Impact of emotional distress on caregivers burden among Nigerian children with Obstructive Adenotonsillar hypertrophy

Olagunju, Andrew T; Asoegwu, Chinyere N.; Campbell, Ewan; Akinbode, Abiola Adelphine; Aina, Olatunji F.; Nwawolo, C C

doi:10.1016/j.ijporl.2015.03.018

Cited by 9 publications

(9 citation statements)

References 31 publications

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“…In this study, we present findings to support the viewpoint that caregivers of children with NS, like other chronic childhood illness, carry significant burden of care and suffer from psychological distress as a result of their caregiving role. 18,29 One in 3 and 1 in 6 caregivers of children with NS in this study reported psychological distress and significant caregiver burden, respectively. Importantly, the rates of significant burden and distress in this study are similar to findings among caregivers of children with autism spectrum disorder in a similar setting.…”

Section: Discussionmentioning

confidence: 58%

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Significant Burden and Psychological Distress Among Caregivers of Children With Nephrotic Syndrome: A Cross-Sectional Study

Esezobor

Solarin

Olagunju

2020

Can J Kidney Health Dis

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Background: Childhood nephrotic syndrome (NS) follows a chronic course in most children. However, little is known about the psychosocial burden of NS on the caregivers despite evidence that caregiver burden or impairment in their well-being may alter the outcome of chronic childhood illnesses. Objectives: To determine the frequency and predictors of significant caregiver burden and psychological distress among caregivers of children with NS. Design: A cross-sectional study. Setting: Two pediatric nephrology clinics in Lagos, Nigeria. Patients: We included primary caregivers of children with idiopathic NS for at least 6 months. Measurements: The primary outcomes were psychological distress and significant caregiver burden among caregivers. Methods: We interviewed caregivers using the 12-item General Health Questionnaire (GHQ-12) and the 6-item Zarit Burden Interview (ZBI-6). The GHQ-12 scores ≥ 3 and ZBI-6 scores ≥ 6 indicated psychological distress and significant caregiver burden, respectively. Results: The caregivers were mostly mothers (77.9%) and married (92.4%), whereas the children (n = 172) were mainly male (65.1%). Most of the children (n = 152; 88.4%) had steroid-sensitive NS including 24 (14%) children with frequent relapses or steroid dependence and 20 (11.6%) with steroid-resistant NS. Of the 172 caregivers, 53 (30.8%) and 30 (17.4%) reported psychological distress and significant burden, respectively. Caregivers of children in relapse had adjusted an odds ratio (aOR) with 95% confidence interval (CI) of 2.45 (1.05-5.67) and 3.30 (1.22-8.92) of psychological distress and significant caregiver burden, respectively. Furthermore, caregivers of male children and those who needed help paying for health care had an aOR of 4.61 (1.34-15.68) and 3.06 (1.06-8.87) of significant caregiver burden, respectively. Limitations: The study was limited by its cross-sectional design and the use of generic rather than disease-specific instruments. Conclusion: One in every 6 caregivers of children with idiopathic NS reported significant caregiver burden, and it was associated with psychological distress. Our findings underscore the need for psychosocial support for caregivers of children with NS, especially those with identifiable vulnerability.

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Section: Discussionmentioning

confidence: 58%

“…Both GHQ and ZBI have been validated and used widely in research among caregivers of people with chronic illnesses in Nigeria. 29,30…”

Section: Participants and Methodsmentioning

confidence: 99%

Significant Burden and Psychological Distress Among Caregivers of Children With Nephrotic Syndrome: A Cross-Sectional Study

Esezobor

Solarin

Olagunju

2020

Can J Kidney Health Dis

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“…GHQ-12 cut-off score ⩾3 is indicative of emotional distress and a higher score indicates greater severity of distress (Goldberg et al, 1997; Gureje & Obikoya, 1990). GHQ-12 has been validated and used extensively in Nigeria (Gureje & Obikoya, 1990; Olagunju et al, 2012, 2015, 2017). Lastly, the Parent Illness Intrusiveness Rating Scale (PIIRS), developed by Devins et al, (1983) was used to assess the burden among the caregivers.…”

Section: Methodsmentioning

confidence: 99%

“…Continuous data were presented as mean (standard deviation) for normally distributed data, while categorical variables were described with percentages and frequency. Bivariate analysis including Chi-square ( X 2 ) test (with Yates correction for continuity where relevant) (Yates, 1934) was used to test the relationship between clinico-demographic variables and presence or absence of emotional distress derived from dichotomization of GHQ-12 scores using three as cut-off score (Gureje & Obikoya, 1990; Olagunju et al, 2015). Spearman’s correlation test was conducted to evaluate the relationship between emotional distress and illness intrusiveness scores, and we presented effect sizes using Spearman’s rho coefficient (r s ) = 0.10, r s = 0.30, and r s = 0.50 to interpret small, medium, and large effect sizes respectively (Cohen, 1988, 1992).…”

Section: Methodsmentioning

confidence: 99%

Emotional distress among parent caregivers of adolescents with sickle cell disease: Association with patients and caregivers variables

et al. 2020

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Evidence suggests that impairment in caregiver wellbeing can alter the quality of care in children with sickle cell disease. We examined 121 parent caregivers of adolescents with sickle cell disease for emotional distress and disruptions to caregiver lifestyle and interests. Participants were predominantly mothers 92(76%) with mean age, 43.59 ( SD = 6.39) years. Four in every ten caregivers had emotional distress, and this was predicted by frequent hospital attendance and disruptions in caregiver lifestyle, relationships, and interests. Psychosocial support to promote resilience and adaptive coping-styles to deal with the stress from unforeseen crises, frequent hospital visits, and lifestyle disruptions are indicated to improve caregiver wellbeing.

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“…Objektif (aktivite ve olumsuz bakım deneyimi) ve subjektif streslerin (anksiyete, ilgi, hayal kırıklığı vb. duygusal yanıtlar) toplamını yansıtan bakım yükü; hastanın ve bakım verenin demografik özellikleri, sağlık durumu, hastalığın tanısı ve seviyesi, ek hastalıklar, bakım işi ile ilgili aktivite miktarı ve hastanın yaşam kalitesi gibi birçok etkenden etkilenmektedir (2,3).…”

Section: Introductionunclassified

Nöroloji̇k Hastalara Bakim Verenleri̇n Bakim Yükünün Gövde Kas Kuvveti̇, Enduransi Ve Esnekli̇ği̇ Üzeri̇ne Etki̇si̇

Duray

Gülşen

Altuğ

et al. 2018

Türk Fizyoterapi Ve Rehabilitasyon Dergisi

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Bu çalışma, nörolojik hastalara bakım verenlerin bakım yükünün gövde kas kuvveti, enduransı ve esnekliğine etkisinin incelenmesi amacıyla planlandı. Yöntem: Tanımlayıcı ve kesitsel olarak planlanan çalışmaya 107 gönüllü katıldı. Tüm olguların BAKAS Bakım Verme Etki Ölçeği puanlarının ortancası hesaplandıktan sonra, olgular bakım yükü yüksek (n=58, 36K, 22E) ve düşük grup (n=49, 27K, 22E) olmak üzere iki gruba ayrıldı. Grupların gövde kas kuvveti, enduransı ve esnekliğinin değerlendirmesi için; gövde fleksör, ekstansör ve lateral fleksör kaslarına kuvvet, endurans ve esneklik testleri uygulandı. Sonuçlar: Bakım yükü yüksek olan grubun yaş ortalaması 46,93±14,95 yıl ve düşük olan grubun ise, 42,00±14,55 yıldı. Grupların yaş, beden kitle indeksi, cinsiyet ve tanılarına ilişkin özellikler benzer bulundu (p>0,05). Bakım yükü yüksek olan grubun gövde fleksiyon ve ekstansiyon kas kuvvetleri ile ekstansiyon ve lateral fleksiyon esneklik değerlerinin anlamlı olarak daha kötü olduğu gözlenirken (p<0,05), diğer fiziksel uygunluk parametrelerinin her iki grupta da benzer olduğu belirlendi (p>0,05). Tartışma: Nörolojik hastalara bakım veren bireylerde bakım yükünün artması, yapısal ve fonksiyonel bozuklukların gelişimine katkıda bulunan gövde kas kuvveti ve esnekliğinde azalmaya neden olabilir. Bu yüzden, bakım verme işinin dejeneratif etkilerini en aza indirebilmek ve bakım verme sürecinde verimliliği artırabilmek için, bakım verenlere ergonomik kuralların öğretilmesi ve gövde kas kuvvet ve esnekliğini artırmaya yönelik müdahelelerde bulunulması önemlidir.

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Impact of emotional distress on caregivers burden among Nigerian children with Obstructive Adenotonsillar hypertrophy

Cited by 9 publications

References 31 publications

Significant Burden and Psychological Distress Among Caregivers of Children With Nephrotic Syndrome: A Cross-Sectional Study

Significant Burden and Psychological Distress Among Caregivers of Children With Nephrotic Syndrome: A Cross-Sectional Study

Emotional distress among parent caregivers of adolescents with sickle cell disease: Association with patients and caregivers variables

Nöroloji̇k Hastalara Bakim Verenleri̇n Bakim Yükünün Gövde Kas Kuvveti̇, Enduransi Ve Esnekli̇ği̇ Üzeri̇ne Etki̇si̇

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