Impact of Inflammatory Bowel Disease on Health-Related Quality of Life

Casellas, Francesc; López-Vivancos, Josefa; Vergara, Mercedes; Malagelada, J.-R.

doi:10.1159/000016938

Cited by 96 publications

(81 citation statements)

References 47 publications

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“…Nonetheless, Kasman et al found that female patients younger than 65 years old, white, with low income and having completed secondary school more frequently reported dissatisfaction with healthcare services (9). The differences between this and our study could be explained by the study population as Kasman reported results from a population based study including healthy people as well as ill patients for whom the use of healthcare resources might not be as high as it is for IBD patients (7).…”

Section: Discussioncontrasting

confidence: 68%

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Inflammatory bowel disease patient's satisfaction with healthcare services received: physicians' and nurses' perceptions

Casellas

Vera

Ginard

et al. 2013

Rev. esp. enferm. dig.

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Background: patient satisfaction with healthcare services provided for inflammatory bowel diseases (IBD) is essential due to high resources use.Objectives: the study aimed to describe patient satisfaction with healthcare services using the CACHE questionnaire and to assess gastroenterologist and nurse perception on patients' satisfaction.Methods: observational multicentric prospective study in 35 Spanish hospitals. Patients included had Crohn's disease or ulcerative colitis. The study was approved by the Hospital Universitari Vall d´Hebron Ethics Committee. Scheduled study visits: baseline (patient sociodemographics and clinical data were collected), 2-4 and 6-months. Patient satisfaction with healthcare was assessed by CACHE questionnaire at each visit; it scores from 0-least satisfaction to 100-highest satisfaction.Gastroenterologists and nurses answered once an adapted questionnaire.Results: participating 290 patients (54.2 % males, 41.3 years old), 62 gastroenterologists and 47 nurses. At baseline mean (SD) CACHE score was 81.7 (10.9); satisfaction with clinician care was the highest, patient information the lowest. Scores did not change across study.Gastroenterologist global score was 72.5 (9.8); Staff Care satisfaction was the highest, patient information the lowest. All scores were significantly lower than patients´.Nurses´ global score was 82.2 (8.5), clinician care satisfaction was the highest, centre facilities the lowest. Scores on satisfaction with clinician care, centre facilities, and patient information scored statistically lower than patients´.No relationship was found between patients´ satisfaction and patients characteristics.Conclusions: IBD patients are satisfied with healthcare services provided, even though the information may be improved. Nurses'

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Section: Discussioncontrasting

confidence: 68%

“…IBD is a chronic illness with an intense impact on patients' Health Related Quality of Life (HRQOL) and is associated with a high level of healthcare resource consumption (6,7). Also the patient satisfaction with the healthcare services has been seen to be related to the clinical outcomes in patients with chronic illness (3).…”

Section: Discussionmentioning

confidence: 99%

Inflammatory bowel disease patient's satisfaction with healthcare services received: physicians' and nurses' perceptions

Casellas

Vera

Ginard

et al. 2013

Rev. esp. enferm. dig.

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“…Por ello, el campo de la calidad de vida relacionada con la salud (CVRS) ha ganado protagonismo en la medicina y especialmente en la gastroenterología. Este interés es reflejado en el factor que el sujeto es regularmente citado en la literatura médica (1).…”

Section: Introductionunclassified

Traducción, adaptación y validación al español del cuestionario de calidad de vida de 32 ítems (IBDQ-32) de la enfermedad inflamatoria intestinal

Masachs

Casellas

Malagelada

2007

Rev. esp. enferm. dig.

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RESUMENIntroducción: la medida de la calidad de vida relacionada con la salud (CVRS) tiene una reconocida importancia en la evaluación, el manejo y el seguimiento de la enfermedad inflamatoria intestinal. El instrumento de medida más utilizado es la versión de 32 ítems del Inflammatory Bowel Disease Questionnaire (IBDQ-32), que no está adaptado al español.Objetivo: traducir la versión del IBDQ-32 al español y determinar su validez, fiabilidad y sensibilidad tanto en la colitis ulcerosa como en la enfermedad de Crohn.Método: estudio prospectivo en dos fases: traducción y posterior validación del IBDQ-32 al español. La traducción se ha basado en la versión al español validada del IBDQ-36, y los ítems del IBDQ-32 no incluidos en el IBDQ-36 se tradujeron "de novo". Una vez terminada la traducción del IBDQ32, se aplicó un cuestionario específico de comprensión. Para determinar las propiedades psicométricas del IBDQ-32, un grupo de pacientes completó el IBDQ-36 ya validado al español y el IBDQ-32.Resultados: se han incluido 84 pacientes (53 con enfermedad de Crohn y 31 con colitis ulcerosa). La mediana de la puntuación global de ambos cuestionarios en los 84 pacientes no fue diferente (6,1 vs. 6,2, p = ns) y su correlación de Spearman fue muy significativa (r = 0,97, p < 0,001). La capacidad de discriminar entre pacientes con brote y remisión también fue equivalente en ambos cuestionarios (6,4 vs. 6,4 con r = 0,96 en remisión y 3,8 vs. 3,9 con r = 0,95 en actividad, p < 0,001 remisión vs actividad). Estos resultados se reprodujeron en el análisis para EC y CU independientemente (6,4 vs. 6,4 y 6,7 vs. 6,6 respectivamente, p = ns).Conclusión: la versión en castellano de 32 ítems del IBDQ es válida y discriminativa para ser aplicada en pacientes con enfermedad de Crohn o colitis ulcerosa. ABSTRACTIntroduction: the measurement of health-related quality of life (HRQoL) has an established relevance in the assessment, management, and follow-up of inflammatory bowel disease. The most commonly used measuring instrument is the 32-item version of Inflammatory Bowel Disease Questionnaire (IBDQ-32), which has never been adapted to Spanish.Objective: to translate IBDQ-32 into Spanish, and to establish its validity, reliability, and sensitivity both in ulcerative colitis and Crohn's disease.Method: a prospective study in two phases -translation into Spanish and subsequent validation of IBDQ-32. Translation was based on the validated Spanish version of IBDQ-36, and IBDQ-32 items not included in IBDQ-36 were translated from scratch. Once the IBDQ32 translation was completed a comprehensionspecific questionnaire was administered. To establish IBDQ-32 psychometric properties a group of patients completed both the validated Spanish version of IBDQ-36 and IBDQ-32.Results: eighty-four patients (53 with Crohn's disease and 31 with ulcerative colitis) were included. Median overall scores in both questionnaires for all 84 patients did not differ (6.1 vs. 6.2, p = ns), and Spearman's correlation was highly significant (r = 0.97, p < 0.001). T...

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“…The questionnaire consisted of closed questions, chosen on the basis of personal clinical experiences, as well as data from the literature [6][7][8][9]; there were three possible answers to the questions: "yes", "no" and "don't know". The questions were arranged in such a way as to eliminate the suggestion component, as well as the so-called inner control.…”

Section: Methodsmentioning

confidence: 99%

Quality-of-life estimation by Polish and American inflammatory bowel diseases patients – pilot study

Jakubowska-Burek¹,

Warmuz-Stangierska²,

Kaczmarek³

et al. 2011

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Introduction: Crohn's disease (CD) and ulcerative colitis (UC) belong to inflammatory bowel diseases (IBD). Symptoms that occur primarily in CD patients not only affect the gastrointestinal tract (GI), but also the extra-intestinal area, as well as patients' emotional and physiological well-being. Aim: The aim of the study was to find out if there are any differences between the Polish and American populations regarding the occurrence of symptoms and the way they are perceived by the patients. Material and methods: A 45-question-long anonymous experimental questionnaire was created; it concerned the mental, physical, and social changes the patients underwent. The investigated group consisted of 18 Polish and 16 American CD patients. The results were then compared to a similar group of healthy individuals (16 Polish and 12 Americans). Results: Significant differences were observed among the two investigated populations. The American group, for example, did not suffer from any eye problems, while the Polish group did. On the other hand, the Polish group did not observe any skin changes, while Americans presented skin lesions, e.g. ulcerations of the skin, furuncles, abscesses, and lichen planus. Discrepancies in dermatological, rheumatological, gastroenterological, psychological and general health questions were also observed.

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Impact of Inflammatory Bowel Disease on Health-Related Quality of Life

Cited by 96 publications

References 47 publications

Inflammatory bowel disease patient's satisfaction with healthcare services received: physicians' and nurses' perceptions

Inflammatory bowel disease patient's satisfaction with healthcare services received: physicians' and nurses' perceptions

Traducción, adaptación y validación al español del cuestionario de calidad de vida de 32 ítems (IBDQ-32) de la enfermedad inflamatoria intestinal

Quality-of-life estimation by Polish and American inflammatory bowel diseases patients – pilot study

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