Impact of traumatic brain damage on family dynamics and functioning: a review

Florián, Víctor; Katz, Shlomo; Lahav, Vered

doi:10.3109/03790799109166282

Cited by 39 publications

(41 citation statements)

References 31 publications

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“…Fortunately the two items that caused the grearest degree of stress for the caregivers, increase in physical illness and medication use, were the least frequently reported events. Previous researchers have noted an increase in illness and subsequent medication use amongst TBI caregiving populations [17,18]. However, the current results suggest that while such problems are comparatively infrequent, their occurrence can have a disproportionately severe impact on the wellbeing on the caregiver.…”

Section: Discussionmentioning

confidence: 89%

Caregiver burden at 6 months following severe traumatic brain injury

et al. 1998

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Sixty-nine primary caregivers of people with a severe traumatic brain injury (TBI) were assessed at 6 months post injury. Caregivers completed questionnaires on the physical, cognitive, emotional, behavioural, and social functioning of the persons with the TBI. Caregiver psychosocial functioning and levels of subjective and objective burden were also assessed. Clinically significant levels of anxiety, depression, and impairment in social adjustment were evident in over a third of the caregivers. The frequency with which various changes in the person with the TBI and types of objective burden were reported had little relationship to the degree of distress caused by these changes. The person with TBI's social isolation and negative emotional behaviours caused the greatest degree of stress for caregivers. Caregivers were also most distressed by the impact that caregiving had on their personal health and free time. The results from a multiple regression analysis suggest that it is the presence of behavioural problems in the person with the TBI that has the most severe and pervasive impact on all aspects of caregiver functioning. It is suggested that these findings be taken into account when providing rehabilitation services to people with TBI and their families.

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Section: Discussionmentioning

confidence: 89%

Caregiver burden at 6 months following severe traumatic brain injury

et al. 1998

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“…4,13,14 Persons with TBI are exposed to prolonged distress and stress that appear to be related more to the daily coping with the disability than to the severity of the initial injury. 15 In one of the longest follow-up studies, undertaken 10 ± 15 years after the brain injury, the author found that the psychosocial sequelae presented the most serious problem. 16 There were permanent changes in personality and emotion and these were especially frequent among the youngest TBI persons.…”

Section: Introductionmentioning

confidence: 99%

Partner relationships, functioning, mood and global quality of life in persons with spinal cord injury and traumatic brain injury

et al. 1998

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The aim of this study was to assess and compare spinal cord injured (SCI) and traumatic brain injured (TBI) persons and people from the general population concerning partner relationships, functioning, mood and global quality of life. One hundred and sixty seven SCI persons, 92 TBI persons and 264 controls participated in the study. The median age was: SCI persons 33 years (range 19 to 79 years), TBI persons 40 years (range 20 to 70 years), and controls 31 years (range 19 to 79 years). Age at injury ranged among SCI persons from 14 to 76 years (Md 28 years), and among TBI persons from 16 to 56 years (Md 32 years). Half of the SCI group (51%), 58% of the TBI group and 59% of the controls had a stable partner relationship at the time of the investigation. Many of these SCI and TBI relationships (38% and 55% respectively) were established after injury. Both SCI and TBI persons showed signi®cantly more depressive feelings compared with the controls. Perceived quality of life (global QL rating) was signi®cantly lower in the SCI group compared with the controls, whereas the ratings of TBI persons and controls did not dier signi®cantly. SCI and TBI persons did not dier signi®cantly in level of education, perceived quality of life or distress. In all three groups, global quality-of-life ratings were signi®cantly lower among single persons compared to those with a partner relationship. It was concluded that both SCI and TBI appear to aect overall quality of life and mental well-being negatively. The number of partner relationships contracted after injury among both SCI and TBI persons indicates, however, that the injury is not a major barrier to establishing close partner relationships. Being in good spirits, that is, lack of depressive feelings has a profound impact on the perception of a high quality of life in all three groups. For the SCI and TBI persons, a high level of physical and social independence were further positive determinants of a perceived high quality of life.

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“…Zeigler (1987) pointed out that the strain in the marriage was due in part to the injured husbands being self-oriented, childish, dependent, and lacking in ability to feel concern for others, especially the caregiver. Further areas of concern include decreased or no participation in child care, decision-making, or sexual function (Florian, et al, 1989). Zeigler (1987) suggested that family members may experience a sense of loss, both of the person they loved and-their own former lives.…”

mentioning

confidence: 99%

“…Coping with the effects of brain damage is perhaps one of the most difficult tasks which can confront a family (Florian, Katz, & Lahav, 1989). The family is often more distressed than the injured person, who may be unaware of the changes in self (Lezak, 1978;Brooks, 1991).…”

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confidence: 99%

Severe Traumatic Brain Injury: Some Effects on Family Caregivers

Boyle

Haines

2002

Psychol Rep

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This study assesses the effects of severe traumatic brain injuries on family members and functioning—a topic of interest for those working with survivors and their families. This issue is receiving increased attention as recent findings suggest that family adjustment influences outcome for brain-injured persons. The Family Environment Scale and the Profile of Mood States were completed by 25 individuals who had a family member with a severe traumatic brain injury. These scales were also completed by a comparison group of 32 individuals who had no brain-injured family member. In terms of family functioning, the findings suggest that, when a family member suffers a severe traumatic brain injury, depression may be elevated, along with a decreased ability to express feelings, decreased time and energy for social and recreational activities, and increased control in comparison to families without a brain-injured member. While this might contribute to family isolation which could last for many years, the overall finding of the present study was that caregiver families were coping adequately.

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Impact of traumatic brain damage on family dynamics and functioning: a review

Cited by 39 publications

References 31 publications

Caregiver burden at 6 months following severe traumatic brain injury

Caregiver burden at 6 months following severe traumatic brain injury

Partner relationships, functioning, mood and global quality of life in persons with spinal cord injury and traumatic brain injury

Severe Traumatic Brain Injury: Some Effects on Family Caregivers

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