Inferior health-related quality of life and psychological well-being in immigrant cancer survivors: A population-based study

Butow, Phyllis; Aldridge, Lynley; Bell, Melanie L.; Sze, Ming; Eisenbruch, Maurice; Jefford, Michael; Schofield, Penelope; Girgis, Afaf; King, Madeleine; Duggal-Beri, Priya; McGrane, Joshua A.; Goldstein, David

doi:10.1016/j.ejca.2013.01.011

Cited by 59 publications

(68 citation statements)

References 30 publications

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“…A recent metaanalysis reported clinically significantly higher distress and worse health-related quality of life (QoL) in minority Hispanic patients in the USA versus majority cancer patients [1]. We have similarly found clinically significantly worse QoL and depression in first generation Arabic, Chinese and Greek speaking Australian immigrant cancer survivors [2]. Clearly there is a need to better meet the needs of this vulnerable group.…”

Section: Introductionsupporting

confidence: 53%

Unmet needs in immigrant cancer survivors: a cross-sectional population-based study

Butow

Bell

Aldridge

et al. 2013

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Section: Introductionsupporting

confidence: 53%

Unmet needs in immigrant cancer survivors: a cross-sectional population-based study

Butow

Bell

Aldridge

et al. 2013

Support Care Cancer

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“…Potentially eligible participants were identified from clinic lists using surnames as an indicator of ethnicity and confirmed by oncologists. Immigrants' surnames were entered into a surname database developed by our research group to identify people of probable or possible Arabic, Chinese, or Greek ancestry [6]. They were then approached in person at clinics by a bilingual research assistant, who confirmed patients' birthplaces and self-identified ethnicities, obtained informed consent, and provided research materials in patients' preferred languages.…”

Section: Methodsmentioning

confidence: 99%

“…In a study evaluating the impact of both migrancy and ethnicity on PRO in Australian cancer survivors [6], we found inferior psychological and quality of life (QoL) outcomes in migrants but no differences between ethnic subgroups. This study identified two common predictors of PROs across the study's cultural subgroups: language difficulty and problems understanding the health system.…”

Section: Introductionmentioning

confidence: 99%

Migrant Health in Cancer: Outcome Disparities and the Determinant Role of Migrant-Specific Variables

et al. 2015

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Background. Multiethnic societies face challenges in delivering evidence-based culturally competent health care. This study compared health-related quality of life and psychological morbidity in a hospital-based sample of first-generation migrants andAustralian-bornAnglocancerpatients,controllingforpotential confounders related to migrant status. Further, it explored the relative contribution of ethnicity versus migrant-related variables. Methods. Eligible participants, recruited via 16 oncology clinics in Australia, included those over the age of 18, diagnosed with cancer (any type or stage) within the previous 12 months and having commenced treatment at least 1 month previously. Results. In total, 571 migrant patients (comprising 145 Arabic, 248 Chinese, and 178 Greek) and a control group of 274 AngloAustralian patients participated. In multiple linear regression models adjusted for age, sex, education, marital status, socioeconomic status, time since diagnosis, and type of cancer, migrants

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“…These have been described elsewhere [8,9]. Briefly, the first was registry based (N=596, response rate=26%), and the second was hospital based (N=845, response rate=61%) and included participants with a mix of cancer diagnoses.…”

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confidence: 99%

Informatively missing quality of life and unmet needs sex data for immigrant and Anglo-Australian cancer patients and survivors

2013

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Purpose:Although cancer can seriously affect peoples' sexual well-being, survivors and patients may be reluctant to answer questions about sex. This reluctance may be stronger for immigrants. This study aimed to investigate missing sexual data rates and predictors of missingness in two large studies on immigrants and Anglo-Australian controls with cancer; and to investigate whether those with missing sex data may have worse sexual outcomes than those with complete data. Methods:We carried out two studies aimed at describing the quality of life (QoL) and unmet needs amongst Arabic, Chinese and Greek immigrants versus Anglo-Australians cancer survivors (n=596, recruited from cancer registries) and patients (n=845). Logistic regression was used to model the probability of having missing sex data in either of the questionnaires. We compared the mean of the unmet sex needs responses of those who had missing QoL sex data (but not needs) to those who had completed both, and vice versa. Results:Missing sexual data rates were as high as 65%, with immigrants more likely to skip sex items than Anglo-Australians (p=0.02 for registry study, p <0.0001 for hospital study). Women, older participants and participants with more advanced disease had increased odds of missingness. There was evidence that data were informatively missing. Additionally, the questionnaire which stated that the sexual questions are optional had higher missing data rates. Conclusion:High missing data rates and informatively missing data can lead to biased results. Using the questionnaires that state that they may skip sex items may lead to an underestimation of sexual problems or an overestimation of quality of life.

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Inferior health-related quality of life and psychological well-being in immigrant cancer survivors: A population-based study

Cited by 59 publications

References 30 publications

Unmet needs in immigrant cancer survivors: a cross-sectional population-based study

Unmet needs in immigrant cancer survivors: a cross-sectional population-based study

Migrant Health in Cancer: Outcome Disparities and the Determinant Role of Migrant-Specific Variables

Informatively missing quality of life and unmet needs sex data for immigrant and Anglo-Australian cancer patients and survivors

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