Impact of disclosure of diagnosis and patient autonomy on quality of life and illness perceptions in Chinese patients with liver cancer

Bin, Jie; Qiu, Yan; Feng, Zhanchun; Zhu, Shai-Nan

doi:10.1002/pon.4036

Cited by 28 publications

(34 citation statements)

References 23 publications

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“…Jie's study found patients who were younger and more educated were more likely to be aware of their cancer diagnoses . Wang's study reported that patients with higher educational levels were less likely to have had their cancer diagnoses concealed from them .…”

Section: Resultsmentioning

confidence: 99%

“…One nurse described, Jie's study found patients who were younger and more educated were more likely to be aware of their cancer diagnoses. 33 Wang's study reported that patients with higher educational levels were less likely to have had their cancer diagnoses concealed from them. 7 There is a risk that patients will withdraw from treatment on being told they have an incurable disease to avoid expense, which can result in them failing to receive adequate palliation.…”

Section: Patients Themselvesmentioning

confidence: 99%

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Nurses' experiences and attitudes toward diagnosis disclosure for cancer patients in China: A qualitative study

et al. 2019

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Objective To qualitatively investigate and explore oncology nurses' perceptions of cancer diagnosis disclosure (CDD) for cancer patients. Methods Purposive sampling led to the inclusion of 25 nurses with diverse characteristics from four inpatient oncology nursing wards in two tertiary hospitals. Semistructured, one‐on‐one, in‐depth interviews were conducted. Colaizzi's analysis method was performed with NVivo software to develop categories and themes. Results Four themes were identified: (a) impact of CDD, including advantages and disadvantages for patients and nurse distress; (b) barriers to CDD, including requests from family members, patients themselves, and communication skills; (c) strategies for CDD, including communication with family members, physician‐nurse collaboration, and patient education; and (d) nurses' roles in CDD, including active participants and promoters and advocates. Conclusions More channels of information and education on cancer, cancer diagnosis, life, and death will be needed in the future. Nurses should actively participate in cancer diagnosis delivery, and more collaboration between nurses and physicians must occur.

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Section: Resultsmentioning

confidence: 99%

Section: Patients Themselvesmentioning

confidence: 99%

Nurses' experiences and attitudes toward diagnosis disclosure for cancer patients in China: A qualitative study

et al. 2019

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“…Discharged patients should take good rest and maintain regular living habits, pay attention to diet and change incision dressing when necessary. After 2 weeks, patients should visit outpatient service for counter check of the position of drainage tube or tent, undergo laboratory examination of blood and biochemistry and take the CT scan (Jie, Qiu, Feng, & Zhu, ; Rose et al., ).…”

Section: Resultsmentioning

confidence: 99%

Post-operative care of interventional therapy for 40 liver cancer patients with obstructive jaundice

Tong

Chen

et al. 2018

Eur J Cancer Care

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The care of 40 patients with primary liver cancer with obstructive jaundice treated with liver puncture bile drainage or biliary stent implantation was reported. Treated with the interventional therapy, patients were observed closely to identify symptoms of hepatic encephalopathy and pain; diet care was well performed. Bile drainage tube and skin acre were performed carefully. Liver function, bilirubin and other biochemical indicators were monitored; occurrence of bleeding, acute pancreatitis, biliary tract infection, leakage of ascites around drainage tube and other complication were observed with good discharge instruction. After this operation, three rounds of liver had poor function, and hepatic encephalopathy and death occurred during hospitalisation. Seven patients had bloody bile drainage fluid after operation; eight had increased blood amylase; nine had biliary infection and four had leakage of ascites around the drainage tube. After positive treatment and care, the situation was improved with varied degrees of jaundice increase.

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“…According to the law of the People's Republic of China on Medical Practitioners, health care providers have the obligation to disclose the truth to the patients and their family members; they also have the responsibility to take necessary actions to avoid adverse consequences related to the diagnosis disclosure [5]. Therefore, in clinical practice in China, the "family consent for disclosure" approach was frequently used by the health care providers to disclose a life-threatening diagnosis (e.g., cancer diagnosis) [6]. In these circumstances, health care providers choose to disclose patients' cancer diagnosis to their caregivers primarily, and then caregivers make the decision about further cancer diagnosis disclosure [6,7].…”

Section: Introductionmentioning

confidence: 99%

“…Therefore, in clinical practice in China, the "family consent for disclosure" approach was frequently used by the health care providers to disclose a life-threatening diagnosis (e.g., cancer diagnosis) [6]. In these circumstances, health care providers choose to disclose patients' cancer diagnosis to their caregivers primarily, and then caregivers make the decision about further cancer diagnosis disclosure [6,7]. This diagnosis disclosure strategy avoids a direct interaction between health care providers and patients.…”

Section: Introductionmentioning

confidence: 99%

Cancer Diagnosis Disclosure and Quality of Life in Elderly Cancer Patients

2019

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Informed consent and patient autonomy rights require an optimal cancer diagnosis disclosure strategy to be used to update the patients and caregivers with the bad news. However, a cancer diagnosis disclosure may arouse anxiety and distress which increase patients’ and caregivers’ psychological burden. This study aims to explore the influence of cancer diagnosis disclosure on the quality of life in elderly cancer patients and their caregivers, and to introduce an effective way to disclose cancer diagnosis. A total of 120 participants were randomly selected in the study. The Medical Coping Modes Questionnaire was used to select informed person. The SPIKES was used to guide the disclosure procedures. The informed patients’ or caregivers’ quality of life were evaluated by the Generic Quality of Life Inventory-74 or Caregiver Quality of Life Scale before and after the cancer diagnosis disclosure and at the discharge time. After cancer diagnosis disclosure, no significant change was found on the quality of life of the informed person. With multiple psychological interventions implemented, a significant increase was noticed on the quality of life of the informed person. Applying the cancer diagnosis disclosure strategies and psychological intervention were essential to improve cancer patients’ and caregivers’ quality of life.

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Impact of disclosure of diagnosis and patient autonomy on quality of life and illness perceptions in Chinese patients with liver cancer

Abstract: Our findings suggest that for patients with HCC who have undergone potentially curative treatment, physicians should satisfy patients' desires for autonomy regarding the disclosure of their diagnosis. Copyright © 2015 John Wiley & Sons, Ltd.

Cited by 28 publications

References 23 publications

Nurses' experiences and attitudes toward diagnosis disclosure for cancer patients in China: A qualitative study

Nurses' experiences and attitudes toward diagnosis disclosure for cancer patients in China: A qualitative study

Post-operative care of interventional therapy for 40 liver cancer patients with obstructive jaundice

Cancer Diagnosis Disclosure and Quality of Life in Elderly Cancer Patients

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