Implementing specialist psychological support for caregivers in psychosis services: a preliminary report

Smallwood, Jane; Jolley, Suzanne; Makhijani, Jyotsna; Grice, Sarah; O’Donoghue, Emma; Bendon, Paula; Greenaway, Liz P.; Onwumere, Juliana

doi:10.1080/17522439.2016.1259647

Cited by 6 publications

(8 citation statements)

References 27 publications

(29 reference statements)

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“…The current findings, which are based on a heterogenous group of studies, provide a useful template from which to explore, in greater detail, the carer experience of patient violence in psychosis. Though most carer participants surveyed were female, this picture is consistent with the profile of carers typically reported in psychosis research (e.g., Smallwood et al, 2017 ; Smith et al, 2018 ). In addition, the studies were diverse in country of origin and continent sampled, and their respective systems of health care provision (e.g., National Health Service; Health insurance).…”

Section: Discussionsupporting

confidence: 79%

Informal Caregiving Relationships in Psychosis: Reviewing the Impact of Patient Violence on Caregivers

2018

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A modest association can be found between people with a schizophrenia spectrum diagnosis (psychosis) and perpetrating acts of violence. When a person with psychosis does engage in violence, it is their informal carers, when compared to those from the general population, who are more likely to be the targets, and violence will often occur within the family home. Despite the importance of carer support for improving patient outcomes, our understanding of how carers are impacted by patient initiated violence in psychosis remains limited. This paper reviews literature documenting the effects of patient-initiated violence in psychosis on carer functioning. The review comprised searches of Medline, PsychInfo, Embase, and Web of Science databases and the hand searches of reference lists from relevant published papers. The review was limited to English language publications from inception to 11th September 2017, and where carer experiences following reports of violence from patients with psychosis were specifically recorded. Data from 20 papers using mixed methodologies were reviewed. Patient violence in psychosis was linked to poorer carer outcomes, including carer reports of burden, trauma, fear, and helplessness. There is, however, a significant need for further studies to systematically quantify the impact and correlates of patient initiated violence on psychosis caregivers, and improve prevention.

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Section: Discussionsupporting

confidence: 79%

Informal Caregiving Relationships in Psychosis: Reviewing the Impact of Patient Violence on Caregivers

2018

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“…These narratives can also speak to the uplifting and positive aspects of the caregiving role (Bauer et al, 2013;Onwumere et al, 2008); represent accounts of caring from across the globe, including non-western and non-English speaking communities (Sibeko et al, 2016); adopt longitudinal approaches to exploring caregiving and the experience of caregiving at different stages (Lavis et al, 2015;Poon et al, 2016), evaluate the use of new technologies and digital approaches in supporting family carers (Rotondi et al, 2010; www.futurelearn.com/courses/ caring-psychosis-schizophrenia); consider the benefits of working directly with carers to address their own needs (Roddy et al, 2015;Smallwood et al, 2016) and contributions from peers (Duckworth & Halpern, 2014).…”

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confidence: 99%

Caregiving roles: when will they be routinely recognized and supported?

Onwumere

Kuipers

2017

Journal of Mental Health

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“…After initial title-abstract screening, 473 records underwent full-text review. Although 228 records met criteria, some reported duplicate data for the same sample and intervention, further reducing to 209 studies included in the review [ 21 , 22 , 23 , 24 , 25 , 26 , 27 , 28 , 29 , 30 , 31 , 32 , 33 , 34 , 35 , 36 , 37 , 38 , 39 , 40 , 41 , 42 , 43 , 44 , 45 , 46 , 47 , 48 , 49 , 50 , 51 , 52 , 53 , 54 , 55 , 56 , 57 , 58 , 59 , 60 , 61 , 62 , 63 , 64 , 65 , 66 , 67 , 68 , 69 , 70 , 71 , 72 , 73 , …”

Section: Resultsmentioning

confidence: 99%

“…Mapping of the interventions revealed four main intervention themes: (1) psychological (n = 80) [ 21 , 22 , 23 , 24 , 25 , 26 , 27 , 28 , 29 , 30 , 31 , 32 , 33 , 34 , 35 , 36 , 37 , 38 , 39 , 40 , 41 , 42 , 43 , 44 , 45 , 46 , 47 , 48 , 49 , 50 , 51 , 52 , 53 , 54 , 55 , 56 , 57 , 58 , 59 , 60 , 61 , 62 , 63 , 64 , 65 , 66 , 67 , 68 , 69 , 70 , 71 , 72 , 73 , 74 , 75 ,…”

Section: Resultsunclassified

What Works to Improve Wellbeing? A Rapid Systematic Review of 223 Interventions Evaluated with the Warwick-Edinburgh Mental Well-Being Scales

Blodgett

Birch

Musella³

et al. 2022

IJERPH

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Introduction: The Warwick-Edinburgh Mental Wellbeing Scale (WEMWBS) is a commonly used scale of mental wellbeing focusing entirely on the positive aspect of mental health. It has been widely used in a broad range of clinical and research settings, including to evaluate if interventions, programmes or pilots improve wellbeing. We aimed to systematically review all interventions that used WEMWBS and evaluate which interventions are the most effective at improving wellbeing. Methods: Eligible populations included children and adults, with no health or age restrictions. Any intervention study was eligible if the wellbeing outcome was measured using the 7 or 14-item WEMWBS scale assessed both pre- and post-intervention. We identified eligible intervention studies using three approaches: a database search (Medline, EMBASE, CINAHL, PyschInfo and Web of Science from January 2007 to present), grey literature search, and by issuing a call for evidence. Narrative synthesis and random-effects meta-analysis of standardised mean differences in the intervention group were used to summarise intervention effects on WEMWBS score. Results: We identified 223 interventions across 209 studies, with a total of 53,834 participants across all studies. Five main themes of interventions were synthesised: psychological (n = 80); social (n = 54); arts, culture and environment (n = 29); physical health promotion (n = 18); and other (n = 28). Psychological interventions based on resilience, wellbeing or self-management techniques had the strongest effect on wellbeing. A broad range of other interventions were effective at improving mental wellbeing, including other psychological interventions such as cognitive behavioural therapy, psychoeducation and mindfulness. Medium to strong effects were also seen for person-centred support/advice (social), arts-based, parenting (social) and social prescribing interventions. However, a major limitation of the evidence was that only 75 (36%) of studies included a control group. Conclusions: WEMWBS has been widely used to assess wellbeing across a diverse range of interventions, settings and samples. Despite substantial heterogeneity in individual intervention design, delivery and groups targeted, results indicate that a broad range of intervention types can successfully improve wellbeing. Methodological changes, such as greater use of control groups in intervention evaluation, can help future researchers and policy makers further understand what works for mental wellbeing.

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Implementing specialist psychological support for caregivers in psychosis services: a preliminary report

Abstract: Implementing specialist psychological support for caregivers in psychosis services: A preliminary report.

Cited by 6 publications

References 27 publications

Informal Caregiving Relationships in Psychosis: Reviewing the Impact of Patient Violence on Caregivers

Informal Caregiving Relationships in Psychosis: Reviewing the Impact of Patient Violence on Caregivers

Caregiving roles: when will they be routinely recognized and supported?

What Works to Improve Wellbeing? A Rapid Systematic Review of 223 Interventions Evaluated with the Warwick-Edinburgh Mental Well-Being Scales

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