In vitro fertilization healthcare professionals generally underestimate patients’ satisfaction with quality of care

Holter, Herborg; Gejervall, Ann-Louise; Borg, Kia; Sandin‐Bojö, Ann‐Kristin; Wikland, Matts; Wilde‐Larsson, Bodil; Bergh, Christina

doi:10.1111/aogs.13080

Cited by 11 publications

(15 citation statements)

References 24 publications

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“…5 It should be kept in mind that HCPs tend to underestimate actual given care and overestimate the importance of different aspects of care compared with patients' perceptions. 32,33 In the present study, HCPs scored low values regarding perceptions of given care (PR) for a great number of items related to symptom relief, spiritual and existential needs, information, patient participation, continuity of care, care planning, cooperation, and coordination of care services, all of which are important components of high-quality person-centred palliative care. 4 None of the care areas received balanced high PR and SI scores, which is interpreted as indicating that the ability of services to meet patients' preferences was low.…”

Section: Discussionmentioning

confidence: 78%

“…Other studies using the QPP instrument to assess care quality show that HCPs tend to underestimate actual care received and overestimate how important different aspects of care are, compared with patients' perceptions. 32,33 Nevertheless, examining HCPs' perceptions of care provided, and how important they perceive the care to be for patients, allows important knowledge for improvement and development of palliative care to be obtained without burdening fragile patients and their families. This study aimed to investigate perceptions of HCPs working in a combined acute oncology-palliative care unit regarding quality of palliative care received by the patients and how important the care was to the patients.…”

Section: Introductionmentioning

confidence: 99%

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Healthcare professionals’ perceptions of palliative care quality in a combined acute oncology-palliative care unit: A cross-sectional study

Olsson

Sandsdalen

Wilde‐Larsson

et al. 2021

Nordic Journal of Nursing Research

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It is a challenge to ensure high-quality palliative care. The aim was to investigate the perceptions of health care professionals (HCPs) working in a combined acute oncology-palliative care unit regarding the quality of the palliative care received by the patients and how important the care was to the patients. A Swedish total-survey cross-sectional study including 41 HCPs (54% response rate) was conducted with the 52 items Quality from the Patient’s Perspective – Palliative Care instrument, answered in two different ways: as actual care received and subjective importance. The STROBE-checklist was used. The areas for improvements were related to symptom relief, spiritual and existential needs, information, patient participation, continuity of care, care planning, cooperation and coordination of care, as subjective importance scores were higher than corresponding scores for care received ( p ≤ .025). Providing high-quality palliative care alongside curative treatments for cancer patients is known to be challenging and could explain the results in this study. Implementation of a person-centred palliative care model based on the hospice philosophy could be a solution.

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Section: Discussionmentioning

confidence: 78%

Section: Introductionmentioning

confidence: 99%

Healthcare professionals’ perceptions of palliative care quality in a combined acute oncology-palliative care unit: A cross-sectional study

Olsson

Sandsdalen

Wilde‐Larsson

et al. 2021

Nordic Journal of Nursing Research

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“…In a discrete choice experiment in Dutch and Belgian fertility clinics, reproductive specialists overestimated how much patients value pregnancy rates and underestimated the value patients place on patient-centered care [ 4 ]. Research from Sweden has evaluated the quality of fertility care as perceived by men, women, and health care professionals [ 5 – 7 ]. Overall, relatively little empirical work on patient-centered care has been conducted, especially in the United States (US), where health insurance coverage of testing and treatment varies widely by state.…”

Section: Introductionmentioning

confidence: 99%

A conceptual framework for patient-centered fertility treatment

et al. 2017

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BackgroundPatient-centered care is a pillar of quality health care and is important to patients experiencing infertility. In this study we used empirical, in-depth data on couples’ experiences of infertility treatment decision making to inform and revise a conceptual framework for patient-centered fertility treatment that was developed based on health care professionals’ conceptualizations of fertility treatment, covering effectiveness, burden, safety, and costs.MethodsIn this prospective, longitudinal mixed methods study, we collected data from both members (separately) of 37 couples who scheduled an initial consult with a reproductive specialist. Data collection occurred 1 week before the initial consultation, 1 week after the initial consultation, and then roughly 2, 4, 8, and 12 months later. Data collection included semi-structured qualitative interviews, self-reported questionnaires, and medical record review. Interviews were recorded, transcribed, and content analyzed in NVivo. A single coder analyzed all transcripts, with > 25% of transcripts coded by a second coder to ensure quality control and consistency.ResultsContent analysis of the interview transcripts revealed 6 treatment dimensions: effectiveness, physical and emotional burden, time, cost, potential risks, and genetic parentage. Thus, the revised framework for patient-centered fertility treatment retains much from the original framework, with modification to one dimension (from safety to potential risks) and the addition of two dimensions (time and genetic parentage). For patients and their partners making fertility treatment decisions, tradeoffs are explicitly considered across dimensions as opposed to each dimension being considered on its own.ConclusionsPatient-centered fertility treatment should account for the dimensions of treatment that patients and their partners weigh when making decisions about how to add a child to their family. Based on the lived experiences of couples seeking specialist medical care for infertility, this revised conceptual framework can be used to inform patient-centered treatment and research on infertility and to develop decision support tools for patients and providers.

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“…Specifically with regard to FT, providers appeared to underestimate the importance of PCC for patient satisfaction [20,24,25], thereby suggesting that PCC in FT may be in need of improvement [26]. Specifically, the dimensions of PCC that are most important to patients might be different from those considered most important to providers (e.g.…”

Section: Introductionmentioning

confidence: 99%

“…information and communication vs coordination and integration of care, respectively) [27]. Interestingly, while the data in some studies indicated that healthcare professionals underestimated their own performance [6] the data in others emphasize the opposite [25]. The aforementioned studies generally instructed the healthcare professional to answer the way their patients would have evaluated the patient-centered quality of care at their clinic.…”

Section: Introductionmentioning

confidence: 99%

Patient-centered care in Israeli IVF units: divergent perceptions of patients and providers

Medina-Artom

Adashi

2020

Isr J Health Policy Res

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Background: Patient-centered care is particularly important for patients undergoing fertility treatment because of their emotional involvement and their constant contact with providers. To the best of our knowledge, to date, there have been no rigorous studies of the discrepancies between the patients' perceptions of the care they received and the providers' perceptions of the care that they provided, in specific dimensions and elements of patient-centered care. Objective: To compare provider and patient perceptions of the extent to which care in Israeli IVF units is patientcentered. Methods: A previously validated survey instrument was used to assess the patient and provider perceptions of ten dimensions of patient-centered care: accessibility of providers, provision of information and of explanations, communication skills of providers, patient involvement in the treatment, respect for patient values and needs, continuity and transition in treatment, professional competence, care organization, physical comfort, and emotional support. The patient survey and the provider survey were conducted in 2016-2017; both surveys were carried out in 8 of 25 hospitalbased IVF units in Israel. Seventy-six providers and 524 patients (response rate 79%) participated in the surveys. Findings: The perceptions of patients and providers were similar regarding seven of the ten dimensions of patientcentered care, although there were some differences in patient vs. provider scores by unit. There were three dimensions with substantial provider-patient score differences: Moderate-sized gaps were found relative to the provision of information and explanations (1.96 vs. 2.38, on a 0-3 scale) and respect for patient values and needs (1.92 vs. 2.47). A large gap was observed relative to emotional support (0.96 vs. 2.54). Conclusions: Providers appear to underestimate the needs of fertility treatment patients for information, respect, and emotional support. The observed differences between what patients feel about their care and what providers assume they provide, especially regarding emotional support, indicates a need for ongoing, specific feedback to providers as to the patient-centeredness of the care they provide. The particularly large patientprovider gap relative to the provision of emotional support highlights the importance of increasing the attention paid to the psychological impact of fertility treatment and of giving patients an opportunity to consult a counselor who is familiar with problems associated with fertility treatments.

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In vitro fertilization healthcare professionals generally underestimate patients’ satisfaction with quality of care

Abstract: The results of this study will increase the professionals' understanding of the patients' experiences during IVF treatment and provide additional knowledge when identifying areas to prioritize to improve quality of care.

Cited by 11 publications

References 24 publications

Healthcare professionals’ perceptions of palliative care quality in a combined acute oncology-palliative care unit: A cross-sectional study

Healthcare professionals’ perceptions of palliative care quality in a combined acute oncology-palliative care unit: A cross-sectional study

A conceptual framework for patient-centered fertility treatment

Patient-centered care in Israeli IVF units: divergent perceptions of patients and providers

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