Impact of a pediatric palliative care program

Abstract

When palliative care was offered either at hospital or home, palliative care occurred more frequently at home.

Specialized Pediatric Palliative Home Care: A Prospective Evaluation

“…5,[18][19][20][21][22][23][24] Our data also support the notion that appropriate PPHC provided by a specialized team is able to alleviate caregivers' psychological distress and burden. 5,[25][26][27][28] Knapp and colleagues 29 analyzed the status of PPC provision around the world, emphasizing the importance of future advancement in this field. But since the majority of existing studies have taken place after the death of a child, little data are available on the caregivers' needs and experiences with PPHC during the child's illness to date.…”

“…Providing a feeling of safety and shared responsibility in caregivers, PPHC raises the rate of children dying at home and contributes to avoiding unnecessary hospitalizations. 5,34,35 Many believe that community pediatricians and GPs have a crucial role in comprehensive PPHC. [36][37][38][39] However, studies suggest that these pediatricians, many of whom encounter few dying children throughout their career, are uncertain about how to provide such care.…”

“…Former research showed that the majority of caregivers preferred the children to be at home at the end of life. [5][6][7][8] Since 2007, these patients are eligible for a specialized Pediatric Palliative Home Care (PPHC) service. 9 However, little data is available on the effects of PPHC to date.…”

Paediatric palliative care at home: a single centre's experience

“…As in other studies, the majority of referrals to home care are for children with cancer. (14,15) Prevalence studies, however, show that cancer does not represent more than 25% of life-limiting diagnoses. (10,16) There is a lack of awareness of the palliative care needs of children with noncancer diagnoses or a misconception of palliative care.…”

Ønsker palliasjon av barn hjemme

“…Selv om hjemmesykehus kan by på visse utfordringer innen pasientsikkerhet, konkluderer likevel funnene med at behandling i hjemmet er like forsvarlig som behandling i sykehus -dersom god kompetanse hos sykepleier og foreldre foreligger. (7,9,13,18,19).…”