Implementation of EPR-Youth, a Client-Accessible and Multidisciplinary Health Record; A Mixed-Methods Process Evaluation

Benjamins, Janine; Duinkerken, Jan-Gerrit; Den Hamer-Jordaan, Gerlinde; Canfijn, Romay; Koster, Rianne; De Vet, Emely; Haveman-Nies, Annemien

doi:10.5334/ijic.6905

Cited by 4 publications

(1 citation statement)

References 40 publications

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“…Recruiting a well-balanced group of participants in this qualitative study was a strength of this study, compared to our previous studies on Iuvenelis, where adolescents were represented in small numbers and participants with migratory backgrounds could not be included [ 75 , 76 ]. The inclusion of the most important characteristics in this study enabled us to explore different client perspectives.…”

Section: Discussionmentioning

confidence: 99%

The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents

Benjamins,

de Vet,

de Mortier

et al. 2024

J Particip Med

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Background Patient-accessible electronic health records (PAEHRs) are assumed to enhance the quality of care, expressed in terms of safety, effectiveness, timeliness, person centeredness, efficiency, and equity. However, research on the impact of PAEHRs on the perceived quality of care among parents, children, and adolescents is largely lacking. In the Netherlands, a PAEHR (Iuvenelis) was developed for preventive child health care and youth care. Parents and adolescents had access to its full content, could manage appointments, ask questions, and comment on written reports. Objective This study aims to assess whether and how using this PAEHR contributes to perceived quality of care from a client’s perspective. Methods We chose a qualitative design with a phenomenological approach to explore how parents and adolescents perceived the impact of using a PAEHR on quality of care. In-depth interviews that simultaneously included 1 to 3 people were conducted in 2021. In total, 20 participants were included in the study, representing parents and adolescents, both sexes, different educational levels, different native countries, and all participating municipalities. Within this group, 7 of 13 (54%) parents had not previously been informed about the existence of a client portal. Their expectations of using the client portal, in relation to quality of care, were discussed after a demonstration of the portal. Results Parents and adolescents perceived that using Iuvenelis contributed to the quality of care because they felt better informed and more involved in the care process than before the introduction of Iuvenelis. Moreover, they experienced more control over their health data, faster and simpler access to their health information, and found it easier to manage appointments or ask questions at their convenience. Parents from a migratory background, among whom 6 of 7 (86%) had not previously been informed about the portal, expected that portal access would enhance their understanding of and control over their care processes. The parents expressed concerns about equity because parents from a migratory background might have less access to the service. Nevertheless, portal usability was regarded as high. Furthermore, both parents and adolescents saw room for improvement in the broader interdisciplinary use of Iuvenelis and the quality of reporting. Conclusions Using Iuvenelis can contribute to the client-experienced quality of care, more specifically to perceived person centeredness, timeliness, safety, efficiency, and integration of care. However, some quality aspects, such as equity, still need addressing. In general, client information about the portal needs to be improved, specifically focusing on people in vulnerable circumstances, such as those from migratory backgrounds. In addition, to maximize the potential benefit of using Iuvenelis, stimulating a person-centered attitude among professionals is important. Considering the small number of adolescent participants (n=7), adding quantitative data from a structured survey could strengthen the available evidence.

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Section: Discussionmentioning

confidence: 99%

The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents

Benjamins,

de Vet,

de Mortier

et al. 2024

J Particip Med

Self Cite

View full text Add to dashboard Cite

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Minors’ and guardian access to and use of a national patient portal: A retrospective comparative case study of Sweden and Finland

Hagström,

Hägglund,

Holmroos

et al. 2024

International Journal of Medical Informatics

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Artificial intelligence in healthcare: A focus on the best practices

Haddiya,

Ramdani

2024

ITM Web Conf.

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The healthcare sector is undergoing a significant transformation driven by Artificial Intelligence (AI). AI applications in clinical practice offer a multitude of benefits for patient care, including earlier and more accurate diagnoses, personalized treatment planning, and improved access to information through virtual assistants. However, alongside this potential, challenges and ethical considerations remain. Data privacy, algorithmic bias, transparency of AI decision-making, and responsible use are crucial areas that require careful attention. Our presentation emphasizes the importance of establishing robust best practices within healthcare institutions and fostering collaboration among clinicians, data scientists, patients, and policymakers. Through careful consideration and ongoing refinement of AI technologies, we can leverage its potential to improve patient outcomes while upholding ethical standards and public health priorities.

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Implementation of EPR-Youth, a Client-Accessible and Multidisciplinary Health Record; A Mixed-Methods Process Evaluation

Cited by 4 publications

References 40 publications

The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents

The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents

Minors’ and guardian access to and use of a national patient portal: A retrospective comparative case study of Sweden and Finland

Artificial intelligence in healthcare: A focus on the best practices

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