Importance of and Satisfaction with Information about Their Disease in Cancer Patients

Eisfeld, Hannah; Bauer, Fabienne; Dubois, Clara; Schmidt, Thorsten; Kastrati, Karin; Hochhaus, Andreas; Hübner, Jutta

doi:10.1007/s13187-019-1480-7

Cited by 13 publications

(15 citation statements)

References 40 publications

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“…The results of the SEM analysis demonstrated that satisfaction with the quality of treatment provided (β = 0.538) and satisfaction with leaving the hospital (β = 0.547) were the factors that have a lower direct impact on the patient’s overall satisfaction with the healthcare provided. This is slightly contrary to many studies suggesting that the satisfaction of hospitalised patients is related to the quality of healthcare, diagnosis and treatment processes ([ 21 , 23 , 24 , 30 , 56 ]). This fact can also be explained by the results of the study by Farzianpour et al [ 16 ], who considered patient satisfaction as a cognitive response influenced by various factors.…”

Section: Discussioncontrasting

confidence: 95%

“…In a competitive healthcare environment, patient satisfaction with their quality of life is more and more linked. Patient satisfaction is also affected by the treatment processes, which the patient with different diagnoses and comorbidities may manage differently [ 24 , 25 , 26 , 27 ]. Consistency of the treatment and healthcare processes in relation to patient vulnerabilities and the need for comprehensive support is important.…”

Section: Background Of the Studymentioning

confidence: 99%

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Patient Satisfaction Determinants of Inpatient Healthcare

Gavurová

Dvorský

Popesko

2021

IJERPH

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The aim of the study was to analyse and evaluate the determinants influencing the overall satisfaction of patients with inpatient healthcare in the conditions of the Czech Republic. A total of the 1425 patients, who experienced hospitalisation and agreed to participate, were questioned in the study. A research questionnaire was used to obtain data on satisfaction with hospitalisation. The subject of the research consisted of the indicators related to the following factors: (i) satisfaction with the hospital, clinic, room and meals; (ii) satisfaction with medical staff—nurses, physician expertise and other staff; (iii) the quality of the treatment provided; (iv) satisfaction with leaving the hospital. The formulated statistical hypotheses were evaluated through structural equation modelling. The results of the analyses brought interesting findings. Satisfaction with medical staff is the most significant factor which has a positive effect on satisfaction with hospitalisation. Physician expertise (with trust and good communication skills) is more important for patients than satisfaction with nurses or other staff. The results obtained from the study represent valuable information for policymakers, regional healthcare plans, as well as for managers of hospitals.

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Section: Discussioncontrasting

confidence: 95%

Section: Background Of the Studymentioning

confidence: 99%

Patient Satisfaction Determinants of Inpatient Healthcare

Gavurová

Dvorský

Popesko

2021

IJERPH

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“…The most common sources of information for cancer survivors are healthcare professionals, other cancer survivors and written material 28–30 . This pattern of information preference is to be expected as survivors perceive health professionals to possess the expert knowledge and be most reliable, while peers can give insights into the lived experience of treatment and side effects that cannot be provided by health professionals.…”

Section: Discussionmentioning

confidence: 99%

Information needs and preferences among rural cancer survivors in Queensland, Australia: a qualitative examination

Crawford‐Williams

Goodwin

Chambers

et al. 2022

Australian and New Zealand Journal of Public Health

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Objective: This study aimed to understand how cancer survivors in rural Queensland seek and receive information, as well as their preferences regarding the content and delivery of health‐related information. Methods: This study explored cancer survivors’ experiences in seeking and comprehending health information using a qualitative descriptive approach. Semi‐structured interviews were conducted with 24 participants. Data were analysed using reflexive thematic analysis. Results: Two major themes and six sub‐themes were identified including 1) information content and gaps – a) information about diagnosis and treatment, b) survivorship information gaps and c) practical support needs and 2) delivery and acceptance of information – a) sources of information, b) personalised information needs and c) information seeking or avoidance. Findings suggested that health information provision was inconsistent; survivors’ attitudes towards seeking information varied greatly; and survivors’ had difficulty processing information due to emotional distress. Conclusion: The role of the health professional is critical in providing information and support to rural cancer survivors. Information provided should be tailored to meet the needs and preferences of individuals taking into consideration demographic factors and attitudes. Implications for public health: The current findings imply that quality information provision after cancer treatment would facilitate improvements in satisfaction among rural cancer survivors.

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“…Participants were educated about the disease, treatment and expected side effects, but not the impact of treatment on their life. A German study surveying 338 cancer patients found that patients were dissatisfied with the education concerning management of side effects, suggesting they would have benefitted from advice on strategies to deal with them [ 19 ]. While this study was not specific to lung cancer, it highlights that patients value realistic advice on dealing with their disease.…”

Section: Discussionmentioning

confidence: 99%

Treatment burden experienced by patients with lung cancer

et al. 2021

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Introduction Patients’ burden from lung cancer treatment is not well researched, but this understanding can facilitate a patient-centred treatment approach. Current models of treatment burden suggest it is influenced by a patient’s perception of their disease and treatment and their capacity to do the work required to treat their disease. Methods Sixteen patients and 1 carer who were undergoing or had completed conventional or stereotactic ablative radiotherapy, chemotherapy or immunotherapy for lung cancer in the last 6 months participated in a semi-structured interview. A treatment burden framework was used with three main themes: a) treatment work, b) consequences of treatment and c) psychosocial factors affecting treatment burden. Results The majority of patients did not feel unduly burdened by treatment tasks, despite having a large treatment-associated workload. Many saw treatment as a priority, causing them to restructure their life to accommodate for it. Patients wished that they would have been better informed about the lifestyle changes that they would have to make before treatment for lung cancer commenced and that the health service would provide services to assist them with this task. Discussion While there was a large burden associated with lung cancer treatment, patients felt motivated and equipped to manage the workload because the disease was considered severe and life-threatening, and the treatment was seen as beneficial. Before initiating treatment for lung cancer, patients should be informed about lifestyle changes they likely have to make and should be offered assistance.

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Importance of and Satisfaction with Information about Their Disease in Cancer Patients

Cited by 13 publications

References 40 publications

Patient Satisfaction Determinants of Inpatient Healthcare

Patient Satisfaction Determinants of Inpatient Healthcare

Information needs and preferences among rural cancer survivors in Queensland, Australia: a qualitative examination

Treatment burden experienced by patients with lung cancer

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