Impact of COVID-19 on the capacity to self-manage health and chronic conditions

Russell, Andrea M.; Filec, Sarah; Serper, Marina; Opsasnick, Lauren; Batio, Stephanie; O’Conor, Rachel; Curtis, Laura M.; Kwasny, Mary J.; Benavente, Julia Yoshino; Wismer, Guisselle; Bonham, Morgan; Zheng, Pauline; Lovett, Rebecca M.; Arvanitis, Marina; Ladner, Daniela P.; McCaffery, Kirsten; Linder, Jeffrey A.; Bailey, Stacy Cooper; Wolf, Michael S.

doi:10.1016/j.pecinn.2023.100163

Cited by 1 publication

(1 citation statement)

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“…This was corroborated in our previous work showing that 42% of participants reported doing ‘a lot less’ physical activity during the pandemic, with similar findings reported in other studies. 6 , 27 , 28 Most participants resorted to developing their own means of staying active. Going forward, options such as telerehabilitation or home rehabilitation that have been shown to produce similar outcomes to centre-based programs may provide greater access and be a more viable option for many.…”

Section: Discussionmentioning

confidence: 99%

Navigating the COVID-19 pandemic: Experiences and self-management approaches adopted by people with interstitial lung disease

Tikellis,

Corte,

Glaspole

et al. 2024

Chron Respir Dis

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Background People with interstitial lung disease (ILD) were deemed more vulnerable to the SARS-CoV-2 virus and isolated as a means of reducing risk of infection. This study examined the impact of the pandemic on daily life, psychological wellbeing and access to healthcare and identified approaches undertaken to remain safe. Methods Four specialist clinics in tertiary centres in Australia (Victoria: two sites; New South Wales: one site; Western Australia: one site) recruited patients with ILD during an 8-week period from March 2021. Semi-structured telephone interviews were conducted with transcripts analysed using principles of grounded theory. Results Ninety participants were interviewed between April and December 2021. Participants were predominantly female, former smokers with an average age of 66 years. IPF and connective tissue-ILD being the most common subtypes. Five main themes were identified: vulnerability reduced social interaction and isolation, access to healthcare services and support, staying active, emotional and psychological impact. Self-management strategies included staying active both physically and mentally. Discussion Self-management was key to managing the impact of the pandemic. In combination with advances in technology, implementation of strategies for monitoring wellbeing and support for self-management provides an opportunity to leverage the lessons learnt to ensure a more individualised model of care for people with ILD.

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Section: Discussionmentioning

confidence: 99%