Impact of environmental factors on community participation of persons with an intellectual disability: a systematic review

Verdonschot, Manon M. L.; Witte, Luc de; Reichrath, Enid; Buntinx, Wil H. E.; Curfs, L.M.G.

doi:10.1111/j.1365-2788.2008.01128.x

Cited by 166 publications

(130 citation statements)

References 19 publications

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“…Second, is there enough coordinated and individualized support from adult service agencies such that parents do not have to settle or feel that they are facing such a daunting task? The results of the current study confirm prior findings that the young adults lived and would likely continue to live in their family homes (Chambers, Hughes, & Carter, 2004;Hewitt & Larson, 2007;McIntyre, Kraemer, Blacher, & Simmerman, 2004) and that parents felt unprepared for their roles as advocates in the adult system and were more involved than anticipated (Bianco, Based on these findings and because family involvement and advocacy are related to increased community participation and independence of individuals with IDD (Roush, Fresher-Samways, Stolgitis, Rabbitt, & Cardinal, 2007;Verdonschot, de Witte, Reichrath, Buntinx, & Curfs, 2009a), we offer the following recommendations to families and support providers. First, employment should be a priority for all individuals with IDD as recommended by others (Butterworth, Hall, Smith, Migliore, Winsor, Domin, & Sulewski, 2013;Sulewski, 2010).…”

Section: Discussionsupporting

confidence: 87%

Parent Perceptions of Time Spent Meaningfully by Young Adults With Pervasive Support Needs

Rossetti

Lehr

Lederer³

et al. 2015

Research and Practice for Persons with Severe Disabilities

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This article describes a qualitative study that examined how 23 young adults with pervasive support needs and limited functional communication spent their time and how their parents (n = 23) and direct support professionals (DSPs; n = 2) defined meaningfulness in relation to the young adults' experiences. Data were collected through semi-structured interviews with the parents and DSPs. Findings indicated that most of the young adults spent time in their communities, though typically without friends and not engaged in integrated employment. The participants defined meaningfulness according to three dimensions: community participation, individual indicators, and the nature of activities in the young adults' schedules. They also described both episodic and ongoing challenges that hindered their ability to focus on time spent meaningfully. Finally, their definitions, which reflected basic care needs and community participation goals, raised questions related to the awareness, availability, and utilization of services and supports in the adult developmental disabilities system. Keywords pervasive support needs, post-secondary outcomes, parents, employment Many young adults experience the pressure of trying to figure out what to do after K-12 schooling typically in the areas of post-secondary education, employment, and adult living. The Individuals With Disabilities Education Improvement Act (IDEIA; 2004) emphasized these same goals for young adults with disabilities as part of national policy designed to ensure "equality of opportunity, full participation, independent living, and economic self-sufficiency for individuals with disabilities." However, research on post-school outcomes for students who received special education services indicates low rates of post-secondary school attendance, employment, and independent living, especially for those with more significant needs

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Section: Discussionsupporting

confidence: 87%

Parent Perceptions of Time Spent Meaningfully by Young Adults With Pervasive Support Needs

Rossetti

Lehr

Lederer³

et al. 2015

Research and Practice for Persons with Severe Disabilities

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show abstract

“…Em consonância com outras pesquisas 49,57,58,59 , nosso estudo revelou que os deficientes recebem menos serviços e suportes do que realmente necessitam, nas áreas de saúde, educação e lazer. Políti-Cad.…”

Section: Discussionunclassified

Impacto da deficiência intelectual moderada na dinâmica e na qualidade de vida familiar: um estudo clínico-qualitativo

et al. 2017

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Este estudo clínico-qualitativo investigou o impacto da deficiência intelectual moderada na dinâmica e na qualidade de vida familiar. Os dados foram coletados por meio de entrevistas individuais com 15 mães de deficientes, escolhidas por conveniência, e examinados pela técnica de análise de conteúdo categorial temática. Os resultados foram discutidos usando-se abordagem compreensiva e interpretativa. Da análise das entrevistas apreendeu-se que o cuidado do filho deficiente é centrado na mãe, o que contribuiu para a modificação das relações familiares. O enfrentamento religioso apareceu como estratégia comum de ajuste. Os filhos deficientes tiveram acesso a menos serviços e suportes do que necessitavam, nas áreas de saúde, educação e lazer. Restrições financeiras e dificuldades no convívio comunitário impactaram negativamente na qualidade de vida familiar. Apoio emocional e psicológico para todos os membros da família, e apoio prático e social, incluindo distribuição de renda e acesso a serviços adequados, mostraram-se essenciais para o bem-estar do deficiente e de sua família.

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“…Se ha de avanzar hacia la búsqueda de 'buenas prácticas basadas en la evidencia'. Como varios autores plantean (Heller, 2002;Verdonschot et al, 2009), no sólo es importante conocer si la persona con discapacidad se encuentra mejor en un centro residencial o en un hogar grupal, sino que es necesario recoger evidencias sobre el desarrollo de esa persona, las relaciones que tiene con el personal, sus apoyos, las redes sociales y su participación en la comunidad. Ello requiere plantear de una forma integral el desarrollo de un sistema de evaluación de la calidad que, entre otros aspectos, recoja evidencias de resultados personales valorados (calidad de vida).…”

Section: Discussionunclassified

Servicios residenciales para personas con discapacidad intelectual en Chile. Avanzando hacia las buenas prácticas

Cordova

Río

Robaina

et al. 2013

Redis

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This study aims to understand the vision and practices of service providers on care provided and its relation to the support and quality of life of institutionalized Chileans with intellectual disabilities. The methodology used consisted of content analysis of the information obtained from three service provider focus groups. The results indicate that while progress is being made in the quality of services offered to these users, it is necessary to take another step to move from the provision of essential services to the promotion, recording and tracking of quality results. This change requires a joint effort at the different levels of the system, including public policies that focus on personal development opportunities and personal outcome, as well as professionals committed to the promotion of best practices.

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Impact of environmental factors on community participation of persons with an intellectual disability: a systematic review

Cited by 166 publications

References 19 publications

Parent Perceptions of Time Spent Meaningfully by Young Adults With Pervasive Support Needs

Parent Perceptions of Time Spent Meaningfully by Young Adults With Pervasive Support Needs

Impacto da deficiência intelectual moderada na dinâmica e na qualidade de vida familiar: um estudo clínico-qualitativo

Servicios residenciales para personas con discapacidad intelectual en Chile. Avanzando hacia las buenas prácticas

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