Including the patient’s oral health perspective in evidence-based decision-making

Paulson, Danna R.; Pattanaik, Swaha; Chanthavisouk, Phonsuda; John, Mike T.

doi:10.1007/s00103-021-03375-0

Cited by 13 publications

(10 citation statements)

References 44 publications

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“…Although OHRQoL is only one among many concepts in the larger group of dPROs, it is the most important concept [1]. Therefore, comparing our dimensionality findings for dPROMs with those of OHRQoL instrument could provide deeper insight into dPRO dimensions.…”

Section: Comparison With Literaturementioning

confidence: 88%

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Commonalities among dental patient-reported outcomes (dPROs)—A Delphi consensus study

et al. 2022

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Improvement of patients’ oral health-related quality of life (OHRQoL) is the main goal of oral health care professionals. However, OHRQoL is not a homogenous construct and how to assess it is challenging because of the large number of currently available instruments. Investigating available instruments and what they have in common would be necessary for consolidation and standardization of these instruments into a smaller set of tools. If the OHRQoL dimensions including Oral Function, Orofacial Pain, Orofacial Appearance, and Psychosocial Impact are the fundamental building blocks of the dental patient’s oral health experience, then these dimensions should be measured by generic multi-item dPROMs. In this study, a panel of 11 international dentists use the Delphi consensus process to determine how well 20 of these instruments measured the four OHRQoL dimensions. All 20 dPROMs questionnaires assessed at least one OHRQoL dimension while all four OHRQoL dimensions were measured by at least one dPROM instrument, i.e., the four OHRQoL dimensions were essential components of the patient’s oral health experience. This shows that the currently available generic multi-item dPROMs have a lot in common, in that they share Oral Function, Orofacial Pain, Orofacial Appearance, and Psychosocial Impact as targeted dimensions. Based on these commonalities, it is plausible and desirable to move towards a single four-dimensional metric to assess oral health impact in all clinical, community-based, and research settings. This step is necessary to advance evidence-based dentistry and value-based oral health care.

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Section: Comparison With Literaturementioning

confidence: 88%

“…Dental patient-reported outcomes (dPROs) represent what is important to dental patients [1,2]. Therefore, dental patient-reported outcome measures (dPROMs) determine which dental treatments are the most effective in addressing dental patients' oral health problems.…”

Section: Introductionmentioning

confidence: 99%

Commonalities among dental patient-reported outcomes (dPROs)—A Delphi consensus study

et al. 2022

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“…The risk of developing oral diseases is higher among individuals with disabilities (including Down syndrome) relative to those who do not have any form of impairment or disability [1,2]. As people with Down syndrome are also more prone to suffer from oro-facial conditions such as malocclusion, periodontal disease, and soft tissue disturbances (i.e., inverted lips and protruding tongue) [3][4][5][6], it is imperative to study the oral health status and its consequences in this population.…”

Section: Introductionmentioning

confidence: 99%

“…Spearman's Rank Correlation Test 2. Kruskal-Wallis Test for difference between groups in child's OHRQoL Scores.…”

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confidence: 99%

Oral Health-Related Quality of Life (OHRQoL) of Children with Down Syndrome and Their Families: A Cross-Sectional Study

AlJameel

Alkawari

2021

Children

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As individuals with Down syndrome often suffer from oro-facial abnormalities which can affect their oral health as well as their and their family’s quality of life, this link was examined in the present study. Using a descriptive cross-sectional design, 63 parents of children with Down syndrome who attended two special daycare centres in Riyadh, Saudi Arabia, were surveyed using a self-administered validated questionnaire. The findings yielded by the Statistical Package for the Social Sciences (SPSS Inc., Chicago, IL, USA) version 17 revealed that in 34.9% children and 46% of their families, quality of life was affected by oral health. Moreover, 54% children experienced physical pain, which was severe in 22.2% of the cases. Further analyses revealed that families’ emotional lives were negatively affected by children’s oral health status. Therefore, as oral health in children with Down syndrome exerts significant adverse impacts on different aspects of their lives and those of their families, timely provision of required oral health care is warranted.

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“…Oral health-related quality of life (OHRQoL) is a well-recognized concept that represents how patients perceive the impact of oral diseases and dental interventions [ 1 – 3 ]. Oral health professionals measure OHRQoL to assess the burden of oral diseases on patients, and to help identify the dental treatments which are the most effective in reducing the burden [ 3 ]. OHRQoL is one of the many dental patient-reported outcomes (dPROs) used to assess the impact of oral diseases [ 4 – 6 ].…”

Section: Introductionmentioning

confidence: 99%

Is assessment of oral health-related quality of life burdensome? An item nonresponse analysis of the oral health impact profile

et al. 2021

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Aim This study aimed to investigate if in the 49-item Oral Health Impact Profile (OHIP): (i) more missing data occurred when participants answered more questions, (ii) more missing data occurred in a particular item or set of related items, and (iii) item missingness was associated with the demographic characteristics and oral health-related quality of life (OHRQoL) impairment level. Methods We used OHIP data from the Dimensions of OHRQoL (DOQ) project, which consolidated data from 35 individual studies. Among these studies, we analyzed OHIP data from 19 studies (4,847 surveyed individuals, of which 3,481 were completed under supervision and 1,366 were completed unsupervised) that contained some missing information. We computed descriptive statistics to investigate the OHIP missingness. We also used logistic regression analyses, with missing information as the dependent variable, and number of questions filled in (OHIP item rank) as the independent variable for samples with and without supervision. To investigate whether missing data occurs more in a particular item or set of related items we fitted regression models with individual OHIP items and the OHRQoL dimensions as indicator variables. We also investigated age, gender, and OHRQoL level as predictor variables for missing OHIP items. Results We found very low levels of missingness across individual OHIP items and set of related items, and there was no particular item or set of related items that was associated with more missing data. Also, more missing data did not depend on whether the participants answered more questions. In studies without supervision, older persons and females were 5.47 and 2.66 times more likely to have missing items than younger persons and females. However, in studies with supervision, older persons, and participants with more OHRQoL impairment were 1.70 and 2.65 times more likely to have missing items. Conclusion The study participants from general and dental patient populations did not find OHIP-49 burdensome. OHIP item missingness did not depend on a particular OHIP item or set of related items, or if the study participants responded to a greater number of OHIP items. We did not find a consistent pattern of the influence of sociodemographic and OHRQoL magnitude information on OHIP missingness. The amount of missing OHIP information was low making any potential influence likely small in magnitude.

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Including the patient’s oral health perspective in evidence-based decision-making

Cited by 13 publications

References 44 publications

Commonalities among dental patient-reported outcomes (dPROs)—A Delphi consensus study

Commonalities among dental patient-reported outcomes (dPROs)—A Delphi consensus study

Oral Health-Related Quality of Life (OHRQoL) of Children with Down Syndrome and Their Families: A Cross-Sectional Study

Is assessment of oral health-related quality of life burdensome? An item nonresponse analysis of the oral health impact profile

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