Importance of long-term involvement for older people living in severe squalor: A case report

Matsuoka, Teruyuki; Kato, Yuka; Shibata, Keisuke; Nakamura, Kaeko; Nishimura, Yukihide; Narumoto, Jin

doi:10.1016/j.ajp.2020.102146

Cited by 5 publications

(6 citation statements)

References 9 publications

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“…It has been repeatedly pointed out that hospitalization, 1,4 or simply going into the individual's residence and cleaning 4,27 does not improve the situation, and that a multidisciplinary approach is important. 11,18,28,29 The key supporter, whom the patient may come to recognize and trust, must first establish a rapport and then provide instrumental support. 30 The goals of the management are to improve the well-being and general health.…”

Section: Discussionmentioning

confidence: 99%

Diogenes syndrome in a 10‐year retrospective observational study: An elderly case series in Tokyo

Ito

Okamura

Tsuda

et al. 2021

Int J Geriat Psychiatry

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Objectives: Supporting people suffering from Diogenes Syndrome (DS) is a challenge for geriatric psychiatry. However, there is a lack of knowledge about DS in Japan. Therefore, a systematic longitudinal study to clarify the factors associated with DS and its prognosis was conducted.Methods/Design: A retrospective study using data from case records of a municipal psychogeriatric service was conducted. The study population was socially isolated older adults with complex mental health and social care needs who had been referred to the service over 10 years. The participants were stratified into DS and non-DS groups, multivariate analysis was performed to identify factors associated with DS, and survival analysis was performed.Results: Of the 270 participants, 61 with Environmental Cleanliness and Clutter Scale (ECCS) scores >12 were assigned to the DS group, and 209 with ECCS scores ≤12 were assigned to the non-DS group. On multiple logistic regression analysis, significantly more people in the DS group were living alone, had advanced dementia, and had reduced basic activities of daily living (BADL) compared to the non-DS group. Furthermore, survival analysis showed that the DS group had a higher risk of early death than the non-DS group. Conclusions:In the present study, social isolation, living alone, advanced dementia, and reduced BADL were found to be associated with DS. In addition, DS had a high risk of early death. Support for DS must take into account not only mental and social health, but also physical health from an early stage.

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Section: Discussionmentioning

confidence: 99%

Diogenes syndrome in a 10‐year retrospective observational study: An elderly case series in Tokyo

Ito

Okamura

Tsuda

et al. 2021

Int J Geriat Psychiatry

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“…Two explored the extent to which people with dementia and their families used available care and treatment (Wolfs et al., 2010, 2012), another two explored the barriers and facilitators to accessing formal care (Morgan et al., 2002; Stephan et al., 2018). The last presented a single case study whereby it was perceived that services could learn from the challenges presented (Matsuoka et al., 2020) (See Table 4).…”

Section: Resultsmentioning

confidence: 99%

“…Continuity of professional involvement or support via the allocation of a care manager or care navigator was found to facilitate the uptake of care (Herron & Rosenberg, 2019a; Macleod et al., 2017; Matsuoka et al., 2020; O'Shea et al., 2019; Stephan et al., 2018) as was working collaboratively with other services and informal carers to provide more person‐centred care (Gilmore, 2019; Herron & Rosenberg, 2019b; Matsuoka et al., 2020; Morgan et al., 2002; Stephan et al., 2018). In keeping with this, various studies highlighted the need for services to take account of the person's history and their previous interests (and current capabilities) (Gilmore, 2019; Herron & Rosenberg, 2019a; O'Shea et al., 2019; Rapaport et al., 2020), routines (Herron & Rosenberg, 2019a) and existing relationships (Gilmore, 2019; Herron & Rosenberg, 2019a, 2019b; Matsuoka et al., 2020; Rapaport et al., 2020; Stephan et al., 2018) in order to provide meaningful activities and engagement (Gilmore, 2019; Herron & Rosenberg, 2019a, 2019b; O'Shea et al., 2019; Rapaport et al., 2020), along with carers attending for the assigned visit duration (Herron & Rosenberg, 2019a).…”

Section: Resultsmentioning

confidence: 99%

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Enabling older people with mental health needs to engage with community social care: A scoping review to inform a theory of change

Newbould

Tucker

Wilberforce

2021

Health Social Care Comm

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Despite apparent need, many older people with cognitive impairment and/or mental health needs do not fully engage with social care. This can manifest in different ways, including passive or aggressive attempts to avoid or repel care workers. However, little is known about how to support such individuals in their own homes and deliver effective care. Against this background, we undertook a scoping review with a view to developing a preliminary theory of change suggesting how care might be modified to engage this client group. The most recent search was conducted on 21/04/21.Papers were included if they (i) focused on older people (65+) living at home with social care needs and (ii) described difficulties/problems with the provision/receipt of social care associated with individuals' mental health needs. Twenty-six citations were identified through electronic database searches and reference screening, and the results were charted according to key theory of change concepts (long-term outcomes, preconditions, interventions, rationale and assumptions). All the included papers were related to people with dementia. Four subgroups of papers were identified. The first highlights those external conditions that make it more likely an intervention will be successful; the second describes specific interventions to engage older people who by virtue of their mental health needs have not engaged with social care; the third explores what services can be done to increase service uptake by older people with mental health needs and their caregivers more generally; and the fourth details theoretical approaches to explaining the behaviour of people with dementia.Each provides information that could be used to inform care delivery and the development of interventions to improve engagement with health and social care for these individuals. The study concludes that different framing of engagement difficulties, such as that offered through positioning theory, may assist in future service design.

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“…It is possible that those who refused access to their homes varied significantly from those that agreed, suggesting that the sample used in the present study may have been influenced by selection bias. Individuals living in squalor are socially withdrawn [66][67][68] and will refuse entry to their property or any form of help [69][70][71], which would drive avoidance of engagement with the EHS. It is not practical to expect a study to enforce entry into homes.…”

Section: Discussionmentioning

confidence: 99%

Household factors and prevalence of squalor: meta-analysis and meta-regression

Norton,

Kellett,

Huddy

et al. 2024

BMC Public Health

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Background Severe domestic squalor occurs when a person lives in a dwelling that is significantly unclean, disorganised and unhygienic. The limited previous research has primarily focused on the characteristics of those who live in squalor and the associated risk factors. Robust and reliable studies of squalor prevalence have not been conducted. This study sought to produce a reliable estimate of the point prevalence of squalor. Methods Using data from 13-years of the English Housing Survey, N = 85,681 households were included in a prevalence meta-analysis. Squalor prevalence over time, subgroup analysis and logistic regression investigated the role played by household and community characteristics. Results The point prevalence of squalor was estimated to be 0.85% and squalor was seen to decrease significantly over time. More significant community deprivation, a rented dwelling, lower income and high numbers of people in the home was associated with a greater risk of squalor. Conclusions Squalor prevalence was higher than previous estimates and supports community care services in associated service planning. The results regarding household characteristics help to inform which households and individuals may be at a higher risk of living in squalid conditions.

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Importance of long-term involvement for older people living in severe squalor: A case report

Cited by 5 publications

References 9 publications

Diogenes syndrome in a 10‐year retrospective observational study: An elderly case series in Tokyo

Diogenes syndrome in a 10‐year retrospective observational study: An elderly case series in Tokyo

Enabling older people with mental health needs to engage with community social care: A scoping review to inform a theory of change

Household factors and prevalence of squalor: meta-analysis and meta-regression

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