Implementing Patient and Carer Participation in Self-Care and Co-Care in Sweden: Policy, Practice and the Future of Person-Centred Care

Øvretveit, John; Degsell, Eskil

doi:10.1007/978-3-030-14101-1_4

Cited by 4 publications

(2 citation statements)

References 20 publications

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“…The method used to find less well known but significant digital innovations developed in response to COVID-2019 for self-care and close-care was to search and select information using different methods. A digital search was undertaken using different search term combinations, following the five-step guidance for searching the grey literature (Gregory and Denniss, 2018), and by consulting contacts in the self-care, carers support and patient innovation movement known through research projects into digital health in the Nordic countries, co-care and current projects (Øvretveit et al , 2008; Øvretveit and Degsell, 2019).…”

Section: Methodsmentioning

confidence: 99%

Innovations in self care and close care made during COVID 19 pandemic: a narrative review

Øvretveit

2021

IJHG

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PurposePreviously, health self-care and informal or “close-care” for family and friends were receiving increasing attention, but became more important during the COVID-2019 pandemic. Sometimes, this was because formal services became less physically accessible to patients and were overburdened by patients ill with COVID-2019. The purpose of this paper is to give an overview of this phenomenon and consider the implications for clinical governance.Design/methodology/approachA five-step search and narrative review method were used, and case examples were selected to illustrate some of these developments.FindingsExamples discovered and described include innovations in websites, social media support groups, systems for matching volunteers to people needing of help, computer and mobile phone applications, digital devices and virtual health rooms run by peer volunteers to help others to learn and use digital technologies.Originality/valueIn response to their health self-care needs not being met, some patients and carers and their associations developed new digital technologies or adapted existing ones. This use and their innovation separate from health care have been largely unreported in the scientific and professional literature. This is the first review of grey literature and other reports of this growing phenomena.

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Section: Methodsmentioning

confidence: 99%

Innovations in self care and close care made during COVID 19 pandemic: a narrative review

Øvretveit

2021

IJHG

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“…At the same time, there is a growing shortage of doctors and registered nurses [4,5]. Primary healthcare organisations have responded to these challenges by increasing their use of digital technologies, such as websites to provide information for patients, applications for self-care and self-management, digital personal health records, around-the-clock online contact with physicians, digital platforms for patient management and so forth [6,7]. As a result, primary healthcare has become digitally mediated.…”

Section: Introductionmentioning

confidence: 99%

‘It increases my ability to influence my ways of working’: A qualitative study on digitally mediated patient management in primary healthcare

Frennert

Erlingsdóttir

Muhic

et al. 2022

Scandinavian Caring Sciences

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Background: Digitally mediated primary healthcare is increasingly influencing working conditions, raising questions about how digitally mediated patient management is experienced. Aim:The aim of this study was to generate insights, through the lens of postphenomenology, into how digitally mediated primary healthcare affects the work and working environment, by gathering perspectives from primary healthcare professionals who regularly manage patient errands through a digital platform.Methods: Two rounds of interviews were conducted with a diversified sample of primary healthcare professionals at a primary healthcare centre. The first round of interviews was conducted during the initial phase of the deployment of a digital platform for patient management, with the second round conducted a year later (n = 24). The interview transcripts were analysed using reflexive thematic analysis.Results: Four themes relating to digitally mediated care work were identified: 'positive feelings towards digitally mediated primary healthcare', 'seeing a positive work atmosphere as a prerequisite for change', 'experiencing increased control over the pace of workflow' and 'reconfiguration of previous problems'. Conclusion and relevance to clinical practice:Building on postphenomenology, our study adds to the understanding of how material and symbolic aspects mutually affect the mediating role of a digital platform for patient management. Thus, the results indicate that the experience of using digitally mediated care processes is conditioned by the discourse towards digitalisation at the workplace and the management's approach to and inclusion of employees in the digital transition of primary healthcare, as well as the usefulness and usability of the digital platform. The findings can inform both practice and policy. Not applicable. According to the Swedish Ethical Review Act ([60]:460), research that involves the retrieval and handling of sensitive personal data or is likely to cause physical and psychological impact or in other ways harm the subjects is required to undergo ethical review. Data regarding participants' race, ethnic origin, political opinion, religious conviction and the like, is considered as having a sensitive character. For the study presented in this article no ethical approval is required according to the Swedish Ethical Review Act ([60]:460), as we do not ask interviewees about their own health or other sensitive topics (see above what is considered sensitive data).

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Digital Health Technologies Enabling Partnerships in Chronic Care Management: Scoping Review

Wannheden¹,

Åberg-Wennerholm²,

Dahlberg³

et al. 2022

J Med Internet Res

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Background An increasing number of patients expect and want to play a greater role in their treatment and care decisions. This emphasizes the need to adopt collaborative health care practices, which implies collaboration among interprofessional health care teams and patients, their families, caregivers, and communities. In recent years, digital health technologies that support self-care and collaboration between the community and health care providers (ie, participatory health technologies) have received increasing attention. However, knowledge regarding the features of such technologies that support effective patient-professional partnerships is still limited. Objective This study aimed to map and assess published studies on participatory health technologies intended to support partnerships among patients, caregivers, and health care professionals in chronic care, focusing specifically on identifying the main features of these technologies. Methods A scoping review covering scientific publications in English between January 2008 and December 2020 was performed. We searched PubMed and Web of Science databases. Peer-reviewed qualitative, quantitative, and mixed methods studies that evaluated digital health technologies for patient-professional partnerships in chronic care settings were included. The data were charted and analyzed thematically. The PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) checklist was used. Results This review included 32 studies, reported in 34 papers. The topic of participatory health technologies experienced a slightly increasing trend across publication years, with most papers originating from the United States and Norway. Diabetes and cardiovascular diseases were the most common conditions addressed. Of the 32 studies, 12 (38%) evaluated the influence of participatory health technologies on partnerships, mostly with positive outcomes, although we also identified how partnership relationships and the nature of collaborative work could be challenged when the roles and expectations between users were unclear. Six common features of participatory health technologies were identified: patient-professional communication, self-monitoring, tailored self-care support, self-care education, care planning, and community forums for peer-to-peer interactions. Conclusions Our findings emphasize the importance of clarifying mutual expectations and carefully considering the implications that the introduction of participatory health technologies may have on the work of patients and health care professionals, both individually and in collaboration. A knowledge gap remains regarding the use of participatory health technologies to effectively support patient-professional partnerships in chronic care management.

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Implementing Patient and Carer Participation in Self-Care and Co-Care in Sweden: Policy, Practice and the Future of Person-Centred Care

Cited by 4 publications

References 20 publications

Innovations in self care and close care made during COVID 19 pandemic: a narrative review

Innovations in self care and close care made during COVID 19 pandemic: a narrative review

‘It increases my ability to influence my ways of working’: A qualitative study on digitally mediated patient management in primary healthcare

Digital Health Technologies Enabling Partnerships in Chronic Care Management: Scoping Review

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