Impact of psoriasis in the quality of life of children, adolescents and their families: a cross-sectional study

Salman, Andaç; Yücelten, Ayşe Deniz; Saraç, Esra; Saricam, Merve Hatun; Perdahli-Fis, Nese

doi:10.1590/abd1806-4841.20186981

Cited by 53 publications

(83 citation statements)

References 20 publications

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“…39 Therefore, mean QoL impairment obtained in our subjects (8.7 AE 6.8 points) occurred to be lower than the family burden reported for other dermatoses until now. [32][33][34][35][36][37][38] It can be explained with the specificity of our study group, which consisted only of patients' partners in contrary to previous researches. As was mentioned above, only a children AD patients' populations were assessed until now, so their parents were analysed as caregivers in these studies.…”

Section: Discussionmentioning

confidence: 74%

“…As was mentioned above, only a children AD patients' populations were assessed until now, so their parents were analysed as caregivers in these studies. In the study of Sampogna et al 32 who analysed the family burden of EB sufferers, as well as in the work of Salman et al 33 performed in psoriatic patients, above 84% of assessed caregivers were mothers. In other studies, the providing care subjects were various family members mixed, including parents, siblings and partners.…”

Section: Discussionmentioning

confidence: 97%

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Psychosocial burden of Hidradenitis Suppurativa patients’ partners

Włodarek

Głowaczewska

Matusiak

et al. 2020

Acad Dermatol Venereol

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Background Hidradenitis suppurativa is a debilitating disease related to a great psychosocial burden in affected patients and subsequently also people around them. Patients' partners as caregivers may indirectly experience wide range of devastating effects of the disease on their emotional and social life. Objective The purpose of this study was to determine the QoL impairment in HS patients' partners and to identify its aspects that are affected the most. Correlation between QoL burden and disease severity, duration, sex, age and smoking was also assessed. Methods A total of 50 HS sufferers were assessed according to disease severity and their partners' QoL was determined using the Family Dermatology Life Quality Index questionnaire. Results The mean FDLQI for patients' partners was 8.7 AE 6.8 points, indicating generally a moderate effect of HS on their life. Quality of partners' life correlated significantly with disease severity but no correlation was found according to other factors. Conclusion Hidradenitis suppurativa is a highly psychologically devastating disease not only for patients but also for their partners. It occurred to diminish partners' QoL mostly by increasing daily expenditure but also other problems were often reported. Clinicians should be aware of these psychosocial implications, in order to provide optimal therapy of HS affected families by a multidisciplinary specialized management addressing both, patients and their cohabitants simultaneously.

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Section: Discussionmentioning

confidence: 74%

Section: Discussionmentioning

confidence: 97%

Psychosocial burden of Hidradenitis Suppurativa patients’ partners

Włodarek

Głowaczewska

Matusiak

et al. 2020

Acad Dermatol Venereol

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“…Studies confirm that psoriasis reduces the quality of life of patients in all age groups, but also of patients' families [2][3][4]. That is a result of not only the appearance of the skin lesions, but also the time consumed on visits to doctors and treatment [4]. Data from the literature indicate that deterioration of quality of life of patients with psoriasis is so significant that it is comparable to that associated with serious internal diseases, such as cancer, arthritis, hypertension, heart disease or diabetes [4,5].…”

Section: Introductionmentioning

confidence: 95%

“…The disease causes of not only physical but also mental problems [3]. Studies confirm that psoriasis reduces the quality of life of patients in all age groups, but also of patients' families [2][3][4]. That is a result of not only the appearance of the skin lesions, but also the time consumed on visits to doctors and treatment [4].…”

Section: Introductionmentioning

confidence: 99%

Sleep disorders in psoriasis

Nowowiejska¹,

Baran²,

Flisiak³

2020

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Psoriasis is a chronic inflammatory skin disease affecting 2-4% of general population. Skin lesions may be accompanied by pruritus or pain, what may cause difficulties in daily functioning, and also disturb sleep. Many patients suffer from depression, which is often accompanied by sleep disorders, usually insomnia. Psoriasis is also strongly associated with metabolic syndrome and obesity, but also with obstructive sleep apnea syndrome. Research also shows that patients with psoriasis more frequently suffer from restless leg syndrome. Sleep disorders lead to significant deterioration of patients' quality of life, which is already decreased by the disease itself. Therefore, it is advisable to screen patients with psoriasis for sleep disorders, and introduce adequate treatment early during the course of the disease. StreSZcZeNIe Łuszczyca jest przewlekłą chorobą zapalną skóry, która dotyczy 2-4% populacji. Zmiany skórne mogą przebiegać ze świądem, a nawet bólem, co może utrudniać codzienne funkcjonowanie, w tym sen. Duża część pacjentów choruje również na depresję, której nierzadko towarzyszą zaburzenia snu, zwykle w postaci bezsenności. Łuszczyca ma liczne powiązania z zespołem metabolicznym, otyłością, a także zespołem obturacyjnego bezdechu sennego. Istnieją doniesienia o częstszym występowaniu zespołu niespokojnych nóg u chorych na łuszczycę. Zaburzenia snu prowadzą dodatkowo do istotnego pogorszenia jakości życia pacjenta. Dlatego celowe wydaje się przeprowadzanie u pacjentów chorujących na łuszczycę badań przesiewowych w kierunku zaburzeń snu, co umożliwi wczesne włączenie odpowiedniego leczenia.

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“…According to research, there are 2 peaks of morbidity incidence: approx. at 10-40 and 55-60 years [9,10,11]. Psoriasis is characterized by increased proliferation of epidermal cells that secrete a number of substances that enter and sustain the disease process.…”

Section: Introductionmentioning

confidence: 99%

The level of acceptance of the illness among patients with psoriasis

Budzińska

Kożybska

Zabielska

et al. 2020

Pomeranian Journal of Life Sciences

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Introduction: Psoriasis is a chronic inflammatory and non-infectious skin disease. It is one of the most common dermatoses. Increased reproduction of the epidermis and, as a consequence, visible skin lesions negatively affect the patient's psyche, disrupt self-esteem, reducing the chance of accepting the disease and a normal life.The aim of this study was the assessment of the level of acceptance of the illness and identification of factors affecting its acceptance among patients with psoriasis.Materials and methods: The study involved 132 individuals, comprising 113 women and 19 men. This survey-based study was conducted via the Internet using the author's questionnaire and the Acceptance of Illness Scale (AIS).Results: Acceptance of the illness level was rated great and moderate by respectively 43.9% and 39.4% of respondents. Over 66.7% of the patients described their self-esteem as high obtained a great level of acceptance of the illness according to the AIS. In the examined group, 58% of the patients not accepted psoriatic lesions on their body. Over 60% of the respondents experienced negative reactions from society regarding the disease, and almost 50% of them experienced other people’s reactions resulting from concerns about contracting the disease; these patients obtained lower AIS scores.Conclusions: The obtained results indicate a great illness acceptance among the examined group of the patients with psoriasis. The level of acceptance was influenced by the patient’s self-esteem in relation to the disease, acceptance of their own body image, altered by the disease, experiencing the negative reactions from the society regarding the disease, and the reactions of the other people resulting from concerns about contracting the disease.

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Impact of psoriasis in the quality of life of children, adolescents and their families: a cross-sectional study

Cited by 53 publications

References 20 publications

Psychosocial burden of Hidradenitis Suppurativa patients’ partners

Psychosocial burden of Hidradenitis Suppurativa patients’ partners

Sleep disorders in psoriasis

The level of acceptance of the illness among patients with psoriasis

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