Identity and psychological ownership in chronic illness and disease state

Karnilowicz, Wally

doi:10.1111/j.1365-2354.2010.01220.x

Cited by 55 publications

(54 citation statements)

References 44 publications

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“…This research supports current knowledge that ownership is a part of the self-identity of someone with a chronic illness 21,22,23 . One of the dimensions of ownership is taking control 22,23,24 , expressed in this study as handling it and “doing what you got to do” to be a regular person. “Handling it” included maintaining routines as much as possible.…”

Section: Discussionsupporting

confidence: 89%

Contested Ownership of Disease and Ambulatory-Sensitive Emergency Department Visits for Type 2 Diabetes

Shearer

Jenkins

Magwood

et al. 2016

The American Journal of the Medical Sciences

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Background About 21 million persons have diabetes and account for 11.9% of all emergency department visits for a total cost of $14.1 billion. Non-emergent visits for ambulatory sensitive conditions that could be managed by the primary care provider make up almost one third of the ED visits. African Americans comprise about 30% of South Carolina's population but make up about 50% of the ED visits for diabetes. Methods The research design was a qualitative study using grounded theory with dimensional analysis methods to explore reasons African American patients used the ED for ambulatory sensitive conditions. Research Design The research design for this study is grounded theory with dimensional analysis methods to explore the experiences of 20 African American adults with diabetes with ambulatory sensitive ED use. Following informed consent, interviews were recorded and transcribed verbatim, and themes were analyzed to form the explanatory framework or matrix for ED use. The framework of context, conditions, processes, and consequences provides a key for understanding the themes of the story embedded in the descriptive narratives Results The contested ownership of diabetes was the overarching perspective –“doing what I got to do,” “it's always on mind...wishing not to be a diabetic,” and “it's a constant burden.” And handling diabetes involved taking decisions “into your hands.” The context of perceived urgency of symptoms included all the reasons that precipitated ED visit—personal experience, primary care access and services, and social network support for decisions influenced ownership of these decisions.

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Section: Discussionsupporting

confidence: 89%

Contested Ownership of Disease and Ambulatory-Sensitive Emergency Department Visits for Type 2 Diabetes

Shearer

Jenkins

Magwood

et al. 2016

The American Journal of the Medical Sciences

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“…Attitudes for coping with the disease, such as strength to fight and face the illness, are required to meet the expectation of the social norm to face difficult situations (18) . One of the key aspects to grasp the meaning of the patients' experiences was their explanations and beliefs about its cause (9) .…”

Section: Discussionmentioning

confidence: 99%

Paradox of life among survivors of bladder cancer and treatments

Lopes

Nascimento

Zago

2016

Rev. esc. enferm. USP

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Objective: To interpret the meanings attributed to the experience of bladder cancer among survivors in therapeutic follow-up. Method: Qualitative methodological approach, based on medical anthropology and narrative methodology. After approval by the research ethics committee of a public university hospital, data were collected from January 2014 to February 2015, by means of recorded semi-structured interviews, direct observation and field journal entries on daily immersion with a group of six men and six women, aged between 57 and 82 years, in therapeutic follow-up. Narratives were analyzed by means of inductive thematic analysis. Results: The meanings revealed difficulties with the processes of disease and treatment, such as breakdown of normal life, uncertainty about the future due to possible recurrence of the disease, difficulty with continuity of care and emotional control, relating it to conflicting ways of understanding the present life. Thus, the meaning of this narrative synthesis is paradox. Conclusion: Interpretation of the meaning of experience with bladder cancer among patients provides nurses with a comprehensive view of care, which encompasses biological, psychological and social dimensions, and thereby systematizes humanized care. descriPtOrs

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“…PTG is characterized as a Bstronger sense of self and values^that is constructed through trauma in the pursuit of finding Bgreater purpose^and planning for the future (Arpawong et al 2013(Arpawong et al , p. 2235. Posttraumatic growth includes the process of Bcognitive rebuilding^ (Tedeschi and Calhoun 2004) and Bpsychological ownership^ (Karnilowicz 2011) where an epiphany or turning point stimulates the growth -not the trauma itself.…”

Section: Posttraumatic Growthmentioning

confidence: 99%

“…For some, this may be embodied in the identity as a Bsurvivorp ost-treatment, for others it comes at time of diagnosis (Parry 2007;Parry and Glover 2010). Either way, the emphasis should be on moving beyond the illness as the primary marker of one's identity (Karnilowicz 2011). To do this often requires the help of our social support systems (Scrignaro et al 2011).…”

Section: Posttraumatic Growthmentioning

confidence: 99%

Celebrate the Trail to Recovery: Power of the Positive Post-Diagnosis of Cancer

Harmon

2018

Int J Sociol Leis

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This paper explored how those in treatment for cancer, or in remission from it, benefitted from participation in a weekly hiking program. Fredrickson's (2001) broaden-and-build concept was used to structure and demonstrate the ability of participants to create and store positive emotions from their experiences hiking with fellow survivors of cancer. The broaden-and-build concept embraces aspects of social support, posttraumatic growth, life course development, and subjective well-being, thus suggesting its value in articulating the positive growth of those who participated in the program and this study. Through semi-structured interviews, survivors of cancer shared stories about their participation in the hiking program, and how it was beneficial to their recovery process and discovery of their Bnew normal.K eywords Cancer . Leisure . Positive psychology . NatureIt was an early winter morning and the temperature was low and the breeze was stiff. We had a small group out hiking that day, just seven of us in total, broken up in to two groups. I was up at the front of the pack with Paula (70, breast cancer, double mastectomy) and Clara (59, breast cancer), and Paula mentioned that she was celebrating her five year mark of Bno evidence of disease^(NED). Clara perked up, smiled, and said, BI'll be there in six months!^Then Paula said, BYou know, I feel like I've come a long way from that diagnosis. I was down in the dumps for a while, but now, now I know I have a lot to look forward to.^Clara and I both nodded in agreement, and we walked in silence for a while, letting the sun coat our faces and the leaves dance in front of us, seemingly a celebration of her accomplishment. -From the author's journal Int J Sociol Leis (2018) 1:215-226 https://doi

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Identity and psychological ownership in chronic illness and disease state

Cited by 55 publications

References 44 publications

Contested Ownership of Disease and Ambulatory-Sensitive Emergency Department Visits for Type 2 Diabetes

Contested Ownership of Disease and Ambulatory-Sensitive Emergency Department Visits for Type 2 Diabetes

Paradox of life among survivors of bladder cancer and treatments

Celebrate the Trail to Recovery: Power of the Positive Post-Diagnosis of Cancer

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