Indonesian mothers' beliefs on caring practices at home for preterm babies after hospital discharge: A qualitative study

Hariati, Suni; Sutomo, Retno; McKenna, Lisa; Reisenhofer, Sonia; Lusmilasari, Lely; Febriani, Andi Dwi Bahagia

doi:10.1111/jspn.12330

Cited by 11 publications

(8 citation statements)

References 37 publications

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“…Similar to our findings, the community’s perception of preterm infants, including myths and taboos about small babies, and strong views about how to provide care were identified as barriers to adequate care of preterm infants at home in a study from Indonesia [ 30 ]. Thus, in addition to support for caregivers, it is important to improve community awareness about preterm births through appropriate public health messaging as community’s perception and curiosity about the preterm infant are known to adversely influence parents’ experiences of care [ 20 ].…”

Section: Discussionsupporting

confidence: 84%

“…A network of support in the community was essential for continuity of care and adequate information [ 20 ]. Reassurance from healthcare providers in baby clinics and support from friends and family were identified as key determinants of mothers’ improved ability and confidence in caring for her baby [ 20 , 30 ]. Most mothers found it hard to adjust and felt the need for regular support during the first week at home after discharge [ 20 ].…”

Section: Discussionmentioning

confidence: 99%

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Transition from hospital to home care for preterm babies: A qualitative study of the experiences of caregivers in Uganda

Nalwadda

Tusubira

Nambuya

et al. 2023

PLOS Glob Public Health

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Improving care for preterm babies could significantly increase child survival in low-and middle income countries. However, attention has mainly focused on facility-based care with little emphasis on transition from hospital to home after discharge. Our aim was to understand the experiences of the transition process among caregivers of preterm infants in Uganda in order to improve support systems. A qualitative study among caregivers of preterm infants in Iganga and Jinja districts in eastern Uganda was conducted in June 2019 through February 2020, involving seven focus group discussions and five in-depth interviews. We used thematic-content analysis to identify emergent themes related to the transition process. We included 56 caregivers, mainly mothers and fathers, from a range of socio-demographic backgrounds. Four themes emerged: caregivers’ experiences through the transition process from preparation in the hospital to providing care at home; appropriate communication; unmet information needs; and managing community expectations and perceptions. In addition, caregivers’ views on ‘peer-support’ was explored. Caregivers’ experiences, and their confidence and ability to provide care were related to preparation in the hospital after birth and until discharge, the information they received and the manner in which healthcare providers communicated. Healthcare workers were a trusted source of information while in the hospital, but there was no continuity of care after discharge which increased their fears and worries about the survival of their infant. They often felt confused, anxious and discouraged by the negative perceptions and expectations from the community. Fathers felt left-out as there was very little communication between them and the healthcare providers. Peer-support could enable a smooth transition from hospital to home care. Interventions to advance preterm care beyond the health facility through a well-supported transition from facility to home care are urgently required to improve health and survival of preterm infants in Uganda and other similar settings.

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Section: Discussionsupporting

confidence: 84%

Section: Discussionmentioning

confidence: 99%

Transition from hospital to home care for preterm babies: A qualitative study of the experiences of caregivers in Uganda

Nalwadda

Tusubira

Nambuya

et al. 2023

PLOS Glob Public Health

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“…We found that cultural beliefs and practices were a barrier to immediate KMC practice echoing findings from studies of KMC among stable neonates (31, 40, 41). Although health education for mothers on the benefits of KMC tended to improve on the acceptability of the practice(22, 31), mothers tend not to have enough power in their family to repudiate their family members’ beliefs (42). Given that parents of preterm babies desire more information than what is provided normally (43), investing in health education of these parents is likely to dispel the belief surrounding the survival of these preterm infants and thus promote KMC prior to stability.…”

Section: Discussionmentioning

confidence: 99%

Kangaroo Mother Care prior to clinical stabilisation: Implementation barriers and facilitators reported by caregivers and health care providers in Uganda

Tumukunde,

Katongole,

Namukwaya

et al. 2024

Preprint

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Kangaroo mother care (KMC) is an evidence-based method to improve newborn survival. However, scale-up even for stable newborns has been slow, with reported barriers to implementation. We examined facilitators and barriers to initiating KMC before stabilisation amongst neonates recruited to the OMWaNA study in Uganda. A qualitative sub-study was conducted during the OMWaNA randomized controlled trial examining the mortality effect of KMC prior to stabilisation amongst newborns (700-2000g). At the four trial site hospitals, focus group discussions (FGDs) were conducted with caregivers, and separately with healthcare providers and in-depth interviews (IDIs) with caregivers (admitted/recently discharged), and key informant interviews (KII) with hospital administrators/neonatal healthcare providers. The WHO Building Blocks was used to guide thematic analysis. Eight FGDs (4 caregivers, 4 healthcare workers), 41 caregiver IDIs (26 mothers, 8 grandmothers and 7 fathers) and 23 KIIs were conducted. Key themes based on the building blocks were family and community support and involvement, health workforce, medical supplies and commodities, infrastructure and design, financing, and health facility leadership. We found availability of an additional family member in the hospital, and support from healthcare workers, were facilitators for KMC before stability. The caregiver’s positive attitude towards KMC facilitated KMC practice but was impeded by the lack of knowledge on the benefits of KMC or how to perform it. Implementation barriers included: Fear of inadvertently causing harm to the newborn, inadequate space to perform KMC in the neonatal care unit and a limited number of trained healthcare workers coupled with insufficient medical supplies. In the Ugandan government hospital setting, the presence of a family member in the hospital, adequate provision of healthcare workers knowledgeable in supporting KMC prior to stability, and adequate space for KMC beds where neonatal care is being delivered, can enable implementation of KMC before stability.

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“…Many children's hospitals have implemented a one-visit policy with varying degrees of restrictions, such as allowing one parent to accompany the child in the hospital or requiring families to choose a single parent to be admitted to the hospital during the stay (Indonesian Pediatric Society, 2020; Kementrian Kesehatan RI, 2020;Raphael et al, 2021). However, family-centered care (FCC) should be the central philosophy of discharge preparation by enhancing motherchildren interaction, which can improve children's health during hospitalization (Hariati et al, 2021(Hariati et al, , 2022. Therefore, the care of children with COVID-19 needs to continue prioritizing FCC.…”

Section: Discussionmentioning

confidence: 99%

Hospitalized children with COVID-19 confirmed: A pilot study

Hariati

Erfina

Nurmaulid

et al. 2023

Pediomaternal Nurs. J.

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Introduction: The number of children confirmed with COVID-19 in Indonesia remains high compared to other countries (12.2%). 13.6% of all cases are hospitalized in quarantine rooms. This study aims to describe children with confirmed COVID-19 who have been hospitalized in Makassar, Indonesia.Methods: This pilot study was conducted in Makassar City, one of the cities in Indonesia with a high number of COVID-19 cases, in October 2021. A total of 25 children participated through consecutive sampling. This study consisted of children hospitalized in January-August 2021 who had confirmed COVID-19 and were admitted to quarantine or non-quarantine rooms. Inclusion criteria were children under 18 years old and parents who volunteered to complete the questionnaire based on COVID-19 prevention and control guidelines. The questionnaire focused on child and parent characteristics, COVID-19 symptoms, and the number of confirmed cases. Results: Of the 25 children hospitalized with confirmed COVID-19, 76% were hospitalized in quarantine rooms, 72% were boys, and their ages ranged from 0 to 13 years. The average number of siblings was 2.64±1.63, and the average length of hospital stay was 7.88±3.03 days. The most common symptoms were fever (68%), cough (44%), and diarrhea (28%). The majority of children had two symptoms (40%), were confirmed with COVID-19 once (84%), and were hospitalized one time (95%).Conclusions: The main characteristics of hospitalized children with confirmed COVID-19 are non-school age and boys. They have multiple symptoms, and fever is the most common. A holistic approach to treating all children hospitalized with COVID-19 should be taken. This study can be used as a baseline for formulating strategies and guidelines for preventing prolonged effects and treating hospitalized children with COVID-19.Keywords: COVID-19 in children; confirmed children; COVID-19 symptom; hospitalized children

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Indonesian mothers' beliefs on caring practices at home for preterm babies after hospital discharge: A qualitative study

Cited by 11 publications

References 37 publications

Transition from hospital to home care for preterm babies: A qualitative study of the experiences of caregivers in Uganda

Transition from hospital to home care for preterm babies: A qualitative study of the experiences of caregivers in Uganda

Kangaroo Mother Care prior to clinical stabilisation: Implementation barriers and facilitators reported by caregivers and health care providers in Uganda

Hospitalized children with COVID-19 confirmed: A pilot study

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