Inclusión laboral y discapacidad invisible. Hacia una reflexión sobre las barreras y posibilidades del mercado laboral ordinario

Romani, Laura; Botija, Mercedes; Lera, Estefanía Alabau de

doi:10.5569/2340-5104.09.02.02

Cited by 2 publications

(1 citation statement)

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“…They have showed that living with cystic fibrosis is not necessarily associated with negative effects on career development (Saldana et al, 2018), and that people with cystic fibrosis face barriers to employment similar to "those experienced by other disabled people" (Edwards and Boxall, 2010). The inflexibility of employers toward needs for adaptations can represent a major barrier to employment for people with cystic fibrosis, as shown by a study in Spain (Esteban Romani et al, 2021).…”

Section: Living Longer With Cystic Fibrosis: Managing Illness and Acc...mentioning

confidence: 99%

How workplaces produce or reduce disability along the career paths of young people with cystic fibrosis

et al. 2023

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Using the theoretical perspective of “social participation” as considered in the Human Development—Disability Creation Process, this article examines certain obstacles and facilitators to sustainable access to work among young French adults with cystic fibrosis. Drawing from the analyses of 29 qualitative interviews, the results show how such obstacles do not depend solely on their health status or on the medical management of the illness, but also on the work environments that these young professionals have recently entered or are trying to access. In these contexts, managing information about the illness can represent a means of obtaining cooperation from colleagues and superiors to reduce material or organizational obstacles (e.g. adapted work schedules), as well as a means of preventing socially uncomfortable or disabling situations. In this light, the social participation model can complement Corbin and Strauss’ illness trajectory model, by setting the multi-factorial disabling or participatory situations along illness or medical trajectories. This enables dynamic consideration of how workplaces contribute to producing or reducing disability, in interaction with the actions taken by young people with cystic fibrosis to manage their career paths but also the evolution of illness, symptoms, or medical requirements.

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Section: Living Longer With Cystic Fibrosis: Managing Illness and Acc...mentioning

confidence: 99%

How workplaces produce or reduce disability along the career paths of young people with cystic fibrosis

et al. 2023

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Conocimiento y uso de los recursos dirigidos a los familiares de personas con discapacidad

Gallego,

Ferreira

2024

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Las políticas sociales buscan relevar a la familia de las personas con discapacidad y dependencia en su papel de cuidadores. Sin embargo, en numerosas ocasiones, estas familias no disponen de todos los recursos necesarios para afrontar estas situaciones de cuidado. El objetivo general del presente trabajo es conocer la percepción sobre los recursos de los que disponen los familiares de personas con discapacidad. Se trata de un estudio cualitativo mediante entrevista estructurada, no experimental ex post facto, de carácter descriptivo y de tipo transversal. La muestra total fueron 27 personas familiares de personas con discapacidad. Para el análisis de las respuestas se empleó el programa JASP y se realizó estadística descriptiva y correlacional. Los resultados indican que el recurso más reconocido y utilizado es el referido a las prestaciones económicas, así como la atención temprana y los colegios de educación especial. Las mujeres son mayoritarias en el cuidado de estas personas, señalando estas mujeres un gasto de energía, por lo que podría ser recomendable mejorar la eficiencia y la eficacia de los programas de respiro familiar.

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Inclusión laboral y discapacidad invisible. Hacia una reflexión sobre las barreras y posibilidades del mercado laboral ordinario

Cited by 2 publications

References 10 publications

How workplaces produce or reduce disability along the career paths of young people with cystic fibrosis

How workplaces produce or reduce disability along the career paths of young people with cystic fibrosis

Conocimiento y uso de los recursos dirigidos a los familiares de personas con discapacidad

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