Impact of oral conditions of children/adolescents with Down syndrome on their families’ quality of life

Abstract

Aims To assess the impact of oral conditions among children/adolescents with Down syndrome (DS) on the Oral Health‐related Quality of Life (OHRQoL) of their families in comparison with a group without DS. Methods and results Families of 144 children/adolescents with DS aged 4‐18 years were compared with families of individuals without DS. Dental caries experience (DMFT/dmft), clinical consequences of untreated dental caries (PUFA/pufa), gingival bleeding (GBI), visible plaque (VPI), and malocclusion were evaluated. Parents/caregivers answered the Family Impact Scale (FIS) and questionnaires on sociodemographic conditions and the health of children/adolescents. Data analysis included chi‐square test and Poisson regression. There was no difference between groups regarding the impact of the children's/adolescents' oral condition on their families’ OHRQoL for all domains and the total FIS score (P > 0.05). A negative impact on the OHRQoL of families of children/adolescents with DS was determined by dental caries (PR = 3.95, CI = 2.09‐7.46), clinical consequences of untreated dental caries (PR = 1.83, CI = 1.18‐2.84), defined malocclusion (PR = 2.75, CI = 1.23‐6.13), and severe malocclusion (PR = 2.82, CI = 1.02‐7.74). Conclusion There is no difference on the OHRQoL of families of children/adolescents with and without DS. Dental caries experience, clinical consequences of untreated dental caries, defined malocclusion, and severe malocclusion determined the negative impact on the OHRQoL of families of children/adolescents with DS.

Oral Health-Related Quality of Life (OHRQoL) of Children with Down Syndrome and Their Families: A Cross-Sectional Study

“…In their recent study, Carrada et al assessed caregivers' perceptions of the quality of life of children with Down syndrome [10]. Their findings revealed that presence of dental caries, severe malocclusion, and defined malocclusion had negative impacts on both children's and their families' OHRQoL.…”

“…Although no association between poor oral health and mortality has been established, it adversely affects morbidity and might exacerbate the existing diseases and conditions [7], thus increasing the burden on individuals and governments [7]. Although the link between poor oral health and individuals' wellbeing and quality of life (QoL) [8,9] is well established, limited research focusing specifically on individuals with Down syndrome exists [10][11][12][13]. The available evidence, however scant, points to negative impacts of oral health status on the quality of life in this population.…”

Faktor Yang Berpengaruh Pada Kualitas Hidup Caregivers Pada Individu Sindrom Down : Literature Review

“…Kondisi kesehatan fisikindividu SD merupakan faktor yang dapat berpengaruh pula pada kualitas hidup caregivers. Hasil yang samadaripenelitian yang dilakukan oleh (Choi, E.K., 2019& Carrada, 2019 bahwa kondisi medis seperti disfungsi usus dan kandung kemih, masalah kesehatan gigi dan masalah tidur pada anak SD adalahmasalah yang paling seringditemukan pada individu DS, yang secaralangsungmemberikanbebankepada orang tuaatau caregiver individu DS. Menurut penulis, anak dengan DS dengan beragam kekurangannya, baik kondisi medis, fisik maupun mental menjadi beban tersendiri bagi caregiverskarenatidakhanyakondisiketerbelakangan mental sampaiseumurhiduptetapi juga banyaknyapenyakitpenyerta.…”

Faktor Yang Berpengaruh Pada Kualitas Hidup Caregivers Pada Individu Sindrom Down : Literature Review

“…Kondisi kesehatan fisik individu SD merupakan faktor yang dapat berpengaruh pula pada kualitas hidup caregivers. Hasil yang sama dari penelitian yang dilakukan oleh (Choi, E.K., 2019& Carrada, 2019 bahwa kondisi medis seperti disfungsi usus dan kandung kemih, masalah kesehatan gigi dan masalah tidur pada anak SD adalah masalah yang paling sering ditemukan pada individu DS, yang secara langsung memberikan beban kepada orang tua atau caregiver individu DS. Menurut penulis, anak dengan DS dengan beragam kekurangannya, baik kondisi medis, fisik maupun mental menjadi beban tersendiri bagi caregivers karena tidak hanya kondisi keterbelakangan mental sampai seumur hidup tetapi juga banyaknya penyakit penyerta.…”