2023
DOI: 10.1002/hpm.3674
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Indian sickle cell disease registry for surveillance and patient management: Development and implementation

Abstract: In India, sickle cell disease (SCD) predominantly occurs in indigenous (tribal) people, who are about 104 million. However, screening and diagnosis seldom happen. This situation necessitates developing a comprehensive SCD care model, including a registry. This paper describes the development and implementation of the Indian SCD registry (ISCDR) in six tribal‐dominated districts of India. The ISCDR was created in two components—(i) an Android‐based mobile/tablet application, (ii) a dashboard/admin panel for pat… Show more

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Cited by 3 publications
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