Impact of coeliac disease on dietary habits and quality of life

Black, J. L.; Orfila, Caroline

doi:10.1111/j.1365-277x.2011.01170.x

Cited by 79 publications

(82 citation statements)

References 16 publications

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“…Adherence is not usually conceptualised in behavioural terms, despite the acknowledgement of both n.j.hall@durham.ac.uk (Nicola Hall) Not for publication -Tel: +44 (0) 191 33 4 0464 / Fax: +44 (0) 191 33 40361 4 intentional and inadvertent gluten consumption within the literature (Black & Orfila, 2011;Casellas, Lopez & Malagelada, 2006;Dewar et al, 2012;Vahedi et al, 2003).…”

Section: Introductionmentioning

confidence: 99%

Intentional and inadvertent non-adherence in adult coeliac disease. A cross-sectional survey

2013

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Publisher's copyright statement: NOTICE: this is the author's version of a work that was accepted for publication in Appetite. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be re ected in this document. Changes may have been made to this work since it was submitted for publication. A de nitive version was subsequently published in Appetite, 68, 2013Appetite, 68, , 10.1016Appetite, 68, /j.appet.2013 Additional information: Use policyThe full-text may be used and/or reproduced, and given to third parties in any format or medium, without prior permission or charge, for personal research or study, educational, or not-for-pro t purposes provided that:• a full bibliographic reference is made to the original source • a link is made to the metadata record in DRO • the full-text is not changed in any way The full-text must not be sold in any format or medium without the formal permission of the copyright holders.Please consult the full DRO policy for further details. ABSTRACTAdherence to a gluten-free diet is the mainstay of treatment for coeliac disease. Nonadherence is common as the diet is restrictive and can be difficult to follow. This study aimed to determine the rates of intentional and inadvertent non-adherence in adult coeliac disease and to examine the factors associated with both. A self-completion questionnaire was mailed to adult coeliac patients identified from the computer records of 31 family practices within the North East of England. We received 287 responses after one reminder. Intentional gluten consumption was reported by 115 (40%) of respondents. 155 (54%) had made at least one known mistaken lapse over the same period and 82 (29%) reported neither intentional nor mistaken gluten consumption.Using logistic regression analysis, low self-efficacy, perceptions of tolerance to gluten and intention were found to be independently predictive of intentional gluten consumption. A statistical model predicted 71.8% of cases reporting intentional lapses.Intentional non-adherence to the GFD was found to be common but not as frequent as inadvertent lapses. Distinguishing the factors influencing both intentional and inadvertent non-adherence is useful in understanding dietary self-management in coeliac disease.

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Section: Introductionmentioning

confidence: 99%

Intentional and inadvertent non-adherence in adult coeliac disease. A cross-sectional survey

2013

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“…Because the disease is so variable, patients may vary also in the amount of gluten they can tolerate. Even several of Black and Orfila's (2012) compliant patients reported taking gluten; sometimes these intakes were accidental, and sometimes deliberate, perhaps in a social situation. Many found that occasional intake caused little harm.…”

Section: Management Of Coeliac Diseasementioning

confidence: 99%

An overview of coeliac disease: patterns, causes, symptoms and management

Coutts

2013

Gastrointestinal Nursing

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Coeliac disease in an autoimmune disorder of the small intestine, which results in an unpleasant reaction to ingested gluten. Symptoms range from mild to severe and can include abdominal pain and bloating, chronic or occasional diarrhoea, tiredness, iron-deficiency anaemia, nausea or vomiting, and weight loss. The disorder has a complex genetic background, although additional environmental factors also need to come into play. Its treatment is solely dependent on the exclusion of gluten from the diet.

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“…Perhaps most importantly, a staggering 93% of CD patients described at least some difficulty determining whether a particular food was truly gluten-free. 10 Thus one can imagine that CD takes its toll on patients not only via direct symptoms, but also indirectly on quality of life. The same study demonstrated that 47% of CD sufferers feel depressed at least some of the time as a result of their disease.…”

Section: Clinical Presentation and Disease Burdenmentioning

confidence: 99%

Is 'Gluten-Free' Gluten-Free? Celiac Disease in Canada 2015

Forbes¹,

Kassam²,

Morgan³

2014

CJGIM

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SummaryOur understanding of celiac disease (CD) has improved dramatically in recent years. Once considered a rare childhood malabsorption syndrome, we now recognize CD as a complex enteropathy mediated by immune, genetic, and environmental factors. CD affects a large proportion of the Canadian population, and its disease burden is substantial in terms of proven reduction in quality of life. Symptom recognition and referral to a gastroenterologist for diagnosis are crucial. As CD is caused by intolerance to gluten, the only effective treatment is strict gluten avoidance. Canadian food product guidelines have only recently become sufficiently rigid, incorporating newer evidence that suggests lower limits of gluten tolerability in this patient population than previously thought. RésuméDans les dernières années, nous en avons appris énormément sur la maladie coeliaque. Il fut un temps où nous pensions qu'il s'agissait d'un syndrome de malabsorption infantile rare, mais nous savons désormais que la maladie coeliaque est une entéropathie complexe où entrent en jeu des facteurs immunitaires, génétiques et environnementaux. La maladie touche une grande proportion de la population canadienne et a des répercussions considérables sur la qualité de vie. La détection des symptômes et l'aiguillage du patient en gastroentérologie en vue de l'établissement du diagnostic sont des éléments cruciaux de la prise en charge. Étant donné que la maladie provient d'une intolérance au gluten, le régime alimentaire strict sans gluten constitue le seul traitement efficace. Ce n'est que récemment que les lignes directrices canadiennes sur les produits alimentaires ont été resserrées à la lumière de nouvelles données probantes indiquant que la tolérabilité au gluten dans ce groupe de patients est moindre que ce que l'on pensait auparavant.

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Impact of coeliac disease on dietary habits and quality of life

Abstract: The present study revealed that CD affects a wide range of daily activities and that gluten consumption may be more common than anticipated with possible consequences on health.

Cited by 79 publications

References 16 publications

Intentional and inadvertent non-adherence in adult coeliac disease. A cross-sectional survey

Intentional and inadvertent non-adherence in adult coeliac disease. A cross-sectional survey

An overview of coeliac disease: patterns, causes, symptoms and management

Is 'Gluten-Free' Gluten-Free? Celiac Disease in Canada 2015

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