Indigenous cardiac patients’ and relatives’ experiences of hospitalisation: A narrative inquiry

Mbuzi, Vainess; Fulbrook, Paul; Jessup, Melanie

doi:10.1111/jocn.14005

Cited by 16 publications

(46 citation statements)

References 30 publications

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“…This led to negative experiences including patient’s missing fundamental requirements of informed consent for tests and procedures [ 67 ] or a lack of awareness of reasons for admission [ 45 ]. Receiving health education material that was not culturally relevant [ 56 ] or the use of medical jargon by staff members also impacted negatively [ 56 , 69 , 72 – 74 ], effects which resolved or reversed when culturally relevant and competent interactions occurred [ 31 , 33 , 47 , 51 , 58 , 68 , 75 – 78 ]. Some patients also reported positive experiences in seeing Ngangkari - who are Aboriginal traditional healers [ 45 ].…”

Section: Resultsmentioning

confidence: 99%

“…The impact of staff gender on experience was highlighted in eight studies [ 31 , 48 , 53 , 56 , 58 , 66 , 72 , 74 , 80 ]. The absence of gender specific hospital wards [ 66 , 72 , 74 ] and gender differences between patients and staff members (e.g. male patient with female doctor) were concerns raised on a number of occasions [ 31 , 48 , 53 , 56 , 58 , 74 , 80 ].…”

Section: Resultsmentioning

confidence: 99%

“…male patient with female doctor) were concerns raised on a number of occasions [ 31 , 48 , 53 , 56 , 58 , 74 , 80 ]. Family oriented administrative policies such as flexible visiting hours, no maximum number of visitors on wards [ 62 , 65 , 70 , 80 ] and effective processes for family engagement with healthcare decision making were valued [ 32 , 35 , 42 , 56 , 62 , 65 , 70 , 72 , 78 , 79 , 81 , 82 ].…”

Section: Resultsmentioning

confidence: 99%

“…Five studies reported that some Aboriginal and Torres Strait Islander people associated hospitals with death [ 30 , 41 , 42 , 48 , 72 ]. This view was more pronounced in rural and remote areas where tertiary hospitals and communication lines to communities may be dislocated, causing a vicious cycle of reducing confidence in healthcare, and delayed health seeking behaviours driving poorer outcomes.…”

Section: Resultsmentioning

confidence: 99%

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Seldom heard voices: a meta-narrative systematic review of Aboriginal and Torres Strait Islander peoples healthcare experiences

Jones

Heslop

Harrison

2020

Int J Equity Health

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Background It is well established that Aboriginal and Torres Strait Islander populations face considerable health inequities, exacerbated by poorer healthcare quality. Patient experience is recognised as a major contributing factor to healthcare quality and outcomes, therefore, enriched knowledge of the patient experiences of Aboriginal and Torres Strait Islander populations is critical to redress health inequities. This review synthesises evidence of the healthcare experiences amongst Aboriginal and Torres Strait Islander patients through a metanarrative synthesis of qualitative literature. Methods A systematic search strategy was developed and applied to six electronic databases between January 2000 and July 2019. Titles and abstracts were screened before applying the inclusion criteria to full text articles. A meta-narrative synthesis was undertaken. Results Fifty-four publications were identified from four research traditions; each with a unique conceptualisation of patient experience. Three themes emerged that demonstrate Aboriginal and Torres Strait Islander patient experiences are informed by 1) beliefs about wellbeing and healthcare provision, 2) their level of trust in the healthcare system, and 3) individual and community health system interactions. The findings highlight a range of aspects of patient experience that were important to participating Aboriginal and Torres Strait Islanders in the included studies but not captured currently in health system surveys. Conclusion This review highlights the influence of beliefs about health and wellbeing on the patient experience amongst Aboriginal and Torres Strait Islander populations in the Australian health system. Patient experiences were informed by past experience and their trust in the health system. The different factors influencing patient experience and the gravity of their influence must be considered in current approaches to capturing patient experience data collection methods. Trial registration PROSPERO (ID: CRD42019134765).

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Seldom heard voices: a meta-narrative systematic review of Aboriginal and Torres Strait Islander peoples healthcare experiences

Jones

Heslop

Harrison

2020

Int J Equity Health

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“…We define the concept of storytelling as participant-driven and created story-centered narratives [ 15 ]. Storytelling approaches can include, but are not limited to, sharing circles that invite a story [ 18 ], digital storytelling [ 5 ], yarning as a conversational process [ 25 ], Pūrākau [ 40 ], and storytelling in narrative inquiry [ 23 ]. A more detailed list of relevant storytelling approaches and terminology will be gathered through our Relational Network discussions and our literature review.…”

Section: Methodsmentioning

confidence: 99%

Elevating the uses of storytelling approaches within Indigenous health research: a critical and participatory scoping review protocol involving Indigenous people and settlers

Gazan¹,

Bennett

Buss

et al. 2020

Syst Rev

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Background There is a complicated and exploitative history of research with Indigenous peoples and accompanying calls to meaningfully and respectfully include Indigenous knowledge in healthcare. Storytelling approaches that privilege Indigenous voices can be a useful tool to break the hold that Western worldviews have within the research. Our collaborative team of Indigenous and non-Indigenous researchers, and Indigenous patients, Elders, healthcare providers, and administrators, will conduct a critical participatory, scoping review to identify and examine how storytelling has been used as a method in Indigenous health research. Methods Guided by two-eyed seeing, we will use Bassett and McGibbon’s adaption of Arksey and O’Malley’s scoping review methodology. Relevant articles will be identified through a systematic search of the gray literature, core Indigenous health journals, and online databases including Scopus, MEDLINE, Embase, CINAHL, AgeLine, Academic Search Complete, Bibliography of Native North Americans, Canadian Reference Centre, and PsycINFO. Qualitative and mixed-methods research articles will be included if the researchers involved Indigenous participants or their healthcare professionals living in Turtle Island (i.e., Canada and the USA), Australia, or Aotearoa (New Zealand); use storytelling as a research method; focus on healthcare phenomena; and are written in English. Two reviewers will independently screen titles/abstracts and full-text articles. We will extract data, identify the array of storytelling approaches, and critically examine how storytelling was valued and used. An intensive collaboration will be woven throughout all review stages as academic researchers co-create this work with Indigenous patients, Elders, healthcare professionals, and administrators. Participatory strategies will include four relational gatherings throughout the project. Based on our findings, we will co-create a framework to guide the respectful use of storytelling as a method in Indigenous health research involving Indigenous and non-Indigenous peoples. Discussion This work will enable us to elucidate the extent, range, and nature of storytelling within Indigenous health research, to critically reflect on how it has been and could be used, and to develop guidance for the respectful use of this method within research that involves Indigenous peoples and settlers. Our findings will enable the advancement of storytelling methods which meaningfully include Indigenous perspectives, practices, and priorities to benefit the health and wellbeing of Indigenous communities. Systematic review protocol registration Open Science Framework (https://osf.io/rvf7q)

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Yarning to reduce take own leave events in First Nations patients presenting to the Emergency Department‐presenting the qualitative themes and co‐design of the Deadly RED project

Davison,

Chan,

Clarke

et al. 2023

Health Prom J of Aust

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Issue AddressedThe Deadly RED redesign and implementation research aimed to improve take own leave (TOL) rates within a Queensland emergency department by providing a culturally competent care pathway.MethodologyA mixed methods pre/post evaluation of the feasibility, acceptability and usability of the Deadly RED pathway for First Nations patients presenting to ED was performed. This pathway combined early welcome and information sharing, introduction of screening and follow up for patients who TOL and enhanced access to alternative community healthcare. Yarning circles facilitated co‐design of research protocols and tools while a purposefully designed research Yarn enhanced understanding of the ‘story’ of the people. Qualitative analysis of Yarns allowed deductive themes to be extracted. A Participatory Action Research (PAR) approach and Indigenous research methodology involving First Nations people in design, knowledge sharing and joint ownership of results was used.ResultsCommon themes from the 85 yarns included the negative impact of long waiting times and positive impact from wholistic care. Unique themes identified included interpretation of waiting room placement and paracetamol prescription as a dismissal. Knowledge dissemination from yarning drove improvements in communications and processes to promote treatment completion resulting in elimination of these themes in post implementation yarns. Eighteen patients who had TOL were included in the post implementation yarns, however only eight of these believed that their treatment was incomplete.ConclusionThe use of yarning for consumer engagement has allowed deeper understanding of the reasons for TOL in First Nations emergency patients. The reciprocal knowledge sharing has guided targeted improvements in wholistic emergency care and communication resulting in First Nations patients feeling their care is complete even when the ‘number’ reports otherwise.So What?Indigenous Research methodology including yarning with First Nations patients suggests alternative engagement methods to guide enhanced quality of care monitoring for ED presentations.

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Indigenous cardiac patients’ and relatives’ experiences of hospitalisation: A narrative inquiry

Cited by 16 publications

References 30 publications

Seldom heard voices: a meta-narrative systematic review of Aboriginal and Torres Strait Islander peoples healthcare experiences

Seldom heard voices: a meta-narrative systematic review of Aboriginal and Torres Strait Islander peoples healthcare experiences

Elevating the uses of storytelling approaches within Indigenous health research: a critical and participatory scoping review protocol involving Indigenous people and settlers

Yarning to reduce take own leave events in First Nations patients presenting to the Emergency Department‐presenting the qualitative themes and co‐design of the Deadly RED project

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