Indian Cancer Patients’ Needs, Perceptions of, and Expectations from their Support Network: a Qualitative Study

Chawak, Shweta; Chittem, Mahati; Butow, Phyllis; Huilgol, Nagraj G

doi:10.1007/s13187-019-1483-4

Cited by 16 publications

(21 citation statements)

References 23 publications

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“…In a study conducted in Mumbai, India in which 31 parents were interviewed, 13 felt that their child was already aware of their disease status without being told directly and parental anxiety and collusion were major barriers to formal support or open communication with their children (Muckaden et al, 2011). Nondisclosure and non-discussion are also common occurrences in the adult oncology setting in India (Chawak et al, 2020). Chawak and colleagues explain that family caregivers and oncologists are the primary medical decision makers, and that patients are often not asked about their preferences.…”

Section: Discussionmentioning

confidence: 99%

An Ethnographic Study of the Moral Experiences of Children with Cancer in New Delhi, India

Behan

Arora

Carnevale

et al. 2021

Global Qualitative Nursing Research

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There is a paucity of research examining children’s experiences with cancer in India. Childhood ethics is an emerging field, focusing on the moral dimension of children’s experiences, to promote children’s participation in their health care. A focused ethnography, using a moral experience framework, was conducted to better understand children’s participation in decisions, discussions, and actions in three oncology settings in New Delhi, India. We interviewed key informants, retrieved key documents, and conducted semi-structured interviews and participant observations with children. All 22 children demonstrated interest in varying aspects of their cancer care. Certain factors facilitated or impeded their participation. Some children became distressed when they lacked information about their treatment or were not given opportunities to enhance their understanding. The results advance our understanding of the moral experiences of children with cancer in India for healthcare professionals, policy makers, families, and interested others.

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Section: Discussionmentioning

confidence: 99%

An Ethnographic Study of the Moral Experiences of Children with Cancer in New Delhi, India

Behan

Arora

Carnevale

et al. 2021

Global Qualitative Nursing Research

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“…Additionally, in the interviews, a few of the women with breast cancer expressed that they trusted doctors a lot, that their oncologists gave them morale, that they followed exactly what these people said them to do, and that they felt relieved when they met with psychiatrists. The studies conducted in this context show that oncologists provide emotional support about treatment to individuals with breast cancer (Toledo et al, 2019) and give information support to them (Chawak et al, 2019). In this context, it can be stated that physician support, when perceived as sufficient by women diagnosed with breast cancer, can positively affect both the wellbeing of the individuals and the course of the disease.…”

Section: Discussionmentioning

confidence: 99%

The Disease Process Experiences of Women Diagnosed with Breast Cancer in the Psycho-Social Context

Öcal¹,

Ceyhan

2021

Türk Psikolojik Danışma Ve Rehberlik Dergisi

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This study aims to reveal how women diagnosed with breast cancer experience the disease process in the psychosocial context. The participants of the phenomenological designed study consisted of 10 women diagnosed with breast cancer. The findings that were obtained through semi-structured interviews centered around the themes of responses to the disease, coping strategies, sources of social support, and existential reflections. With regards to the responses to the disease, the participants' responses when diagnosed with breast cancer were under the sub-themes of shock, emptiness, mental breakdown, inability to accept the diagnosis, despair, seeking social support, anxiety, and self-blame; and after the diagnosis, they were under the sub-themes of acceptance, anxiety, sadness, and helplessness. The coping strategies used by the women included the sub-themes of coping through spirituality, social support, obtaining information, exercise, and nutrition. The social support sources of women fell under the sub-themes of spouse support, friend support, support of other family members, and physician support. In terms of existential reflections, the women were found to have experienced the sub-themes of maturing, reinterpreting life, and facing death.

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“…First, with the already mentioned low physician‐to‐patient ratio, it may be futile since physicians will continue to be hard‐pressed for time and may not be able to cater to patients' information and emotional needs beyond what they currently do. Second, it may be difficult for the physician and patient alike to embrace an altered form of physician‐led communication when patients expect and desire their physicians to play an authoritarian role 61 …”

Section: A Case For the Qpl In The Indian Oncology Settingmentioning

confidence: 99%

“…Second, it may be difficult for the physician and patient alike to embrace an altered form of physician‐led communication when patients expect and desire their physicians to play an authoritarian role. 61 …”

Section: A Case For the Qpl In The Indian Oncology Settingmentioning

confidence: 99%

The Question‐prompt list (QPL): Why it is needed in the Indian oncology setting?

et al. 2020

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Background In India, caregivers are an integral part of the illness experience, especially in cancer, to the extent that they can become proxy decision‐makers for the patient. Further, owing to acute resource constraints in the Indian healthcare system, it may be difficult for oncologists to assess and elicit questions from each patient/caregiver. Consequently, there is a need to address these unique aspects of oncology care in India to improve patient outcomes and understanding of their illness and treatment. This can be achieved through a Question Prompt List (QPL), a checklist used by care recipients during medical consultations. Recent Findings This narrative review will first introduce research on the development and effectiveness of the QPL, and then it will highlight current gaps in oncology care in India and explore how the QPL may aid in closing these gaps. A literature search of the empirical research focused on the development, feasibility and acceptability of the QPL in oncology settings was conducted. The final review included 40 articles pertaining to QPL research. Additionally, psycho‐oncology research in India centered on information needs and experiences was reviewed. Current Indian psycho‐oncology research reports patients' want to be actively involved in their cancer care and a need for more illness information. However, a high demand on physicians' resources and the family caregivers' interference can be barriers to meeting patients' information/communication needs. International research demonstrates that a QPL helps structure and decrease consultation time, improves patient satisfaction with care, and improves the quality of communication during medical encounters. Conclusion QPLs for Indian patients and caregivers may focus on the scope of medical consultations to address patient needs while influencing the course and content of the patient‐caregiver‐physician interactions. Further, it can address the resource constraints in Indian oncology care settings, thus reducing the physician's burden.

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Indian Cancer Patients’ Needs, Perceptions of, and Expectations from their Support Network: a Qualitative Study

Cited by 16 publications

References 23 publications

An Ethnographic Study of the Moral Experiences of Children with Cancer in New Delhi, India

An Ethnographic Study of the Moral Experiences of Children with Cancer in New Delhi, India

The Disease Process Experiences of Women Diagnosed with Breast Cancer in the Psycho-Social Context

The Question‐prompt list (QPL): Why it is needed in the Indian oncology setting?

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