Illness perception clusters and relationship quality are associated with diabetes distress in adults with Type 2 diabetes

Berry, Emma; Davies, Mark; Dempster, Martin

doi:10.1080/13548506.2017.1281976

Cited by 20 publications

(23 citation statements)

References 22 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Reasons for exclusion were: (a) not peer reviewed (5 studies); (b) not in English (2 studies); (c) study analysis did not include clustering methods (38 studies); (d) variables other than illness representation subscales were used to create groups (27 studies); (e) illness representation was not measured using the subscales of the IPQ‐R (change scores 6 studies, Brief IPQ 5 studies, other measures 6 studies, 17 studies total); (f) sample population did not have a chronic disease (2 studies); and (g) outcome variables were not health‐related. A total of 12 studies met inclusion criteria (Aujla, Walker, Sprigg, & Vedhara, 2018; Berry, Davies, & Dempster, 2017; Flora, Anderson, & Brawley, 2015; Graham, Rose, Hankins, Chalder, & Weinman, 2013; Harrison et al, 2014; Hobro, Weinman, & Hankins, 2004; Hsiao, Chang, & Chen, 2012; Lin & Heidrich, 2012; Lopes et al, 2018; McCorry et al, 2013; Norton et al, 2014; Turkington, Dempster, & Maguire, 2018).…”

Section: Resultsmentioning

confidence: 99%

“…The full results of the quality assessment are shown in Table S1, with summary information in the rightmost column of Table 2. Five of the 12 studies received scores denoting low quality (Berry et al, 2017; Harrison et al, 2014; Hobro et al, 2004; Lopes et al, 2018; Norton et al, 2014). The most frequent quality issues were: insufficient description of the sample population (8/12 studies), no reporting performance of a priori power analysis (10/12), no reported reliability data (7/12), and analyses that did not account for confounding variables (6/12).…”

Section: Resultsmentioning

confidence: 99%

“…In all 12 studies, lower consequences scores were reported in the cluster groups with the best health outcomes. For example, Berry et al (2017) found that in patients with type 2 diabetes, the group with significantly fewer consequences had fewer complications, lower levels of depression, and lower distress.…”

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

A systematic review of illness representation clusters in chronic conditions

Rivera

Corte

DeVon

et al. 2020

Research in Nursing & Health

View full text Add to dashboard Cite

A person's beliefs about their chronic condition (illness representations) influence health and treatment outcomes. Recently, researchers have used clustering approaches to identify subgroups with different patterns of beliefs about their illness, with some subgroups having more favorable health outcomes than others. To date, these findings have not been synthesized. The purpose of this systematic review of the literature was to synthesize results of studies that used clustering approaches to analyze illness representation in chronic disease populations, in order to characterize the clusters and their relationship to health outcomes. Using Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines we searched CINAHL, PsycInfo, and PubMed. To be included, studies had to be (a) peer reviewed, (b) in English, (c) performing a cluster analysis (CA), latent class analysis (LCA), or latent profile analysis (LPA), (d) using only illness representation (IR) subscales to form clusters, (e) measuring illness representation with the Illness Perception Questionnaire (IPQ-R), (f) in a chronic condition sample, and (g) measuring health-related outcomes. Twelve studies were included. Across studies, the number of clusters found ranged from two to three. In all studies, an association was found between illness representation group and at least one of their health outcomes. Illness representation clusters associated with favorable outcomes usually included lower disease-related consequences, fewer symptoms, less negative emotion, and a more stable disease pattern. The results of this review indicate that the relationship between the patterns of the illness representation profiles and health outcomes transcend diseases. Additionally, some dimensions of illness representation may be more important drivers of group membership than others. K E Y W O R D S chronic condition, cluster analysis, illness perception, illness representation, systematic review

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

A systematic review of illness representation clusters in chronic conditions

Rivera

Corte

DeVon

et al. 2020

Research in Nursing & Health

View full text Add to dashboard Cite

show abstract

“…How individuals, their partners and family make sense of Type 2 diabetes and the quality of their relationships are important determinants of adjustment and adaptation [1][2][3][4]. Conflicting beliefs about diabetes between a couple contribute to greater diabetes distress [1,2] and poorer self-care [5].…”

Section: Introductionmentioning

confidence: 99%

Exploring the perceptions of emotional distress among couples living with Type 2 diabetes and among diabetes healthcare providers, and consideration of support needs

2019

View full text Add to dashboard Cite

Aims To compare the emotional distress experienced by people with Type 2 diabetes with the perceptions of their partners, and to explore the perceptions of healthcare providers and how these differ from the perceptions and experiences of couples living with Type 2 diabetes regarding their support needs. Methods A purposive sample of people with Type 2 diabetes and their partners was recruited through Diabetes UK media outlets and support groups, while healthcare providers were recruited through hospital and diabetes education teams. Inductive thematic analysis was conducted. Results Seven people with Type 2 diabetes and six partners took part in separate semi‐structured interviews and seven healthcare providers took part in focus groups. Themes emerged regarding unique psychological struggles for people with Type 2 diabetes: ‘sense of restriction’; ‘disempowerment’; and ‘acceptance of diabetes’. For partners the themes of ‘feeling responsible’ and ‘need for greater involvement’ emerged. Common themes arising from people with Type 2 diabetes, partners and healthcare providers highlighted diabetes‐related stresses: ‘self‐care struggles’ and ‘perceived need for appropriate psychological support’. A key theme drawn from healthcare providers was ‘perceived professional barriers to psychological support’, which captures concerns related to providing emotional support in clinical practice. Conclusions People with Type 2 diabetes, partners, and healthcare providers share a common understanding of the emotional stresses of living with Type 2 diabetes, but also experience diabetes differently depending on their role and responsibilities. All face barriers that need to be considered to ensure that emotional support in diabetes is meaningful and feasible in routine practice.

show abstract

“…Studies have shown that diabetes distress has negative effects on self-care behaviour [3], disease control [4], medication adherence [5] and quality of life [6]. Diabetes distress may also influence illness perceptions negatively [7], which may lead to difficulties in managing diabetes and to poor glycaemic control [8]. In Malaysia, almost 20% of adults with Type 2 diabetes mellitus experience severe diabetes distress [9], a problem that deserves greater clinical attention [10].…”

Section: Introductionmentioning

confidence: 99%