Impairment, disability, handicap and participation in post-poliomyelitis subjects

McNaughton, Harry; McPherson, Kerstin; Falkner, E.; Taylor, William J.

doi:10.1097/00004356-200106000-00006

Cited by 9 publications

(4 citation statements)

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“…Furthermore, our results revealed that patients with PPS reported comparable average HRQOL scores of physical and psychological health compared to healthy adults. Regarding the psychological health, Jacob and Shapira reported in their study normal emotional functioning in patients with PPS which is in line with our finding [ 12 ] .Previous reports on patients with PPS suggest that physical limitations are the major contributing factor to the impaired HRQOL [ 4 , 12 , 20 , 21 , 37 ], therefore our result is inconsistent with previous literature which may be due to our small sample size. The most common measures used in the literature to assess HRQOL were the Nottingham Health Profile [ 38 ] and the Short Form Health Survey [ 39 ].…”

Section: Discussioncontrasting

confidence: 58%

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Health-related quality of life, self-reported impairments and activities of daily living in relation to muscle function in post-polio syndrome

Gocheva

Hafner

Orsini

et al. 2020

J Patient Rep Outcomes

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Background The symptoms of post-polio syndrome (PPS) and its resulting disabilities can affect quality of life and the ability to perform daily activities. No study has comprehensively analysed how various patient-reported outcome measures (PROMs) are associated with objectively assessed physical function in patients with PPS. Aim To investigate health-related quality of life (HRQOL), self-reported impairments and activities of daily living during 6 months and evaluate their association with clinical muscle function outcomes in individuals with PPS. Methods Twenty-seven patients with PPS were included in the study. At baseline and 6 months, patients were administered PROMs measuring HRQOL (WHOQOL-BREF), self-reported impairments related to PPS (SIPP-RS) and activities of daily living (IBM-FRS). Clinical muscle function outcomes included 6 min walking distance (6MWD) and motor function measure (MFM). Results There were no changes in self-reported impairments (25.52 to 24.93, p = 0.40), activities of daily living (33.89 to 33.30, p = 0.20), 6MWD (391.52 to 401.85, p = 0.30) and MFM (83.87 to 85.46, p = 0.14) during 6 months, while the HRQOL psychological health decreased during this period (76.85 to 72.38, p = 0.05). A strong association was found between activities of daily living and clinical muscle function outcomes (6MWD: ß = 0.02, 95% CI: 0.02;0.03, t = 6.88, p < 0.01; MFM: ß = 0.25, 95% CI: 0.17;0.33, t = 6.69, p < 0.01). Self-reported impairments and HRQOL domains were not associated with the clinical muscle outcomes. Conclusions Study findings indicate that objectively measured walking and motor abilities do not reflect patient’s perspectives of their HRQOL and impairment due to PPS. More research is needed to assess changes over time and capture clinically meaningful changes in individuals with PPS and to increase the understanding of how the patient’s perspective of disability measured by PROMs is related to objectively measured walking and motor abilities. Trial registration ClinicalTrials.gov Identifier ( NCT02801071 ) registered June 15, 2016.

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Section: Discussioncontrasting

confidence: 58%

“…Limited PROMs and physical function data are available on disease progression of PPS. The majority of studies so far used cross-sectional research designs measuring HRQOL at a single time point [ 4 , 12 , 20 , 37 ]. In our study a decrease after the 6 months observation was only found for the HRQOL psychological health scores.…”

Section: Discussionmentioning

confidence: 99%

Health-related quality of life, self-reported impairments and activities of daily living in relation to muscle function in post-polio syndrome

Gocheva

Hafner

Orsini

et al. 2020

J Patient Rep Outcomes

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“…Escores mais baixos foram relatados no funcionamento físico em 38 pacientes pós-pólio no estudo de McNaughton et al, no qual a QV foi medida pelo uso do SF-36 (Short Form-36). 12 Da mesma maneira, Jacob investigou a QV em 101 sobreviventes da pólio em dois ambulatórios de pós-pólio em Israel e relatou baixos escores físicos e escores mentais normais, incluindo funcionamento emocional e social. 13 Tate et al confirmaram que os sobreviventes da pólio não diferiram da população em geral nos níveis de depressão.…”

Section: Análise Estatísticaunclassified

Qualidade de vida relacionada com a saúde em sobreviventes turcos da pólio: impacto pós‐pólio na saúde relacionada com a qualidade de vida em termos de estado funcional, gravidade da dor, fadiga e funcionamento social e emocional

Garip

Eser

Bodur

et al. 2017

Revista Brasileira de Reumatologia

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“…Rehabilitation counselors (RCs) that support the independence and well-being of people with disabilities are crucial to the conversation of reproductive access and autonomy. Rehabilitation counselors value an intersectional and holistic approach to working with people with disabilities, a perspective reflected in the World Health Organization's (WHO) International Classification of Functioning, Disability, and Health (ICF) model (Chan et al, 2009;McNaughton et al, 2001). This model provides an integrative approach to conceptualizing disability in terms of key areas including activities and participation, personal and environmental factors, and general functioning.…”

mentioning

confidence: 99%

Reproductive Autonomy for Individuals With Disabilities: Necessary Knowledge for Rehabilitation Counselors

Matkin,

Smedema

2024

Rehabilitation Counselors and Educators Journal

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Reproductive autonomy, or the ability to make decisions about one’s reproductive health, has been historically limited for individuals with disabilities. Within the last century alone, they have experienced forced sterilization, asexualization, negative stereotyping, and poor birth outcomes. Rehabilitation counselors can play a unique role in changing this harmful narrative and supporting the decision-making of their clients. As a field, rehabilitation counseling has often acknowledged considerations related to disability and sexuality, but gaps exist in the discussion of reproduction-related topics such as abortion care, fertility support, and the experience of pregnancy remain. The literature reviewed in this paper highlights the significance of these issues, particularly the historical and current disparities in access and need. Greater recognition, education, and advocacy regarding reproductive autonomy in rehabilitation counseling is necessary to ensure that practitioners are supporting clients in a supportive and appropriate way.

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Impairment, disability, handicap and participation in post-poliomyelitis subjects

Cited by 9 publications

References 0 publications

Health-related quality of life, self-reported impairments and activities of daily living in relation to muscle function in post-polio syndrome

Health-related quality of life, self-reported impairments and activities of daily living in relation to muscle function in post-polio syndrome

Qualidade de vida relacionada com a saúde em sobreviventes turcos da pólio: impacto pós‐pólio na saúde relacionada com a qualidade de vida em termos de estado funcional, gravidade da dor, fadiga e funcionamento social e emocional

Reproductive Autonomy for Individuals With Disabilities: Necessary Knowledge for Rehabilitation Counselors

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