Indigenous data sovereignties and data sharing in biological anthropology

Tsosie, Krystal S.; Yracheta, Joseph; Kolopenuk, Jessica; Smith, Rick W. A.

doi:10.1002/ajpa.24184

Cited by 36 publications

(20 citation statements)

References 19 publications

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“…Furthermore, the nature of analyses (whether they are destructive or passive), and the ownership of data and human remains, are leading to ongoing discussions over the power dynamics of who constructs narratives of the past (e.g. Fuentes 2020; Tsosie et al 2021). Thus, investigations of fetalinfant individuals are not only particularly emotive, given contemporary perspectives regarding the vulnerability of these individuals, but must ensure that they are cognizant of the archaeological/historical context of these collections.…”

Section: Bringing Up Babymentioning

confidence: 99%

New Prospects for Investigating Early Life-Course Experiences and Health in Archaeological Fetal, Perinatal and Infant Individuals

Hodson

2021

Childhood in the Past

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Children have become firmly embedded within multidisciplinary investigations of young lives, yet within these studies, the youngest members of past populations persist in lingering on the margins of discussion. Fetal, perinatal and infant lives are tangential; unable to articulate their thoughts and feelings, with their position and role in society typically a product of parental or wider social vectors, these individuals, their experiences, and their roles are complex to decipher. Yet as keepers of both biological and social dataregarding themselves, their mothers and wider community dynamicsthese individuals are central in developing comprehensive narratives of infanthood in the past. However, a lack of methodologies for investigating these young lives has been a constant limitation. With recent advancements able to further our understanding of these early life courses, it is now pertinent to focus on fetal, perinatal and infant lives further.

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Section: Bringing Up Babymentioning

confidence: 99%

New Prospects for Investigating Early Life-Course Experiences and Health in Archaeological Fetal, Perinatal and Infant Individuals

Hodson

2021

Childhood in the Past

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“…Settler-colonial recognition of these sovereignties are usually limited to, in the US context, the 574 federally recognized tribes via “nation-to-nation” policies. However, we recognize that data sovereignties are intrinsic to Indigenous peoples' right to self-govern ( 14 ) and must therefore extend beyond colonially-defined arbitrations of geographic state to include urban-displaced citizens of tribal nations and Indigenous groups of special and/or unrecognized status. Further, while some approaches to collecting data from Indigenous peoples try to leverage “individual vs. group” dynamics as a means of circumventing Indigenous genomic data sovereignties ( 13 , 15 ), it is up to the communities to define data access and use of biological and genomic information collected from their people.…”

Section: Indigenous Genomic Data Sovereigntiesmentioning

confidence: 99%

“…Further, while some approaches to collecting data from Indigenous peoples try to leverage “individual vs. group” dynamics as a means of circumventing Indigenous genomic data sovereignties ( 13 , 15 ), it is up to the communities to define data access and use of biological and genomic information collected from their people. While we use community-engaged models as a basis for the suggestions on equitable data use and sharing, we argue for a more empowered approach that centers Indigenous data decision authorities ( 14 ) first and foremost.…”

Section: Indigenous Genomic Data Sovereigntiesmentioning

confidence: 99%

“…In university-sponsored research, it is usually the institution that reviews and ensures compliance of DUAs according to funding regulations. For federally-funded data collection, often DUAs favor deposition of data into a central repository under the ethic of open or communal research use which can incongruent with Indigenous data sovereignties ( 14 ). Since federal data repositories are outside the governance and oversight of tribes, there have been tensions in negotiating the need to protect and recognize Indigenous data sovereignties while still supporting research collaborations ( 32 ).…”

Section: Need For Equitable Data Use Agreementsmentioning

confidence: 99%

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Empowering Equitable Data Use Partnerships and Indigenous Data Sovereignties Amid Pandemic Genomics

Haring

Blanchard

Korchmaros

et al. 2021

Front. Public Health

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The COVID-19 pandemic has inequitably impacted Indigenous communities in the United States. In this emergency state that highlighted existing inadequacies in US government and tribal public health infrastructures, many tribal nations contracted with commercial entities and other organization types to conduct rapid diagnostic and antibody testing, often based on proprietary technologies specific to the novel pathogen. They also partnered with public-private enterprises on clinical trials to further the development of vaccines. Indigenous people contributed biological samples for assessment and, in many cases, broadly consented for indefinite use for future genomics research. A concern is that the need for crisis aid may have placed Indigenous communities in a position to forego critical review of data use agreements by tribal research governances. In effect, tribal nations were placed in the unenviable position of trading short-term public health assistance for long-term, unrestricted access to Indigenous genomes that may disempower future tribal sovereignties over community members' data. Diagnostic testing, specimen collection, and vaccine research is ongoing; thus, our aim is to outline pathways to trust that center current and future equitable relationship-building between tribal entities and public-private interests. These pathways can be utilized to increase Indigenous communities' trust of external partners and share understanding of expectations for and execution of data protections. We discuss how to navigate genomic-based data use agreements in the context of pathogen genomics. While we focus on US tribal nations, Indigenous genomic data sovereignties relate to global Indigenous nations regardless of colonial government recognition.

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“…To derive a contextually appropriate consent procedure, community leaders and local collaborators should be included, and community members could be interviewed during pilot investigations. All the while, researchers should be attentive to data sovereignty (an issue raised in biological anthropology that applies more broadly, see Tsosie et al 2020).…”

mentioning

confidence: 99%

Commentary on the beyond WEIRD special issue: The importance of open research practices to empirical research in the evolutionary social sciences

Kenny

2021

Evolution and Human Behavior

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The importance of open research practices to the evolutionary social sciences has been underscored of late (e.g. Beheim 2016; Kavanagh and Kapitány 2021). The "Beyond WEIRD" special issue has exemplary demonstrations of several practices, including, but not limited to, data archiving, code sharing, and open materials. Here, I focus on these three open research practices. I reiterate their benefits for comparative cross-cultural research in the evolutionary social sciences. I also highlight some of the challenges researchers might face in their implementation, and provide pointers to possible solutions. Finally, I list elements of open research that merit greater discussion in this area of research. For brevity, the focus here is on experimental work, although open research practices apply to other empirically based cross-cultural research more broadly.First, how common is the implementation of open research practices in the evolutionary social sciences? An indication is provided by a recent survey of the social learning literature, including cultural evolution and evolutionary psychology, conducted by Minocher et al. (2020). The authors were able to reproduce one in four results from 1955 to 2018, i.e. to re-derive the results using the same data and methods as in the original research. Low reproducibility was primarily due to unavailable, incomplete, or ambiguous data, as well as unclear analytic pipelines, an issue compounded by a lack of scripting in a statistical language such as R. However, estimated reproducibility was around 70% for 2018. It appears that open research practices are increasingly being adopted -a shift attributable to changes in academic norms, journal requirements, and technological capabilities.There are several advantages to open data, code, and materials (Towse et al. 2020). Innovation is promoted through the re-use of data and code. Open practices provide opportunities for collaboration; minimally, they allow researchers not part of large research programmes to integrate work. Generally, openness ensures the transparency and credibility of the scientific record. As such, these practices should be adopted, unless opting out can be justified.Open data can facilitate cross-cultural comparisons and meta-analyses, and can help situate a primary study within the broader literature. With researchers encouraged to expand samples beyond students from "WEIRD" contexts, MTurkers, and individuals from "small-scale societies", public data will allow comparison across populations (Apicella and Barrett 2016;Milfont and Klein 2018). Townsend et al. (2020) is an illustration of the type of cross-cultural research that could draw upon open data. The authors demonstrated that sharing in a dictator game

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Indigenous data sovereignties and data sharing in biological anthropology

Cited by 36 publications

References 19 publications

New Prospects for Investigating Early Life-Course Experiences and Health in Archaeological Fetal, Perinatal and Infant Individuals

New Prospects for Investigating Early Life-Course Experiences and Health in Archaeological Fetal, Perinatal and Infant Individuals

Empowering Equitable Data Use Partnerships and Indigenous Data Sovereignties Amid Pandemic Genomics

Commentary on the beyond WEIRD special issue: The importance of open research practices to empirical research in the evolutionary social sciences

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