Increasing Parental Access to Pediatric Pain-related Knowledge

Abstract

Objectives: Parents can play an integral role in managing their child’s pain, yet many parents remain unaware of evidence-based strategies to support their child during painful experiences. Recent advances in knowledge translation research, which include dissemination and implementation studies, have resulted in programs geared towards parents to offset this knowledge gap. The nature of these programs and the degree to which parents find them useful remains unclear. Our goal was to systematically review programs aimed as disseminating and implementing evidence-based pain-related knowledge to parents. Materials and Methods: Systematic searches of PubMed, Web of Science, CINAHL, and PsycInfo were completed. Articles in which information was disseminated to parents with the goal of assessing dissemination and implementation outcomes were retained. Information was extracted to identify study characteristics, primary outcomes, and quality of evidence. Results: A total of 24,291 abstracts were screened and 12 articles describing programs were retained. Programs were positively rated by parents in terms of the appropriateness of formats selected, presentation of information, and helpfulness of content. The majority of research has been focused in the area of procedural pain among infants. Although several implementation domains are reported by researchers, certain areas have been overlooked to date, including the cost and sustainability of programs. The majority of reports presented with methodological limitations and bias. Discussion: Knowledge translation research in pediatric pain is in its infancy. Development of theories and guidelines to increase the utility and quality of evidence are needed.

Using Social Media to Disseminate Effective Pain Treatments for Newborns During Needle-Related Painful Procedures in China

“…In this current study, nearly 400 survey respondents (more than half) were parents. This is more than that found in a systematic review of 12 studies disseminating evidence-based pediatric pain-related knowledge to parents, in which most respondents were HCPs 41. Neonatal care is considered a partnership between the healthcare professions and the family, and breastfeeding and SSC during painful procedures are parent-led pain treatments.…”

“…This is more than that found in a systematic review of 12 studies disseminating evidence-based pediatric pain-related knowledge to parents, in which most respondents were HCPs. 41 Neonatal care is considered a partnership between the healthcare professions and the family, and breastfeeding and SSC during painful procedures are parent-led pain treatments. Thus, it is important to disseminate evidence regarding painful procedural management to the family and the parents.…”

“Be sweet to babies”: Use of Facebook as a method of knowledge dissemination and data collection in the reduction of neonatal pain

“…As researchers and HCPs, it is recognized that there is an obligation to widely share research findings, especially with end users such as families 27 . Increasingly, researchers are working at increasing access for parents, to pediatric pain‐related knowledge, as highlighted in a recently published systematic review which included 12 studies of programs aimed at sharing and implementing evidence‐based pain related knowledge to parents 29 . In this current study, widely sharing best newborn pain management evidence in Brazil, by means of the parent‐targeted Portuguese language Be Sweet to Babies video, posted on the Facebook social media platform, aimed to do just that, with the ultimate aim of translating the knowledge into practice.…”

Factors Associated With Low Procedural Pain Scores Among 1- to 5-Year-Old Patients Undergoing Facial Laceration Repair

“…Parent/caregiver engagement was considered positive if the caregiver engaged the patient in nonprocedural play or relaxation (blowing bubbles, playing a video game, singing, reading a book, watching videos, etc). Parent/caregiver engagement was not considered positive if they offered the patient verbal reassurance (“It's going to be OK”), if the caregiver appeared distressed (crying, grimacing, shouting), or if the caregiver was not present during the procedure 34,59–64 …”