Improving access to school based education for South African children in rural areas who have a tracheostomy: A case series and recommendations

Mahomva, Chengetai; Harris, Sue; Seebran, Narvanie; Mudge, B; Catlin, Brian; Davies, Louise

doi:10.1016/j.ijporl.2016.11.018

Cited by 4 publications

(3 citation statements)

References 6 publications

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“…43 Mothers believe that their children with tracheostomies have difficulty socializing and meeting their educational needs. 44 We should take into account the cultural structure and education level in Turkey and develop standardized training programs and determine their impact. Nurses should support mothers for post-discharge home care and follow up on them regularly to help them overcome their problems.…”

Section: Discussionmentioning

confidence: 99%

Home care experiences of mothers of children with tracheostomies – a qualitative study

Donmez,

Gozetici

2023

Eur J Clin Exp Med

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Introduction and aim. Parents of children who are addicted to technology have many problems in home care. This study aimed to describe the home care experiences of mothers of children with tracheostomies. Material and methods. The study adopted Husserl’s phenomenological method, a qualitative research design. The sample consisted of 23 mothers of children with tracheostomies followed up in the pediatric pulmonology outpatient clinic of a university hospital. All participants cared for their children at home. Data were collected using a sociodemographic questionnaire and a semi-structured interview questionnaire. All interviews were recorded and transcribed. Results. Children (12 girls and 11 boys) had a mean age of 3.43±3.326 years. The mean age of tracheostomy insertion was 2.8±2.508 years. Seventeen children were on ventilator support. All participants were mothers with a mean age of 32.34±6.00 years. Half the mothers had primary school degrees (52.2%). The interviews revealed one main theme (burnout), three subthemes (social isolation, perception of competence, and regrets), and five categories (burden of care, fear, awareness, decisions, and role confusion). Conclusion. Mothers of children with tracheostomies experience numerous problems when they provide home care. They mostly have difficulty improving themselves and enduring role confusion. We must address the issues mothers of children with tracheostomies face during home care to reduce the prevalence of potential complications and improve the quality of care for both them and their children.

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Section: Discussionmentioning

confidence: 99%

Home care experiences of mothers of children with tracheostomies – a qualitative study

Donmez,

Gozetici

2023

Eur J Clin Exp Med

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“…Seven studies on needs assessments for tracheostomy care programs highlighted evaluation of tracheostomy care knowledge among adult intensive care unit (ICU) nurses, experience of caregivers following discharge from the hospital, and exploration of barriers related to social integration for patients. (Table 1) [10][11][12][13][14][15][16].…”

Section: Needs Assessment For Tracheostomy Care Programsmentioning

confidence: 99%

“…The final set of needs assessments focused on social integration of patients with tracheostomies. A qualitative study by Mahomva et al (2016) on barriers to school attendance for children in South Africa led to the development of an introductory booklet for teachers, development of recommendations for integration of children with tracheostomies into school, and a recommendation for a more formalized collaboration between families, the department of education, and hospital staff [15]. In Nigeria through observational data on adults following iatrogenic vocal fold paralysis, Akenroye et al (2013) noted challenges with social integration and stigmatization due to tracheostomy visibility and communication barriers from lack of speaking valves [14].…”

Section: Plos Global Public Healthmentioning

confidence: 99%

Tracheostomy care quality improvement in low- and middle-income countries: A scoping review

Selekwa,

Maina,

Yeh

et al. 2023

PLOS Glob Public Health

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Tracheostomy is a lifesaving, essential procedure performed for airway obstruction in the case of head and neck cancers, prolonged ventilator use, and for long-term pulmonary care. While successful quality improvement interventions in high-income countries such as through the Global Tracheostomy Collaborative significantly reduced length of hospital stay and decreased levels of anxiety among patients, limited literature exists regarding tracheostomy care and practices in low and middle-income countries (LMIC), where most of the world resides. Given limited literature, this scoping review aims to summarize published tracheostomy studies in LMICs and highlight areas in need of quality improvement and clinical research efforts. Based on the PRISMA guidelines, a scoping review of the literature was performed through MEDLINE/PubMed and Embase using terms related to tracheostomy, educational and quality improvement interventions, and LMICs. Publications from 2000–2022 in English were included. Eighteen publications representing 10 countries were included in the final analysis. Seven studies described baseline needs assessments, 3 development of training programs for caregivers, 6 trialed home-based or hospital-based interventions, and finally 2 articles discussed development of standardized protocols. Overall, studies highlighted the unique challenges to tracheostomy care in LMICs including language, literacy barriers, resource availability (running water and electricity in patient homes), and health system access (financial costs of travel and follow-up). There is currently limited published literature on tracheostomy quality improvement and care in LMICs. Opportunities to improve quality of care include increased efforts to measure complications and outcomes, implementing evidence-based interventions tailored to LMIC settings, and using an implementation science framework to study tracheostomy care in LMICs.

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Evidence‐Based Medicine in Otolaryngology Part 16: Qualitative and Quantitative Methods—Contrasting and Complementary Approaches

Ikeda,

Suarez‐Goris,

Reich

et al. 2023

Otolaryngol.--head neck surg.

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Qualitative methods have been increasingly applied in our literature, providing richness to data and incorporating the nuances of patient and family perspectives. These qualitative research techniques provide breadth and depth beyond what can be gleaned through quantitative methods alone. When both quantitative and qualitative approaches are coupled, their findings provide complementary information which can further substantiate study conclusions. We thus aim to provide insight into qualitative and quantitative methods in comparison and contrast to each other, as well as guidance on when each approach is most apt. In relation, we also describe mixed methods and the theory supporting their framework. In doing so, we provide the foundation for an ensuing, more detailed exposition of qualitative methods.

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Improving access to school based education for South African children in rural areas who have a tracheostomy: A case series and recommendations

Cited by 4 publications

References 6 publications

Home care experiences of mothers of children with tracheostomies – a qualitative study

Home care experiences of mothers of children with tracheostomies – a qualitative study

Tracheostomy care quality improvement in low- and middle-income countries: A scoping review

Evidence‐Based Medicine in Otolaryngology Part 16: Qualitative and Quantitative Methods—Contrasting and Complementary Approaches

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