Impact in the quality of life of parents of children with chronic diseases using psychoeducational interventions – A systematic review with meta-analysis

Rodrigues, Marisa Garcia; Rodrigues, J.; Pereira, Ana Teresa; Azevedo, Luís Filipe; Rodrigues, Pedro Pereira; Areias, José Carlos; Areias, Maria Emília

doi:10.1016/j.pec.2021.07.048

Cited by 12 publications

(11 citation statements)

References 67 publications

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“…Los puntajes obtenidos para todas las dimensiones demostraron que la CV tanto del cuidador como de la familia es significativamente menor para los padres de niños y adolescentes con condiciones crónicas, sobre todo a nivel de las preocupaciones y actividades diarias. Este hallazgo va de la mano de lo delimitado por los antecedentes con relación a la modificación a nivel de la dinámica familiar que implica en recibir un diagnóstico y a la sobrecarga del cuidador que muchas veces implica 1,5 .…”

Section: Discussionunclassified

“…Este rol del cuidador implica la reasignación de responsabilidades familiares, cambios en las relaciones de apoyo y una reestructuración de la vida familiar. Son los padres quienes se encargan de las tareas de cuidado, de acompañar las hospitalizaciones y turnos médicos, y de tomar las decisiones frente a las opciones de tratamiento 1 .…”

Section: Introductionunclassified

“…Debido a la importancia de los cuidadores en la atención de los niños con condiciones crónicas, muchos estudios se han centrado en evaluar cómo es la calidad de vida (CV) de estos. La evidencia indica que hay un deterioro de la CV de aquellos padres que asumen un rol de cuidadores 1,2 . Se encontró que los padres de niños con diagnósticos crónicos reportan síntomas de ansiedad, depresión, estrés y sobrecarga [3][4][5] .…”

Section: Introductionunclassified

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Propiedades psicométricas de la versión en castellano del Cuestionario Calidad de Vida Pediátrica Módulo de Impacto Familiar (PedsQL FIM)

Ortega

Vázquez

Amayra

et al. 2023

Anales de Pediatría

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Section: Discussionunclassified

Section: Introductionunclassified

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Propiedades psicométricas de la versión en castellano del Cuestionario Calidad de Vida Pediátrica Módulo de Impacto Familiar (PedsQL FIM)

Ortega

Vázquez

Amayra

et al. 2023

Anales de Pediatría

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“…In a study of caregivers of patients with lung cancer, psychological education interventions also showed no effect on the level of social support for caregivers (49). In other research, psychoeducational interventions can increase caregivers' knowledge of diseases, strengthen their stress coping skills, improve psychological outcomes and make better quality of life (49,50). As you can see, the effectiveness of psychoeducational interventions have been demonstrated in many of the above areas.…”

Section: Intervention Contentmentioning

confidence: 99%

Interventions and strategies to improve social support for caregivers of children with chronic diseases: An umbrella review

et al. 2022

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BackgroundSocial support is an important approach to improve the psychosocial health status and promote positive coping for caregivers of children with chronic diseases. Such an approach can reduce parenting stress, help resolve parenting difficulties through the use of various social support relationships.MethodsWe performed an umbrella review methodology using the method of examination, analysis and synthesis of systematic reviews. A PRISMA flow diagram was used to show the search process. The Joanna Briggs Institute was used to appraise the quality of papers and a narrative synthesis was undertaken. Relevant English and Chinese systematic reviews were searched in Embase, PubMed, Web of science, OVID, CNKI, CBM, Wan Fang and Cochrane Library databases, until November 2021, June 2022.ResultsOut of 1,905 records, we included fourteen systematic reviews for a synthesis. Evidence to promote social support for caregivers of children with chronic diseases was identified from four key aspects: (i) Intervention content; (ii) Intervention forms; (iii) Intervention time; and (iv) Sources of support.ConclusionsThe findings of this review suggest that a combination of differing interventions, especially for early family, including the content of parenting training or education, attitude building and resource provision, which can implement online is recommend. More interventional studies and quantitative evidence syntheses are still needed.ImpactAdequate social support is essential to promote the psychological wellbeing of caregivers of children with chronic diseases. In the early stage of children's diseases, integrating different content and forms of interventions for caregivers' families and actively helping caregivers to identify available support resources can improve social support. The findings from this review can be used to guide caregivers of children with chronic diseases and provide evidence for healthcare professionals and social workers to carry out relevant interventions.

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“…Since There are five available systematic reviews on family-focused interventions to date. Two reviews limited their focus to diabetic patients only (Armour et al, 2005;McBroom & Enriquez, 2009), while the other three reviews limited their type of family-focused interventions to psychological therapies only (Law et al, 2014), psychoeducational interventions only (Garcia Rodrigues et al, 2022), and technology-based interventions only (Canter et al, 2019). None of the existing reviews focused on the effect of community-based family-focused interventions on family and child outcomes.…”

Section: Introductionmentioning

confidence: 99%

Effectiveness of community‐based family‐focused interventions on family functioning among families of children with chronic health conditions: A systematic review and meta‐analysis

Nur,

Chua,

Shorey

2023

Family Process

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Community‐based family‐focused interventions can offer support to families of children with chronic health conditions. This review aimed to evaluate the effectiveness of community‐based family‐focused interventions in improving family functioning, disease knowledge, and child health outcomes among families of children with chronic health conditions. Eight electronic databases (MEDLINE, EMBASE, CINAHL, CENTRAL, PsycINFO, Scopus, Web of Science, and ProQuest Dissertations & Theses Global) and one trial registry (ClinicalTrials.gov) were searched from their dates of inception to October 2022. Meta‐analysis was performed under the random‐effect model when appropriate otherwise, findings were narratively synthesized. I2 statistics and Cochran's Q chi‐squared test were used to determine heterogeneity. Quality appraisal was conducted by the Cochrane risk of bias tool and the Grades of Recommendation, Assessment, Development, and Evaluation approach at the study and outcome level, respectively. The Preferred Reporting Items for Systematic Reviews and Meta‐Analyses guidelines guided this review. Eight studies were included in this review. Community‐based family‐focused interventions were viable methods that could support families of children with chronic health conditions. Family‐focused interventions that incorporate guided role‐playing exercises for parents and children, psychoeducational components, and elements from relationship‐focused interventions could support families more effectively. However, current findings are mostly limited to interventions conducted in patients' homes, and the long‐term effect of these interventions cannot be determined. Overall, community‐based family‐focused interventions have the potential to offer valuable support to families of children with chronic health conditions, and future research could seek to improve the effectiveness of these interventions.

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Impact in the quality of life of parents of children with chronic diseases using psychoeducational interventions – A systematic review with meta-analysis

Cited by 12 publications

References 67 publications

Propiedades psicométricas de la versión en castellano del Cuestionario Calidad de Vida Pediátrica Módulo de Impacto Familiar (PedsQL FIM)

Propiedades psicométricas de la versión en castellano del Cuestionario Calidad de Vida Pediátrica Módulo de Impacto Familiar (PedsQL FIM)

Interventions and strategies to improve social support for caregivers of children with chronic diseases: An umbrella review

Effectiveness of community‐based family‐focused interventions on family functioning among families of children with chronic health conditions: A systematic review and meta‐analysis

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