Imposições e conflitos no cotidiano das famílias de crianças com doença crônica

Abstract

Estudo descritivo-exploratório com abordagem qualitativa com o objetivo de identificar as imposições e os conflitos enfrentados no cotidiano pelas famílias de crianças com doença crônica. Os dados foram coletados entre novembro de 2008 e janeiro de 2009 mediante entrevistas semiestruturadas realizadas em um hospital público, referência no tratamento de doença crônica, com três famílias residentes no município de João Pessoa - PB, e processados a partir da análise temática. Os resultados apontam que os conflitos e imposições no cotidiano da família envolvem o abandono do emprego, ocasionando desequilíbrio financeiro; redução/interrupção dos momentos de lazer; incompreensão social e familiar; sobrecarga do cuidador principal; desestruturação familiar e relacionamentos fragilizados com repercussão negativa em toda família. Aponta-se a necessidade de os profissionais de saúde conhecerem o contexto de vida da criança com doença crônica e sua família, a fim de obterem elementos para um planejamento adequado de superação dos percalços decorrentes da doença.

Scoring interventions in family relations regarding the care for the child with a chronic condition

“…As a result, it is understood that the child's chronic condition can intensify relational difficulties. 21 This dimension is close to the understanding of the recursive principle, proposed by Complex Thought, 11 as the changes of the family dynamic and the non-cooperation between the family members are configured as factors which influence the relational difficulties, which in their turn continue to influence the first two, in a recursive process which will determine the families' forms of selforganization and which continuously involves order, disorder, and organization in an antagonistic and complementary dynamic. 12 These movements are part of the dynamic of each and every family system, however, they can be exacerbated in families where one of the children has a specific chronic condition, contributing to maintaining relational and interactional difficulties.…”

“…Therefore, it is fundamental to understand the context experienced by the family in the light of the child's chronic condition, in order to encourage its strengthening in the face of adverse times. 21 For this, it is necessary for the fam-ily system to be seen in its multidimensionality, so there may be knowledge of the whole (family system) and of the parts (members of the family system) of the whole, avoiding that its dimensions should be excessively isolated.…”

Family Organization in the Care of Pediatric Heart Transplant Patients: The Genogram as an Investigative Tool

“…Despite the family support evidenced by the genogram, the literature points out that a chronic situation in children has been linked to increased difficulties in marital relationships, mainly due to constant neglectin giving attention to other family members in favor of the transplant children [20]. Family support in child care is essential, and that must start by promoting information and explanations about what can influence physical and psychological well-being.…”

Strategies of Families in the Care of Children With Chronic Diseases

“…This care requires from the family a reorganization of roles given the child's needs, causing a significant impact on the dynamics and lives of people living with a child with chronic illness. 7 At the time that the child's caregiver (family, close people or institutions hosting these children) is informed about the condition of chronic disease, this person starts to experience a period of conflict. This faces changes and new requirements in his/ her daily routine.…”