Impact of using patient-reported outcome measures in routine clinical care of paediatric patients with chronic conditions: a systematic review protocol

Bele, Sumedh; Mohamed, Bijan; Chugh, Ashton; Haverman, Lotte; Santana, Maria-Jose

doi:10.1136/bmjopen-2018-027354

Cited by 10 publications

(6 citation statements)

References 39 publications

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“…The protocol of this systematic review has been registered with PROSPERO (Registration number: CRD42018109035) and has been published in a peer-reviewed journal ( 28 ). The preferred reporting items for systematic review and meta-analysis (PRISMA) guidelines ( 29 ) led the administration and reporting of this review.…”

Section: Methods and Analysismentioning

confidence: 99%

Patient-Reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review

et al. 2020

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Introduction: Integration of patient-reported outcome measures (PROMs) in routine clinical care is growing but lacks consolidated evidence around its impact on pediatric care. This systematic review aims to evaluate the impact of integrating PROMs in routine pediatric clinical care on various outcomes in pediatric clinical care. Data Sources: MEDLINE, Embase, CINAHL, PsycINFO, and Cochrane Library. Web of Science database was searched selectively to ensure extended coverage. Study Selection: We included longitudinal studies reporting on the integration of PROMs in routine pediatric clinical care of chronic diseases. Studies in languages other than English, published prior to the year 2000, and reporting on secondary data were excluded. Data Extraction: Two reviewers independently extracted data from included studies. Extracted data included citation of each study, type of healthcare setting, location of the study, characteristics of patient population, type of chronic disease, name and type of PROM, mode of administration, and reported outcomes. Results: Out of 6,869 articles, titles and abstracts of 5,416 articles and full text of 23 articles were screened in duplicate. Seven articles reporting results from six studies met eligibility criteria. Integration of PROMs increased the identification and discussion around health-related quality of life (HRQOL), especially in psychosocial and emotional domains, but showed mixed results with the impact on quality of care. No studies assessed the impact of integrating PROMs on healthcare utilization. Limitations: Due to significant heterogeneity in the studies, a meta-analysis was not conducted. Conclusions: Integrating PROMs could have a positive impact on HRQOL; however, further studies are required to determine the impact of PROMs in routine pediatric clinical care.

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Section: Methods and Analysismentioning

confidence: 99%

Patient-Reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review

et al. 2020

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“…When integrated into clinical practice, PROMs have been shown to optimize provision of patient-centered healthcare, reduce healthcare services utilization, and enhance patient-clinician communication. PROMs have also been shown to increase patient satisfaction and improve HRQoL outcomes [73,74]. In the clinical care of patients with chronic conditions, PROMs have been shown to both improve disease activity and increase survival [73].…”

Section: Discussionmentioning

confidence: 99%

Patient-Reported Outcome Measures in Patients with Thrombotic Thrombocytopenic Purpura: A Systematic Review of the Literature

Soares Ferreira Junior,

Pinheiro Maux Lessa,

Kaplan

et al. 2023

JCM

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Health-related quality of life (HRQoL) impacts of thrombotic thrombocytopenic purpura (TTP) have been captured in clinical studies using patient-reported outcome (PRO) measures (PROMs) that are validated for other diseases. However, the validity evidence to support the use of existing PROMs in patients with TTP is unknown. In a systematic review of the literature, including studies of adults and children with TTP, we assessed the validity evidence for use of PROMs in clinical research and clinical practice, characterized HRQoL, described the integration of PROMs in clinical practice and evaluated PRO scores for patients with TTP compared with reference populations. From an initial 4518 studies, we identified 14 studies using 16 PROMs to assess general HRQoL domains in patients in remission. No identified studies assessed the validity of PROMs for the context of use of TTP and no studies described PROM integration into TTP clinical practice or evaluated PROMs that were specific for patients with TTP. Moreover, PRO scores were worse in patients with TTP compared with reference populations and other chronic conditions. We conclude that, in patients with TTP, PROMs pick up on important patient experiences not captured by clinical outcomes at present. There is, therefore, a need for studies that assess the validity of existing PROMs in patients with TTP to determine if TTP-specific PROMs specific to patients with TTP should be developed.

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“…Thematic analysis combined with narrative synthesis was performed. 36 Informed by concepts, constructs and frameworks used in previous research 8 , 11 , 12 , 16 , 17 , 18 , 31 , 37 , 38 , 39 , 40 , 41 , 42 , 43 , 44 for assessing the impact of using PRMs in clinical practice and based on discussions and workshops within the research team, we developed a multi‐level (patient, clinical, organizational, national and level) analytic framework for analyzing and synthesizing the “PRMs impact”‐related emperical evidence presented in included studies. Under each level, there were different domains of impact.…”

Section: Methodsmentioning

confidence: 99%

The impact of implementing patient‐reported measures in routine maternity care: a systematic review

Chen

Väyrynen

Schmidt

et al. 2022

Acta Obstet Gynecol Scand

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Introduction:While there is growing interest in applying patient-reported measures (PRMs) in clinical routine, limited collective evidence of the impact of PRMs hinder their widespread use in specific contexts, such as maternity care. Our objective was to synthesize existing emperical evidence on the impact of implementing PRMs in routine maternity care.Material and methods: We followed the Preferred Reporting Items for Systematic Reviews and Meta-analyses guidelines (version 2020). We electronically searched six databases for the literature on the implementation of PRMs in maternity care. A multi-level (woman, clinical, organizational, national and societal) analytic framework for analyzing and synthesizing emperically proven impacts of PRMs was developed.Quality was assessed using the Mixed Method Appraisal Tool. The GRADE-CERQual approach was used to assess the confidence in the review findings and arguments.The protocol was registered in PROSPERO (CRD42021234501).Results: Overall, 4971 articles were screened. The emperical evidence, collected from 11 relevant studies, showed that the use of PRMs in routine maternity care could produce positive effects on clinical process (assessment and detection of health problems, clinical visit preparation, resource use, woman-professional communication, decision-making, woman-professional relationship, and care quality), and health behavior and outcomes (women's health and wellbeing, quality of life, health behavior, experiences and satisfaction with healthcare services), awareness, engagement and self-management of own health, and disclosure of health issues. The confidence in the review findings was low to moderate due to a limited number of studies, inadequate data and methodological limitations of included studies. Conclusions:The limited emperical evidence available suggested that the use of PRMs may have positive effects at the individual health level and clinical process level. However, the evidence was not strong enough to provide policy recommendations | 1185 CHEN et al.

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Impact of using patient-reported outcome measures in routine clinical care of paediatric patients with chronic conditions: a systematic review protocol

Cited by 10 publications

References 39 publications

Patient-Reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review

Patient-Reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review

Patient-Reported Outcome Measures in Patients with Thrombotic Thrombocytopenic Purpura: A Systematic Review of the Literature

The impact of implementing patient‐reported measures in routine maternity care: a systematic review

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