Impact of health awareness campaign in improving the perception of the community about palliative care: A pre- and post-intervention study in rural Tamil Nadu

Chandra, Ankit; Sarkar, Sonali; Adinarayanan, S; Balajee, Karthik Laksham

doi:10.4103/0973-1075.191832

Cited by 14 publications

(11 citation statements)

References 10 publications

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“…Before attending the campaign, the average score of participants was 12 points ± 7.57, and it significantly increased to 17.77 points ± 5.44. Success can be seen in previous campaigns, such as palliative care, premarital examination, and crown health, which significantly increased awareness rates by 62%, doubled results, and even achieved 11-fold increases, respectively (11)(12)(13)(14)(15)(16). This emphasizes that public campaigns can help reconstruct misconceptions and ideas adopted by the general population to facilitate better overall knowledge that can hopefully impact the care and quality of life for PD patients.…”

Section: Discussionmentioning

confidence: 95%

Assessing the perception of Parkinson’s disease in Al-Ahsa, Saudi Arabia among the visitors of a public campaign: before and after survey

Alokley,

Alhubail,

Al Omair

et al. 2024

Front. Neurol.

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IntroductionInsufficient knowledge and beliefs hinder the early diagnosis and provision of adequate treatment and care for PD patients, causing socio-economic burdens. Raising public awareness and understanding the knowledge gap is crucial for effective educational programs and early detection. This study aims to assess the perception of Parkinson’s disease (PD) among visitors of a public campaign conducted to raise PD awareness and knowledge to facilitate early detection and management.MethodsA before-and-after study was conducted from May to June 2023, to assess the perception of PD among a public PD campaign visitors in Al-Ahsa, Saudi Arabia. The campaign included educational booths discussing PD symptoms, causes, diagnosis, management, and support. Participants completed a self-administered online questionnaire before and after the campaign. The data were analyzed using SPSS.ResultsThe study included 48 eligible individuals. The mean knowledge score was significantly enhanced following the campaign, rising from 12 to 17.77 points (p < 0.05). The symptoms of PD that showed a significant difference were slow movement, tremors, depression, memory problems, and sleep problems. The campaign had a beneficial effect on participants’ general understanding of PD.DiscussionThe study showed that public awareness campaigns successfully raised community awareness of PD. Participants’ knowledge improved after the campaign, highlighting its positive effect. Further research could explore measuring the continuity of awareness over a longer period and its impact on improving patients’ lives and could expand the sample size.

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Section: Discussionmentioning

confidence: 95%

Assessing the perception of Parkinson’s disease in Al-Ahsa, Saudi Arabia among the visitors of a public campaign: before and after survey

Alokley,

Alhubail,

Al Omair

et al. 2024

Front. Neurol.

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“…Five studies had provided detailed information regarding the specific diseases or conditions requiring palliative care. [ 7 , 11 - 14 ] In the details of 118 cases, with 53.4% of these cases being females. The spectrum of diseases encompassed both communicable and non-communicable conditions, as well as curable and non-curable illnesses.…”

Section: Resultsmentioning

confidence: 99%

Palliative Care Need in India: A Systematic Review and Meta-analysis

Chandra,

Debnath,

Nongkynrih

2023

IJPC

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Background: To achieve sustainable development goal 3.8, countries must prioritise the provision of palliative care. We aimed to estimate the prevalence of palliative care needs in India. Methods: A systematic literature search was conducted in databases of PubMed, Cochrane, Embase, Web of Science, and EBSCO Host. We included community-based studies published in English between inception and April 30, 2023. We excluded hospital-based studies that were conducted solely including diseased patients. Data were extracted independently, and a quality assessment was performed. To estimate the pooled prevalence and 95% confidence intervals (CI), we used the random-effects model. Heterogeneity was assessed using the Q statistic and I2 test. Subgroup analyses were conducted based on the study site, urban–rural distribution, gender, and age groups. Publication bias was evaluated using a funnel plot and Egger test. STATA software was used for data analysis. Results: Out of the 2632 articles identified, 8 cross-sectional studies were included. Using the random-effects model, the pooled estimate of palliative care needs was found to be 6.21/1000 population (95% CI: 2.42–11.64). The southern region showed a prevalence of 10.83/1000 compared to 2.24/1000 in the northern region. Urban areas had a prevalence of 3.34/1000, while rural areas had a prevalence of 7.69/1000. Among females, the prevalence was 9.64/1000, compared to 6.77/1000 among males. Notably, individuals aged over 60 years had a higher prevalence of palliative care needs, with a rate of 37.86/1000 population. Conclusion: This systematic review and meta-analysis highlight a substantial need for palliative care in India, with a prevalence of 6.21 individuals/1000 population.

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“…Similar results were obtained by Chandra et al . [ 20 ] in their study conducted in the villages of Tamil Nadu, where it was found that despite being primary caregivers for cancer patients, a large proportion of elderly individuals in rural areas of Puducherry were not aware of palliative care, suggesting the need for more education and awareness about palliative care and its benefits among all age groups and elderly individuals living in rural areas.…”

Section: Discussionmentioning

confidence: 99%

“…Chandra et al . [ 20 ] proposed in their study that health awareness programs in the community using posters, role plays, interactive sessions, and door-to-door leaflet distribution and information dissemination might raise the knowledge of palliative care among the people living in rural areas of the country. During our intervention, we observed that low literacy levels of the participants acted as a barrier for acceptance of the information regarding cancer, with most participants having either secondary education or no formal education .…”

Section: Discussionmentioning

confidence: 99%

Effect of Community-Based Health Education on Misconceptions Related to Caregiving for Cancer among Elderly in a Rural Area of Puducherry: A Pre–Post-Intervention Study

Thanigachalam,

Sarkar,

Sethuramachandran

et al. 2023

Indian Journal of Community Medicine

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Background and Aim: Families are crucial in providing comprehensive support to cancer patients, including physical, psychological, spiritual, and financial assistance. Unfortunately, cancer-related myths and stigma can have detrimental effects on those affected and their caregivers. This study aims to remove the misconceptions prevailing in a rural population of Puducherry regarding caregiving for cancer among elderly through a health education campaign. Materials and Methods: A pre- and post-intervention study was conducted among 217 adults above 18 years of age in a rural area of Puducherry. The intervention was delivered through pamphlet distribution, health talks, and discussion. Attitude, beliefs, and knowledge regarding the misconceptions about cancer were assessed in a five-point Likert scale and then the difference in the proportion of subjects with misconceptions about cancer before and after the intervention was tested using the McNemar test. Results: Among the respondents, 77% were females, 15% were illiterate, and 9.6% had a history of cancer in the family. About 23% felt cancer lends a bad name to the family and 24% considered palliative care as not necessary since end-stage cancer patients would die. Post-intervention, the perception that herbal items or diets may treat cancer declined from 45% to 18%, and that a cancer patient in the family lends bad name to the family declined from 23% to 3% (P < 0.001). Conclusions: Community-based intervention can effectively reduce misconceptions related to caregiving for cancer among elderly in rural areas. These interventions can also improve the quality of care and support provided to cancer patients.

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Impact of health awareness campaign in improving the perception of the community about palliative care: A pre- and post-intervention study in rural Tamil Nadu

Cited by 14 publications

References 10 publications

Assessing the perception of Parkinson’s disease in Al-Ahsa, Saudi Arabia among the visitors of a public campaign: before and after survey

Assessing the perception of Parkinson’s disease in Al-Ahsa, Saudi Arabia among the visitors of a public campaign: before and after survey

Palliative Care Need in India: A Systematic Review and Meta-analysis

Effect of Community-Based Health Education on Misconceptions Related to Caregiving for Cancer among Elderly in a Rural Area of Puducherry: A Pre–Post-Intervention Study

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