Illness and death by schistosomiasis: paths and ways

Abstract

The objective was to understand the care trajectories of individuals with a record of death from schistosomiasis in Recife in 2012. Analytical, retrospective study with a qualitative design. Seventeen key informants participated in the interviews. After data collection, we opted for content analysis in the thematic modality: the demand for health services from intercurrences; pilgrimage in search of treatment; causes in different ways. It is noticed that the needs of the population are not respected. The lack of knowledge about the disease and the underlying cause of death is evident. Patients did not perceive the initial signs and symptoms. Diagnosis and treatment were started late, at the hospital level, after the patient's general condition worsened. The indispensability of (1) strengthening primary care for the initial diagnosis and effective treatment of schistosomiasis is evident; (2) education for health among the population and (3) guaranteeing specialized care at referral centers for disease.