Implementing a Web-Based Case Reporting and Communication System Among Hospitals Reporting to the Birth Defects Registry in New York State

Steen, Patricia M.; Wang, Ying; Zhang, Tao; Cross, Philip K.; Druschel, Charlotte M.

doi:10.1097/01.phh.0000338378.91360.83

Cited by 4 publications

(3 citation statements)

References 12 publications

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“…Additional case finding is done to assure accuracy and completeness of case reporting using hospital discharge data, review of hospital discharge summaries and on‐site audits. Since January 2006, all reporting hospitals in New York State have been submitting cases electronically using the web‐based reporting system developed by CMR staff (Wang et al,2007; Steen et al,2008). CMR staff code the reported diagnosis information using the International Classification of Diseases (9th Revision, Clinical Modification) (ICD‐9) codes for the years 1983–1991 and the British Pediatric Association Classification of Diseases (BPA) codes since 1992.…”

Section: Methodsmentioning

confidence: 99%

A retrospective cohort study of mortality among children with birth defects in New York State, 1983–2006

Ying

Druschel

2010

Birth Defects Research

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Using the state-wide, population-based birth defects surveillance data to conduct a long-term follow-up of a large cohort of New York children, we were able to examine mortality and survival experience of the affected children during infancy and childhood period by individual birth defects of interest. As expected, children born with birth defects had a higher risk of mortality compared to children without birth defects. The magnitude of the risk varied by children's age, birth and maternal characteristics and the lethality of the specific birth defects involved.

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Section: Methodsmentioning

confidence: 99%

A retrospective cohort study of mortality among children with birth defects in New York State, 1983–2006

Ying

Druschel

2010

Birth Defects Research

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“…For example, a Web-based birth defects registry in New York State demonstrated the completeness, timeliness, and quality of birth defects registry data. 32,51 In a separate article, the Wisconsin Department of Health developed a childhood cancer surveillance system that automated data exchange between hospital and public health–based cancer registries. 7 This approach appeared well developed.…”

Section: Discussionmentioning

confidence: 99%

“…For example International Classification of Diseases, Ninth Revision , codes did not provide unique information for reportable birth malformations. 51 …”

Section: Discussionmentioning

confidence: 99%

A Decade of Environmental Public Health Tracking (2002-2012)

Kearney

Namulanda

Qualters

et al. 2015

Journal of Public Health Management and Practice

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Background The creation of the Centers for Disease Control and Prevention Environmental Public Health Tracking Program spawned an invigorating and challenging approach toward implementing the nation’s first population-based, environmental disease tracking surveillance system. More than 10 years have passed since its creation and an abundance of peer-reviewed articles have been published spanning a broad variety of public health topics related primarily to the goal of reducing diseases of environmental origin. Objective To evaluate peer-reviewed literature related to Environmental Public Health Tracking during 2002-2012, recognize major milestones and challenges, and offer recommendations. Design A narrative overview was conducted using titles and abstracts of peer-reviewed articles, key word searches, and science-based search engine databases. Main Outcomes Eighty published articles related to “health tracking” were identified and categorized according to 4 crossed-central themes. The Science and Research theme accounted for the majority of published articles, followed by Policy and Practice, Collaborations Among Health and Environmental Programs, and Network Development. Conclusions Overall, progress was reported in the areas of data linkage, data sharing, surveillance methods, and network development. Ongoing challenges included formulating better ways to establish the connections between health and the environment, such as using biomonitoring, public water systems, and private well water data. Recommendations for future efforts include use of data to inform policy and practice and use of electronic health records data for environmental health surveillance.

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Hospital Discharge Data

Wang

Cross

Druschel

2010

Journal of Public Health Management and Practice

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The study found that 93% of CMR infants selected for the study were matched to hospital discharge records with at least one ICD-9 code that was reportable to the CMR; 87 percent had reportable ICD codes in SPARCS that were exactly matched to those in the CMR, that is, all the birth defect codes in SPARCS were matched to those in the CMR. Thus, about 7 percent of CMR children with birth defects would have been missed if only hospital discharge files were used to ascertain the birth defect cases, indicating that there are limitations to using hospital discharge files as the sole source of case ascertainment for population-based birth defects surveillance programs.

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Implementing a Web-Based Case Reporting and Communication System Among Hospitals Reporting to the Birth Defects Registry in New York State

Cited by 4 publications

References 12 publications

A retrospective cohort study of mortality among children with birth defects in New York State, 1983–2006

A retrospective cohort study of mortality among children with birth defects in New York State, 1983–2006

A Decade of Environmental Public Health Tracking (2002-2012)

Hospital Discharge Data

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