Identifying What Matters to Hysterectomy Patients: Postsurgery Perceptions, Beliefs, and Experiences

Bossick, Andrew S.; Sangha, Roopina; Olden, Heather; Alexander, Gwen; Wegienka, Ganesa

doi:10.17294/2330-0698.1581

Cited by 21 publications

(27 citation statements)

References 22 publications

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“…The main ndings were a limited ability to make well-informed, independent decisions due to insu cient health literacy and a dependency on health professionals with insu cient information provided, as perceived by the participants. This is supported by previous studies including women after having had a hysterectomy, urging for more education prior to surgery (5). If convalescence was discussed in the consultation, the problems were expected to be understated.…”

Section: Discussionmentioning

confidence: 52%

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Bridging different realities - a qualitative study on patients experiences of preoperative care for benign hysterectomy and opportunistic salpingectomy in Sweden

Collins

Lindqvist

Mogren

et al. 2020

Preprint

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Background Hysterectomy is a common procedure worldwide and removing healthy fallopian tubes at the time of hysterectomy (opportunistic salpingectomy) to possibly prevent ovarian cancer is increasing in frequency, but still controversial. The experiences and perceptions of women, eligible for the procedure, have not been previously investigated.This study aims to, among women waiting to undergo hysterectomy, explore i) experiences and perceptions of self and healthcare in relation to their elective surgery, ii) perceptions of risks and benefits of hysterectomy, including opportunistic salpingectomy.Methods A qualitative study, with focus group discussions including women < 55 years, planned for hysterectomy with ovarian preservation, was performed. Participants were recruited through purposive sampling from six gynecological departments in different parts of Sweden, including both country and university hospitals. Focus group discussions were conducted using a semi-structured interview guide, digitally recorded, transcribed verbatim and analysed by qualitative manifest and latent content analysis. Results Twenty-one Swedish-speaking women participated. They were 40-53 years of age, reported varying educational levels, countries of birth and indications for hysterectomy. Analysis rendered a theme “Bridging different realities” over four categories: “Being a woman today”, “Experiencing and managing body failure”, “Navigating the healthcare system” and “Processing continuously until surgery”, including 17 subcategories. The participants displayed varying attitudes towards the significance of their uterus in being a woman. A vague understanding of their body was described, leading to fear related to the reasons for surgery as well as surgery itself. Participants described difficulties understanding and recalling information but also stated that insufficient information was provided. Perceptions of the risks and benefits of opportunistic salpingectomy varied. Involvement in decisions regarding the hysterectomy and potential opportunistic salpingectomy was perceived to be dependent on the counselling gynecologist. Conclusions The theme Bridging different realities captures the complexity of women deciding on removal of their uterus, and possibly fallopian tubes. It also describes the women’s interactions with healthcare and perceived difference between the health professionals and the women’s perception of the situation, as viewed by the women. Bridging the different realities faced by patients is required to enable shared decision-making, through sufficient support from healthcare.

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Section: Discussionmentioning

confidence: 52%

“…Similarly, in a Norwegian study, persevering thoughts on not being a complete woman after hysterectomy was described if the sense of self was connected to the uterus (23). Women experiencing a sense of being incomplete after hysterectomy have been described in studies from different parts of the world (5,24).…”

Section: Discussionmentioning

confidence: 99%

Bridging different realities - a qualitative study on patients experiences of preoperative care for benign hysterectomy and opportunistic salpingectomy in Sweden

Collins

Lindqvist

Mogren

et al. 2020

Preprint

View full text Add to dashboard Cite

show abstract

“…Their experiences included anxiety, "secret keeping," isolation, shame, and ostracization. 11 Similar to the findings of Bossick et al regarding hysterectomy choices, 5 Dahlerus and colleagues, in their qualitative study of patients with advanced chronic kidney disease, found that these individuals wished more input into dialysis decisions. 13 Some had fear and lack of conveyed knowledge, if not explicit uncertainty.…”

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confidence: 52%

“…4 Finally, in their exploration of what outcomes matter most to hysterectomy patients, Bossick et al concluded that their collective data "suggest a need for increased education and empowerment in the decision-making process." 5 Several of the included participant quotes implied issues of uncertainty surrounding hysterectomy decisions. 5 It might be tempting to write off these concerns of uncertainty as merely a byproduct of poor patientprovider communication.…”

mentioning

confidence: 99%

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Uncertainty and Competing Priorities in Shared Clinical Decision-Making

Baumgardner

2018

Journal of Patient-Centered Research and Reviews

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The real experience with women's hysterectomy: A meta‐synthesis of qualitative research evidence

Shen

Wang

et al. 2022

Nursing Open

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Hysterectomy is the most common gynaecological surgery in the world (Barker, 2016;Hammer et al., 2015), which is an important treatment for benign gynaecological diseases such as fibroids, endometriosis and uterine prolapse (Lundholm et al., 2009;Whiteman et al., 2008). When non-operative treatment cannot solve the pain of common gynaecological benign diseases, hysterectomy to relieve symptoms and improve women's quality of life has become a possible choice (Rannestad, 2005). However, several studies have reported that patients experience varying degrees of anxiety and depression before and after hysterectomy due to multiple factors such as individual personality traits, fear of surgery, concerns about altered self-image and the strength of family support (Donoghue et al., 2003;Thornton et al., 1997;Wilson et al., 2018). Studies have also reported potentially important associations between age and disease progression and the mental health status of women undergoing hysterectomy, particularly before the age of 40 and in the case of more severe disease, which can increase the psychological burden of women (Cooper et al., 2009). Therefore, fully understanding and exploring the real experience of hysterectomy patients can promptly identify the possible psychological and spiritual needs of patients

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Identifying What Matters to Hysterectomy Patients: Postsurgery Perceptions, Beliefs, and Experiences

Cited by 21 publications

References 22 publications

Bridging different realities - a qualitative study on patients experiences of preoperative care for benign hysterectomy and opportunistic salpingectomy in Sweden

Bridging different realities - a qualitative study on patients experiences of preoperative care for benign hysterectomy and opportunistic salpingectomy in Sweden

Uncertainty and Competing Priorities in Shared Clinical Decision-Making

The real experience with women's hysterectomy: A meta‐synthesis of qualitative research evidence

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