2024
DOI: 10.1038/s41746-024-01070-3
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Indigenous data governance approaches applied in research using routinely collected health data: a scoping review

Teyl Engstrom,
Elton H. Lobo,
Kristie Watego
et al.

Abstract: Globally, there is a growing acknowledgment of Indigenous Peoples’ rights to control data related to their communities. This is seen in the development of Indigenous Data Governance standards. As health data collection increases, it’s crucial to apply these standards in research involving Indigenous communities. Our study, therefore, aims to systematically review research using routinely collected health data of Indigenous Peoples, understanding the Indigenous Data Governance approaches and the associated adva… Show more

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