Impact of medicaid-enrollment status/timing on stage at diagnosis among male cancer patients.

Virgo, Katherine S.; Pavluck, Alexandre L.; Chen, A. Y.; Marlow, Nicole M.; Kirby, Heather; Finney, Chris; Ward, E

doi:10.1200/jco.2010.28.15_suppl.6038

Cited by 1 publication

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“…The SC Department of Health and Environmental Control (DHEC) collects, processes, analyzes and publishes SC cancer incidence data which annually feed into the networks of the CDC and the NPCR (SCDHEC, 2022). With SCCCR keeping comprehensive and accurate records for surveillance, cancer researchers have identified: risk and prevention factors (Wagner et al, 2011;Tantamango-Bartley et al, 2013;Orlich et al, 2015;Fraser et al, 2020b;Babatunde et al, 2021), the timing of diagnosisto-treatment and access to care (Virgo et al, 2010;Babatunde et al, 2022), and disparities in prevalence among different racial groups (Adams et al, 2006;Meyer et al, 2007;Adams et al, 2009;Babatunde et al, 2021;Thomas et al, 2021;Adams et al, 2022), geographic groups (Adams et al, 2006;Meyer et al, 2007;Georgantopoulos, 2018;Nicoli et al, 2019;Babatunde et al, 2021;Adams et al, 2022;Babatunde et al, 2022) and religious groups (Fraser et al, 2020a). Using the SCCCR, researchers have found trends suggesting efficient and effective treatment (Yen et al, 2006;Overton et al, 2013;Noxon and Bennett, 2015;Xirasagar et al, 2015) and intervention elements needed to address the person and community coping with cancer (Coker et al, 2006).…”

Section: History Of the Development Of Cancer Registriesmentioning

confidence: 99%

Highlighting the value of Alzheimer’s disease-focused registries: lessons learned from cancer surveillance

et al. 2023

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Like cancer, Alzheimer’s disease and related dementias (ADRD) comprise a global health burden that can benefit tremendously from the power of disease registry data. With an aging population, the incidence, treatment, and mortality from ADRD is increasing and changing rapidly. In the same way that current cancer registries work toward prevention and control, so do ADRD registries. ADRD registries maintain a comprehensive and accurate registry of ADRD within their state, provide disease prevalence estimates to enable better planning for social and medical services, identify differences in disease prevalence among demographic groups, help those who care for individuals with ADRD, and foster research into risk factors for ADRD. ADRD registries offer a unique opportunity to conduct high-impact, scientifically rigorous research efficiently. As research on and development of ADRD treatments continue to be a priority, such registries can be powerful tools for conducting observational studies of the disease. This perspectives piece examines how established cancer registries can inform ADRD registries’ impact on public health surveillance, research, and intervention, and inform and engage policymakers.

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