Impact of physical appearance changes reported by adolescent and young adult cancer survivors: A qualitative analysis

Brierley, Mary‐Ellen; Sansom-Daly, Ursula M; Baenziger, Julia; McGill, Brittany C.; Wakefield, Claire E.

doi:10.1111/ecc.13052

Cited by 35 publications

(40 citation statements)

References 33 publications

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“…Themes that were present across all AYA groups include psychological coping, physical changes/loss of function, concerns about others' perceptions, shifts in identity/sense of self, and precancer body image shapes postdiagnosis/treatment. Overall, these themes are congruent with the larger impact of body image on patients with cancer 18 . The only theme that appeared to be greater in AYAs is the “concerns about how others' view them,” which is consistent with literature examining the importance of external feedback on body image in younger age groups 19 .…”

Section: Discussionsupporting

confidence: 77%

A qualitative assessment of body image in adolescents and young adults (AYAs) with cancer

et al. 2020

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Context Among adolescents and young adults (AYAs), cancer and its treatment can disturb body image in distinct ways compared to younger or older individuals. Objective Since AYA body image is not well understood, this study was designed to develop a conceptual framework for body image in AYAs with cancer. Methods Concept elicitation interviews were conducted with 36 AYA patients [10 adolescents (15–17 years), 12 emerging adults (18–25 years), 14 young adults (26–39 years)] and health care providers (n = 36). The constant comparative method was used to analyze for themes and properties, with themes considered saturated if they were present and salient across participant sets. Results Twenty themes emerged from participant data. Three themes illustrate a shared understanding of patients' experience of body image: (1) physical changes produce shifts in identity and experience of self; (2) precancer body image shapes how the AYA experiences cancer‐related physical changes, and (3) changes to the body are upsetting. Nine themes were unique to patients while eight themes were unique to providers. Patient body image experiences were found to evolve over time, largely affected by concerns about how others view them. Providers appeared attuned to AYA patient body image but recognized that it is not systematically addressed with patients. Conclusion More striking than differences between patient groups is the consistency of themes that emerged. The conceptual framework of body image developed from these data offers an important step toward addressing body image concerns for AYA patients.

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Section: Discussionsupporting

confidence: 77%

A qualitative assessment of body image in adolescents and young adults (AYAs) with cancer

et al. 2020

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“…Body image concerns and changes to sexual intimacy were also quite common, a finding supported by previous research [33,[51][52][53]. The impact of treatment on physical appearance such as hair loss, scarring, and weight gain can result in body dissatisfaction [54], feelings of shame, and affect their sexual identity and sexual health [52,55]. This comes at a time when individuals may be more aware of their body and beginning new intimate relationships [33,[51][52][53].…”

Section: Discussionsupporting

confidence: 58%

The Needs and Experiences of Post-Treatment Adolescent and Young Adult Cancer Survivors

Jones

Fitch

Bongard

et al. 2020

JCM

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(1) Background: Adolescents and young adults (AYAs) who have been diagnosed with and treated for cancer have unique healthcare needs, but more research is needed to inform developmentally targeted cancer care for this population. The purpose of the current analyses was to describe the physical and psychosocial concerns and experiences of AYA cancer survivors during the post-treatment phase. (2) Methods: A national survey was conducted by the Canadian Partnership Against Cancer to evaluate the experiences and unmet needs of cancer survivors (≥18 years) within the first 5 years following cancer treatment. The current analyses were conducted on the AYA survivor population (18–34 years). (3) Results: A total of 575 surveys were completed by AYAs. Of these, 61% were female, 51% were married/partnered, and 52% were 1–3 years post treatment. Approximately three-quarters report their physical or emotional health as good/very good. Overall, 88% reported at least one physical concern [mean of 3.98+2.11 physical concerns (range 0–9)], 90% reported at least one emotional concern [mean of 3.77+1.75 emotional concern (range 0–6)], and 79% reported at least one practical challenge [mean of 2.39+1.28 practical concerns (range 0–5)]. The most common concerns were anxiety/worry about cancer returning (83%), fatigue/tiredness (78%), and depression/loss of interest in daily activities (66%). On average, 43% of those reporting a concern sought help. Common reasons for not seeking help included not wanting to ask, being told that it was normal to feel the way they did, or embarrassment. Of those who did seek help, 37% encountered difficulty obtaining assistance. (4) Conclusions: These results suggest that post-treatment AYA cancer survivors have a high rate and number of physical, psychosocial, and practical concerns and are often not seeking or receiving help to address these. Proactive approaches to characterizing and eliminating barriers to obtaining appropriate care are needed.

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“…Therefore, the psychological benefits of aesthetic treatments often transcend their potential fear. 3 Importantly, risks should be consented upfront.…”

Section: Introductionmentioning

confidence: 99%

The 10-Point Plan 2021: Updated Concepts for Improved Procedural Safety During Facial Filler Treatments

Heydenrych

Boulle

Kapoor³

et al. 2021

CCID

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Dermal filler treatments require constant reassessment for improving and safeguarding the rapidly evolving aesthetic field. Suboptimal injection technique, patient selection and product knowledge have touted a concerning increase in filler complications, with new challenges such as the COVID-19 pandemic leading to new paradigms in the understanding, prevention, diagnosis and treatment of complications. The updated 10-point plan has been developed to curtail complications through consideration of causative factors, categorized as patient, product, and procedure-related. Patient-related factors include a preprocedural consultation with careful elucidation of skin conditions (acne, rosacea, dermatitis), systemic disease (allergies, autoimmune disease, underlying bacterial and viral disease (herpes simplex virus, COVID-19 infection), medications (antineoplastic drugs, recreational drugs) and previous cosmetic procedures (including fillers and energy-based devices). Patient assessment should include standardized photography and also evaluate the role of social media, ethnicity, gender, generational, and LGBTQ+ needs. Specified informed consent for both adverse events and their treatment is essential due to the increase in vascular complications, including the risk of blindness. Product-related factors include the powerful advantage of reversibility when using hyaluronic acid (HA) products. Product characteristics such as molecular weight and filler degradation should be understood. Product layering over late or minimally degradable fillers is still inadvisable due to the initial filler being teased into reactivity. Procedural factors such as consistent photographic documentation, procedural planning, aseptic non-touch technique (ANTT), knowledge of topographical anatomy and angiosomes, and technical dexterity including pinch anatomy and needle skills are of pivotal importance. The final section is dedicated to algorithms and checklists for managing and treating complications such as allergic hypersensitivity reactions, vascular events, infection, edema and late-onset adverse events (LOAEs). The updated 10-point plan is a methodical strategy aimed at further minimising the risk of dermal filler complications.

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Impact of physical appearance changes reported by adolescent and young adult cancer survivors: A qualitative analysis

Cited by 35 publications

References 33 publications

A qualitative assessment of body image in adolescents and young adults (AYAs) with cancer

A qualitative assessment of body image in adolescents and young adults (AYAs) with cancer

The Needs and Experiences of Post-Treatment Adolescent and Young Adult Cancer Survivors

The 10-Point Plan 2021: Updated Concepts for Improved Procedural Safety During Facial Filler Treatments

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