of fewer problems may be an indicator of effective supportive care, potentially avoiding further interventions and unnecessary clinical appointments, which could be beneficial to both the patient and the healthcare system. [20][21][22][23] The use of PROs as a dialogue tool in the clinical consultation could help to prompt discussion on the patient's individual needs, potentially revealing otherwise undetected physical or psychological effects. 10,21,24 The potential benefits of using PROs proactively during follow-up care are somewhat different from their use during active treatment.…”

Section: Introductionmentioning

confidence: 99%

“…[20][21][22][23] The use of PROs as a dialogue tool in the clinical consultation could help to prompt discussion on the patient's individual needs, potentially revealing otherwise undetected physical or psychological effects. 10,21,24 The potential benefits of using PROs proactively during follow-up care are somewhat different from their use during active treatment. During treatment, symptoms may arise and change rapidly, and patients are usually scheduled for mandatory consultations in order to handle side effects properly and to be prescribed the continued treatment.…”

Section: Introductionmentioning

confidence: 99%

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<p>Are patient-reported outcomes useful in post-treatment follow-up care for women with early breast cancer? A scoping review</p>

Riis¹,

Bechmann²,

Jensen³

et al. 2019

PROM

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Background: Patient-reported outcomes (PROs) are frequently used to evaluate treatment effects and quality of life in clinical trials. The application of PROs in breast cancer clinics is evolving but their use to generate real-time information for use in follow-up care is uncommon. This proactive use might help to shift healthcare delivery toward a more patient-centered approach by acting as a screening tool for unmet needs or a dialogue tool to discuss issues proposed by the patient. Aims: This review aims to determine the effects and feasibility of using PROs proactively during follow-up care in early breast cancer. Materials and methods: A systematic search was conducted in January 2019 in PubMed, Cochrane Library, Embase, and CINAHL. Studies that exclusively concerned women treated for early breast cancer where PROs were used as a proactive tool during follow-up were included. Results: The search revealed a total of 653 records and four eligible studies were identified; three of which concerned the use of PROs both as a screening tool and as a dialogue tool, and one study in which PROs were used solely as a screening tool. The studies explored the feasibility of collecting and integrating PROs in the clinic and their ability to detect otherwise unrecognized problems. All of the included studies were prone to bias, but they point to potential benefits in respect of better symptom management in follow-up care. Conclusion: Our search identified a small number of low to moderate quality studies of the proactive use of PROs during follow-up after treatment for early stage breast cancer. The limited evidence available suggests that PROs may be useful for providing a more complete picture of the patient's symptoms and problems, possibly leading to improvements in symptom management.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

<p>Are patient-reported outcomes useful in post-treatment follow-up care for women with early breast cancer? A scoping review</p>

Riis¹,

Bechmann²,

Jensen³

et al. 2019

PROM

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“…There is very little evidence about the unmet needs of low‐socioeconomic status (SES) breast cancer survivors . These needs may differ considerably from the needs of other higher SES women affected by this disease; correlates of low‐SES include lower education, poverty, and poor health, which can impact how low‐SES breast cancer patients respond to their diagnosis and/or treatment .…”

Section: Introductionmentioning

confidence: 99%

Comparing provider and patient views of issues for low‐resourced breast cancer patients

et al. 2019

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Objective: The purpose of this study was to compare provider and patient views from the same clinical settings on issues raised by low-socioeconomic status (SES) breast cancer survivors. Methods:We conducted qualitative interviews among two groups: low-SES breast cancer survivors (n = 37) and medical personnel (ie, physicians, nurses, and navigators; n = 8) who interact and serve with these patients from two geographically distinct low-resourced clinical settings. These semistructured qualitative interviews used grounded theory to identify several potential themes, such as finances, resources, and medical care. Transcripts were coded and summarized into themes. Results:We analyzed each type of interview data separately then compared patient and provider perspectives. From these qualitative interviews, we discovered that low-SES breast cancer survivors reported many unmet needs, including transportation, housing, health literacy, and language, among others. Providers reported that many of these needs are served by the extensive network of supports surrounding these patients. Conclusions:These results illustrate that low-SES breast cancer survivors have unique needs that differ from other breast cancer survivors. Many providers feel that these needs are being met, but patients have more diverse experiences. By better addressing the links between resource needs and low-SES breast cancer survivors, quality of life can be improved.

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“…while others focused on healthcare seeking behaviors (healthcare competence, health information, etc.) [ 23 ] or addressed only a particular population, for instance, elderly patients [ 24 , 25 ].…”

Section: Introductionmentioning

confidence: 99%

Patients and caregivers’ unmet information needs in the field of patient education: results from an Italian multicenter exploratory survey

Truccolo

Mazzocut

Mis

et al. 2018

Support Care Cancer

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Patient education and empowerment (PEE) is aimed at improving competence of patients during their clinical path and enabling healthcare providers with specific communication strategies. We investigated the interest of Italian Cancer Research & Care Centers (CRCI) users (patients and caregivers) in being involved in PEE activities. An anonymous questionnaire addressed to users was distributed between June 2013 and February 2014. The questionnaire gathered information on the following: health-related topics; 13 different PEE initiatives/modalities of learning already active at CRCI; personal demographic data; the willingness to be more involved in the organization of health services provided and in which context; and five preferred info-educational activities. Frequency distribution and chi-square analysis were computed. Statistical significance (p value) was set at < 0.05. A total of 875 (29%) users responded to the 3000 distributed questionnaires. The first three priorities of interest were "early diagnosis" (18%), "prevention" (17%), and "diagnosis explanation" (13%). The first three priorities on informational activity were as follows: "classes on cancer-related topics with healthcare professionals" (28%); "cancer information service" (22%); "drug information point" (7%). Forty-nine percent of the respondents stated that they would like to be involved in the organization of PEE activities, particularly caregivers and users older than 55 years of age. The preferred educational activities were "classes on cancer-related topics with healthcare professionals" and "cancer information service" on a face-to-face modality. Patients were more interested than caregivers in "prevention." The extension of PEE programs to all CRCI users into routine care will be the next step of the present research.

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Identifying the unmet needs of breast cancer patients post-primary treatment: the Cancer Survivor Profile (CSPro)

Abstract: Breast cancer survivors can use the CSPro to prioritize problem areas following cancer treatment.

Cited by 28 publications

References 25 publications

<p>Are patient-reported outcomes useful in post-treatment follow-up care for women with early breast cancer? A scoping review</p>

<p>Are patient-reported outcomes useful in post-treatment follow-up care for women with early breast cancer? A scoping review</p>

Comparing provider and patient views of issues for low‐resourced breast cancer patients

Patients and caregivers’ unmet information needs in the field of patient education: results from an Italian multicenter exploratory survey

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