Implementing Sustainable Data Collection for a Cardiac Outcomes Registry in an Australian Public Hospital

Cox, Nicholas; Brennan, A.; Dinh, D.; Brien, R.; Cowie, Kath; Reid, Christopher M.; Lefkovits, Jeffrey

doi:10.1016/j.hlc.2017.01.023

Cited by 13 publications

(10 citation statements)

References 4 publications

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“…It was established in 2012 and is engaged at all Victorian hospitals (13 public (ie, government funded) and 17 private) with all patients undergoing PCI or attempted PCI entered into the registry 13. It collects baseline demographic, procedural characteristics, in-hospital and 30-day outcomes through a secure web-based data collection system 14. Data integrity is ensured with regular audit activities conducted by the central registry.…”

Section: Methodsmentioning

confidence: 99%

Differences in outcomes of patients with in-hospital versus out-of-hospital ST-elevation myocardial infarction: a registry analysis

et al. 2022

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ObjectivesPatients with ST-elevation myocardial infarction (STEMI) that occur while already in hospital (‘in-hospital STEMI’) face high mortality. However, data about this patient population are scarce. We sought to investigate differences in reperfusion and outcomes of in-hospital versus out-of-hospital STEMI.Design, Setting and ParticipantsConsecutive patients with STEMI all treated with percutaneous coronary intervention (PCI) across 30 centres were prospectively recruited into the Victorian Cardiac Outcomes Registry (2013–2018).Primary and secondary outcomesPatients with in-hospital STEMI were compared with patients with out-of-hospital STEMI with a primary endpoint of 30-day major adverse cardiovascular events (MACE). Secondary endpoints included ischaemic times, all-cause mortality and major bleeding.ResultsOf 7493 patients with PCI-treated STEMI, 494 (6.6%) occurred in-hospital. Patients with in-hospital STEMI were older (67.1 vs 62.4 years, p<0.001), more often women (32% vs 19.9%, p<0.001), with more comorbidities. Patients with in-hospital STEMI had higher 30-day MACE (20.4% vs 9.8%, p<0.001), mortality (12.1% vs 6.9%, p<0.001) and major bleeding (4.9% vs 2.3%, p<0.001), than patients with out-of-hospital STEMI. According to guideline criteria, patients with in-hospital STEMI achieved symptom-to-device times of ≤70 min and ≤90 min in 29% and 47%, respectively. Patients with out-of-hospital STEMI achieved door-to-device times of ≤90 min in 71%. Occurrence of STEMI while in hospital independently predicted higher MACE (adjusted OR 1.77, 95% CI 1.33 to 2.36, p<0.001) and 12-month mortality (adjusted OR 1.49, 95% CI 1.08 to 2.07, p<0.001).ConclusionsPatients with in-hospital STEMI experience delays to reperfusion with significantly higher MACE and mortality, compared with patients with out-of-hospital STEMI, after adjustment for confounders. Focused strategies are needed to improve recognition and outcomes in this high-risk and understudied population.

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Section: Methodsmentioning

confidence: 99%

Differences in outcomes of patients with in-hospital versus out-of-hospital ST-elevation myocardial infarction: a registry analysis

et al. 2022

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“…The required MDS is a coherent set of data elements established for mandatory reporting at the national level, which is very important to be determined in a standard and integrated way from a scientific perspective. [ 24 25 26 ] Integrating data between research and clinical systems are a major challenge. Clinical trials are often not integrated with clinical care.…”

Section: Discussionmentioning

confidence: 99%

Improving hypertension surveillance from a data management prospective: Data requirements for implementation of population-based registry

Shanbehzadeh

Kazemi-Arpanahi²,

Arzani-Birgani³

et al. 2020

J Edu Health Promot

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BACKGROUND: Hypertension (HTN) has become a major public health problem which can cause serious complications when it is not well-controlled. Prevention and effective care of HTN require a population-based registry. Thus, establishing this registry can be used to collect comprehensive, timely, and reliable data on epidemiology cases. The aim is to create a registry for the collection of highly required prospective data that will present an in-depth analysis of the characteristics of all individuals with HTN and track them over a particular chronological interval. MATERIALS AND METHODS: The study was divided into three phases: At first, a comprehensive literature review was conducted to determine the proposed data classes and data fields. Then, the final minimum data set was designed by a two-round Delphi consensus approach of 20 experts of cardiologists, nephrologists, nutritionist, and health information management. Finally, a web-based registry system was developed by a Structured Query Language environment. RESULTS: A total of two clinical and nonclinical data categories with nine data classes and 68 data fields were selected for their inclusion in the registry following the consensus phase. A web-based registry was designed with a modular and layered architecture. CONCLUSIONS: This study provides an appropriate information infrastructure for active tracing and monitoring of individuals with HTN. It has provided a practical information system allowing quality improvement, aggregate reporting for planning, and research purposes.

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“…The health service treats one of the most culturally diverse communities in the state of Victoria, with 38% of the population speaking a language other than English at home . Routinely collected data on all patients undergoing PCI includes baseline demographics, procedural information, in‐hospital complications and 30‐day follow‐up events as part of the Victorian Cardiac Outcomes Registry (VCOR) – a multi‐centre state‐wide PCI registry, including all public and private hospitals in Victoria, Australia which has been described previously . All patients are provided with information on the VCOR data collection process and there is an opt‐out consent process, with no patients at this health service having declined involvement to date.…”

Section: Comparison Of Baseline and Procedural Characteristics And Oumentioning

confidence: 99%

“…1 Routinely collected data on all patients undergoing PCI includes baseline demographics, procedural information, in-hospital complications and 30-day follow-up events as part of the Victorian Cardiac Outcomes Registry (VCOR)a multicentre state-wide PCI registry, including all public and private hospitals in Victoria, Australia which has been described previously. 10,11 All patients are provided with information on the VCOR data collection process and there is an opt-out consent process, with no patients at this health service having declined involvement to date. In this study, all STEMI patients undergoing primary PCI at this health service between 15 July 2013 and 31 December 2016 were included and data collected as part of VCOR were analysed.…”

mentioning

confidence: 99%

Impact of limited English proficiency on presentation and outcomes of patients undergoing primary percutaneous coronary intervention for ST‐elevation myocardial infarction

Biswas

Seman

Cox

et al. 2018

Internal Medicine Journal

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Doctor-patient language discordance has been shown to lead to worse clinical outcomes. In this study of patients undergoing primary percutaneous coronary intervention for ST-elevation myocardial infarction at an Australian health service, we demonstrated that limited English proficiency (LEP) is an independent predictor of prolonged symptom-to-door time, but does not lead to worse 30-day mortality compared with English-proficient patients. More effort needs to be placed in providing public health education in varied languages to encourage early presentation to hospital for patients with LEP.

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Implementing Sustainable Data Collection for a Cardiac Outcomes Registry in an Australian Public Hospital

Cited by 13 publications

References 4 publications

Differences in outcomes of patients with in-hospital versus out-of-hospital ST-elevation myocardial infarction: a registry analysis

Differences in outcomes of patients with in-hospital versus out-of-hospital ST-elevation myocardial infarction: a registry analysis

Improving hypertension surveillance from a data management prospective: Data requirements for implementation of population-based registry

Impact of limited English proficiency on presentation and outcomes of patients undergoing primary percutaneous coronary intervention for ST‐elevation myocardial infarction

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