Identifying vulnerability in grief: psychometric properties of the Adult Attitude to Grief Scale

Sim, Julius; Machin, Linda; Bartlam, Bernadette

doi:10.1007/s11136-013-0551-1

Cited by 25 publications

(42 citation statements)

References 22 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A preliminary 'best fit' analysis of existing validated measures used during the initial outcome mapping process found no tools that completely covered these dimensions but identified some with apparent potential to be combined or adapted to cover the outcomes. Those with 'best fit' included grief specific measures connected with coping, resilience and meaning based frameworks, such as the Inventory for Daily Widowed Life [26], Adult Attitude to Grief Scale [27], Grief and Meaning Reconstruction Inventory [28]. There were also some generic quality of life and wellbeing tools which demonstrated good coverage of the selected quality of life and wellbeing dimensions e.g.…”

Section: Limitations Strengths and Implications For Further Researchmentioning

confidence: 99%

Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care

et al. 2020

View full text Add to dashboard Cite

Background: Bereavement support is a core part of palliative care. However, the evidence base is limited by a lack of consistency in the outcomes used to evaluate services and models of support, which makes it difficult to compare approaches. Core Outcome Sets (COS) represent the minimum that should be measured in research into specific conditions or services. The aim of this study was to use a stakeholders' perspective to develop a COS for evaluating bereavement support for adults in adult palliative care settings. Methods: A list of outcomes relevant to bereavement support was created following a systematic review of the quantitative and qualitative literature. At an expert workshop 21 stakeholders discussed their views on the most important outcomes and compared these to and critiqued the lists constructed from the review. These lists and discussions informed a two round international DELPHI survey (n = 240) designed to reach consensus on which outcomes/outcome dimensions should be included in the COS. To prioritise and validate the items emerging from the survey, participants at a subsequent consensus day ranked the relative importance of these items (n = 23). A final feedback exercise with these consensus day participants was conducted to confirm the selection of outcomes and dimensions. Results: 'Ability to cope with grief' and 'Quality of life and mental wellbeing' were selected as two core outcomes. Twenty-one different dimensions to explore when assessing these outcomes were also identified. The coping related dimensions have been categorised as: Negative and overwhelming grief; Communication and connectedness; Understanding, accepting and finding meaning in grief; Finding balance between grief and life going forwards; Accessing appropriate support. Those relating to quality of life and wellbeing have been categorised as; Participation in work and/or regular activities; Relationships and social functioning; Positive mental wellbeing and Negative mental and emotional state.

show abstract

Section: Limitations Strengths and Implications For Further Researchmentioning

confidence: 99%

Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care

et al. 2020

View full text Add to dashboard Cite

show abstract

“…Secondary outcome measures include: General health questions Self-efficacy [ 43 ] (for those who disclose a long-term condition) Health-related quality of life (EQ-5D-5 L) [ 44 ] Quality of life (Control, Autonomy, Self-realisation and Pleasure or CASP-12) [ 45 ] Loneliness [ 46 ] Adult attitude to loneliness 1 [ 47 , 48 ] Social participation questionnaire [ 49 ] Participant burden: The level of burden will be monitored by free text, which will be analysed as part of the process evaluation and the optimum method of administration determined to help inform the methods of the full trial. …”

Section: Methodsmentioning

confidence: 99%

A feasibility study for NOn-Traditional providers to support the management of Elderly People with Anxiety and Depression: The NOTEPAD study Protocol

Burroughs

Bartlam

Ray

et al. 2018

Trials

Self Cite

View full text Add to dashboard Cite

BackgroundAnxiety and depression are common among older people, with up to 20% reporting such symptoms, and the prevalence increases with co-morbid chronic physical health problems. Access to treatment for anxiety and depression in this population is poor due to a combination of factors at the level of patient, practitioner and healthcare system.There is evidence to suggest that older people with anxiety and/or depression may benefit both from one-to-one interventions and group social or educational activities, which reduce loneliness, are participatory and offer some activity. Non-traditional providers (support workers) working within third-sector (voluntary) organisations are a valuable source of expertise within the community but are under-utilised by primary care practitioners. Such a resource could increase access to care, and be less stigmatising and more acceptable for older people.MethodsThe study is in three phases and this paper describes the protocol for phase III, which will evaluate the feasibility of recruiting general practices and patients into the study, and determine whether support workers can deliver the intervention to older people with sufficient fidelity and whether this approach is acceptable to patients, general practitioners and the third-sector providers.Phase III of the NOTEPAD study is a randomised controlled trial (RCT) that is individually randomised. It recruited participants from approximately six general practices in the UK. In total, 100 participants aged 65 years and over who score 10 or more on PHQ9 or GAD7 for anxiety or depression will be recruited and randomised to the intervention or usual general practice care. A mixed methods approach will be used and follow-up will be conducted 12 weeks post-randomisation.DiscussionThis study will inform the design and methods of a future full-scale RCT.Trial registrationISRCTN, ID: ISRCTN16318986. Registered 10 November 2016. The ISRCTN registration is in line with the World Health Organization Trial Registration Data Set. The present paper represents the original version of the protocol. Any changes to the protocol will be communicated to ISRCTN.Electronic supplementary materialThe online version of this article (10.1186/s13063-018-2550-6) contains supplementary material, which is available to authorized users.

show abstract

“…l PHQ-9 score 83 l GAD-7 score 84 l self-efficacy score 86 (for those who disclosed a long-term condition) l quality of life score [Control, Autonomy, Self-realisation and Pleasure-12 items (CASP-12)] 87 l health-related quality of life score [EuroQol-5 Dimensions, five-level version (EQ-5D-5L)] 88 l De Jong Gierveld Loneliness Scale score 89 l Adult Attitude to Loneliness score 90 l Social Participation Questionnaire score. 91 Demographic questions covering age, sex, ethnic background, marital status, general health and household economic status were included in the baseline questionnaire.…”

Section: Secondary Outcome Measures Includedmentioning

confidence: 99%

Non-traditional support workers delivering a brief psychosocial intervention for older people with anxiety and depression: the NOTEPAD feasibility study

Burroughs

Bartlam

Bullock

et al. 2019

Health Serv Deliv Res

Self Cite

View full text Add to dashboard Cite

BackgroundAnxiety and depression often coexist in older people. These disorders are often underdiagnosed and undertreated, and are associated with increased use of health and social care services, and raised mortality. Barriers to diagnosis include the reluctance of older people to present to their general practitioner (GP) with mood symptoms because of the stigma they perceive about mental health problems, and because the treatments offered are not acceptable to them.ObjectivesTo refine a community-based psychosocial intervention for older people with anxiety and/or depression so that it can be delivered by non-traditional providers such, as support workers (SWs), in the third sector. To determine whether or not SWs can be trained to deliver this intervention to older people with anxiety and/or depression. To test procedures and determine if it is feasible to recruit and randomise patients, and to conduct a process evaluation to provide essential information to inform a randomised trial.DesignThree phases, all informed by a patient and public involvement and engagement group. Qualitative work with older people and third-sector providers, plus a consensus group to refine the intervention, training, SW manuals and patient participant materials (phase 1). Recruitment and training of SWs (phase 2). Feasibility study to test recruitment procedures and assess fidelity of delivery of the intervention; and interviews with study participants, SWs and GPs to assess acceptability of the intervention and impact on routine care (phase 3).SettingNorth Staffordshire, in collaboration with Age UK North Staffordshire.InterventionA psychosocial intervention, comprising one-to-one contact between older people with anxiety and/or depression and a SW employed by Age UK North Staffordshire, based on the principles of behavioural activation (BA), with encouragement to participate in a group activity.ResultsInitial qualitative work contributed to refinement of the psychosocial intervention. Recruitment (and retention) of the SWs was possible; the training, support materials and manual were acceptable to them, and they delivered the intervention as intended. Recruitment of practices from which to recruit patients was possible, but the recruitment target (100 patients) was not achieved, with 38 older adults randomised. Retention at 4 months was 86%. The study was not powered to demonstrate differences in outcomes. Older people in the intervention arm found the sessions with SWs acceptable, although signposting to, and attending, groups was not valued by all participants. GPs recognised the need for additional care for older people with anxiety and depression, which they could not provide. Participation in the study did not have an impact on routine care, other than responding to the calls from the study team about risk of self-harm. GPs were not aware of the work done by SWs with patients.LimitationsTarget recruitment was not achieved.ConclusionsSupport workers recruited from Age UK employees can be recruited and trained to deliver an intervention, based on the principles of BA, to older people with anxiety and/or depression. The training and supervision model used in the study was acceptable to SWs, and the intervention was acceptable to older people.Future workFurther development of recruitment strategies is needed before this intervention can be tested in a fully powered randomised controlled trial.Trial registrationCurrent Controlled Trials ISRCTN16318986.FundingThis project was funded by the National Institute for Health Research (NIHR) Health Services and Delivery Research programme and will be published in full inHealth Services and Delivery Research; Vol. 7, No. 25. See the NIHR Journals Library website for further project information.

show abstract

Identifying vulnerability in grief: psychometric properties of the Adult Attitude to Grief Scale

Abstract: The AAG was found to be a psychometrically promising tool for identifying vulnerability in grief.

Cited by 25 publications

References 22 publications

Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care

Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care

A feasibility study for NOn-Traditional providers to support the management of Elderly People with Anxiety and Depression: The NOTEPAD study Protocol

Non-traditional support workers delivering a brief psychosocial intervention for older people with anxiety and depression: the NOTEPAD feasibility study

Contact Info

Product

Resources

About