Identity and coping experiences in Chronic Fatigue Syndrome: A synthesis of qualitative studies

Larun, Lillebeth; Malterud, Kirsti

doi:10.1016/j.pec.2007.06.008

Cited by 102 publications

(110 citation statements)

References 67 publications

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“…It was developed by Noblit and Hare [13], adopted by Britten et al [14] and has since been increasingly performed, also in the field of MUS [15]. In metaethnography, the idea is to translate studies into one another, rather than to aggregate findings, and to develop a new interpretation through comparison and conceptual innovation [13].…”

Section: Methodsmentioning

confidence: 99%

What is the problem with medically unexplained symptoms for GPs? A meta -synthesis of qualitative studies

Johansen

Risør

2017

Patient Education and Counseling

101

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Please cite this article as: Johansen May-Lill, Risor Mette Bech.What is the problem with medically unexplained symptoms for GPs? A meta-synthesis of qualitative studies.Patient Education and Counseling http://dx.doi.org/10.1016/j.pec. 2016.11.015 This is a PDF file of an unedited manuscript that has been accepted for publication. As a service to our customers we are providing this early version of the manuscript. The manuscript will undergo copyediting, typesetting, and review of the resulting proof before it is published in its final form. Please note that during the production process errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain. Highlights:-For GPs, dominant disease models (biomedical or psychosocial) often do not fit with reality -Both patients and doctors struggle with and suffer from this incongruence -In the lack of congruent disease models, a validating doctorpatient relationship can be a lifeline 2 Abstract:Objective To gain a deeper understanding of challenges faced by GPs when managing patients with MUS. MethodsWe used meta-ethnography to synthesize qualitative studies on GPs' perception and management of MUS. ResultsThe problem with MUS for GPs is the epistemological incongruence between dominant disease models and the reality of meeting patients suffering from persistent illness. GPs have used flexible approaches to manage the situation, yet patients and doctors have had parallel negative experiences of being stuck, untrustworthy and helpless. In the face of cognitive incongruence, GPs have strived to achieve relational congruence with their patients. This has led to parallel positive experiences of mutual trust and validation. With more experience, some GPs seem to overcome the incongruences, and later studies point towards a reframing of the MUS problem. ConclusionFor GPs, the challenge with MUS is most importantly at an epistemological level. Hence, a full reframing of the problem of MUS for GPs (and for patients) implies broad changes in basic medical knowledge and education. 3Practice Implications Short-term: Improve management of patients with MUS by transferring experience-based, reality-adjusted knowledge from senior GPs to juniors. Long-term: Work towards new models of disease that integrate knowledge from all relevant disciplines.199 words

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Section: Methodsmentioning

confidence: 99%

What is the problem with medically unexplained symptoms for GPs? A meta -synthesis of qualitative studies

Johansen

Risør

2017

Patient Education and Counseling

101

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“…The attempts of our participants to isolate themselves socially and conceal their condition can be understood as a reflection of their need to preserve their actual identity. However, this is probably a detrimental strategy because social isolation may have negative consequences for their sense of connectedness with others [33,37]. Furthermore, social isolation limits the possibilities for positive self-validation [28][29]37]and may cause a loss of self-esteem [28].…”

Section: Delegitimization and Impact On Sense Of Identitymentioning

confidence: 99%

Social participation in young people with nonepileptic seizures (NES): A qualitative study of managing legitimacy in everyday life

Karterud

Haavet

Risør

2016

Epilepsy & Behavior

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This qualitative study explores social participation in young people with non-epileptic seizures (NES), particularly how legitimacy of illness is managed in everyday life.Young people with NES, all females and aged between 14 and 24 years (N =11), were interviewed and followed up over a 14-month period. The transcripts were analyzed using thematic analysis.Four main themes were elaborated: 1) Delegitimizing experiences from families, schoolteachers, colleagues and employers were part of everyday life. 2) Fear of being exposed to delegitimizing events resulted in the young people trying to conceal the diagnosis; for some this resulted in isolation from all social arenas, apart from with their closest relationships. 3) Support from close relationships was protective against delegitimization and contributed towards greater social participation. 4) Perceiving NES as a legitimate disorder contributed to increased social participation.We found a relationship between legitimacy of illness experienced by the participants and the extent to which they either participated or retreated socially. Those who had an illness perception that was personally meaningful experienced their condition as being more legitimate and participated more socially.

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“…Opplevelsen av å få økt forstå-else av egen tilstand da de ble introdusert til teori og grunnleggende prinsipper i LP, var betegnende for gruppen som beskrev en positiv virkning. Opplevd bedring som følge av økt innsikt i tilstanden er også beskrevet i tidligere forskning på CFS-/ME-pasienter (6). Når det gjelder LP, vil det vaere nødvendig å se naermere på når LP bidrar med økt innsikt, for eksempel om det gjelder visse grupper av CFS-/ME-pasienter.…”

Section: Responsen Fra Egen Kroppunclassified

CFE-/ME-pasienters ulike erfaringer med Lightning Process

Sandaunet¹,

Salamonsen²

2012

Sykepleien

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Identity and coping experiences in Chronic Fatigue Syndrome: A synthesis of qualitative studies

Abstract: Doctors can support patients' coping by supporting the strong sides of the patients instead of casting doubt upon them.

Cited by 102 publications

References 67 publications

What is the problem with medically unexplained symptoms for GPs? A meta -synthesis of qualitative studies

What is the problem with medically unexplained symptoms for GPs? A meta -synthesis of qualitative studies

Social participation in young people with nonepileptic seizures (NES): A qualitative study of managing legitimacy in everyday life

CFE-/ME-pasienters ulike erfaringer med Lightning Process

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