Influence of Childhood Scleroderma on Physical Function and Quality of Life

Baildam, Eileen; Ennis, Holly; Foster, Helen; Shaw, Lindsay; Chieng, Alice; Kelly, Jane; Herrick, Ariane L.; Richards, Helen L.

doi:10.3899/jrheum.100447

Cited by 36 publications

(49 citation statements)

References 21 publications

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“…One interpretation of this lack of correlation among children may be that this group is unable to express the impact on life quality of morphea via the CDLQI. A recent study by Baildam et al 9 implemented 4 instruments (Child Health Assessment Questionnaire, CDLQI, Child Quality of Life Questionnaire, and Child Health Questionnaire) and found moderate impact of morphea on QOL of pediatric patients. This implies that adults and children do not experience their diseases in the same way, and other patient- and parent-based instruments should be investigated in pediatric morphea.…”

Section: Discussionmentioning

confidence: 99%

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Correlates of self-reported quality of life in adults and children with morphea

Das

Bernstein

Jacobe

2014

Journal of the American Academy of Dermatology

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Background Determining a disease's impact on life quality is important in clinical decision making, research, and resource allocation. Determinants of quality of life (QOL) in morphea are poorly understood. Objective We sought to ascertain demographic and clinical variables correlated with negative impact on self-reported QOL in morphea. Methods We conducted a cross-sectional survey of the Morphea in Adults and Children cohort. Results Symptoms (pruritus and pain) and functional impairment were correlated with decreased QOL in children and adults. This was true in both sexes and was independent of subtype and age. Patient-reported QOL correlated with physician-based measures of disease severity in adults, but not in children. Patients with linear and generalized morphea had the greatest impact on QOL. Limitations Small sample size is a limitation. Conclusion Symptoms and functional impairment were determinants of impaired life quality in both children and adults independent of morphea subtype. These results suggest that clinicians should consider suppressing the accumulation of new lesions (when rapidly accumulating) and symptoms (pain and pruritus) in the treatment of patients with morphea.

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Section: Discussionmentioning

confidence: 99%

“…9-11 However, current studies have small sample size and limited information about patient demographics or clinical features. Even fewer studies examine the impact of morphea in adults.…”

mentioning

confidence: 99%

Correlates of self-reported quality of life in adults and children with morphea

Das

Bernstein

Jacobe

2014

Journal of the American Academy of Dermatology

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“…Baildam et al and Das et al administered the CDLQI to 24 and 75 children with morphea, respectively. Only the CDLQI total score was discussed.…”

Section: Resultsmentioning

confidence: 99%

Body Image in Children with Morphea: A Systematic Review

Mills

Fox

Malcarne

2015

Pediatric Dermatology

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“…The absence of a proxy dermatology‐specific HRQoL questionnaire for use in children under 5 years with skin conditions is a major drawback. This has resulted in attempts to either use a disease‐specific proxy questionnaire as dermatology specific or to use a dermatology‐specific proxy tool for children under the minimal age limit for that questionnaire or to skip assessment of HRQoL in this age group altogether …”

Section: Types Of Hrqol Measures Availablementioning

confidence: 99%

EADV Taskforce's recommendations on measurement of health‐related quality of life in paediatric dermatology

Chernyshov

Korte

Tómas-Aragonés

et al. 2015

Acad Dermatol Venereol

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The impact of skin conditions in children can profoundly affect a variety of lifestyle parameters that may have important personal consequences. Several national guidelines for children with different skin conditions recommend health-related quality of life (HRQoL) measurement as part of the assessment process. HRQoL also plays an important role in educational programmes for children with chronic skin conditions and their parents. In this paper, the EADV Taskforce on Quality of life provides researchers and clinicians data on the achievements in this field, as well as the peculiarities of HRQoL assessment in children, and an overview of the most commonly used and validated generic, dermatology-specific and disease-specific instruments related to paediatric dermatology. Finally, an analysis of the current problems of HRQoL assessment in children with skin diseases and directions for future studies are also discussed. The main goal of this paper is to help dermatologists decide which HRQoL instrument to use with children, depending on the context.

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Influence of Childhood Scleroderma on Physical Function and Quality of Life

Abstract: scleroderma had only a moderate effect on quality of life and physical function as measured by the 4 validated instruments. Although a small number of children reported greater impairment, this is an encouraging finding, given its potential disfiguring and debilitating effects.

Cited by 36 publications

References 21 publications

Correlates of self-reported quality of life in adults and children with morphea

Correlates of self-reported quality of life in adults and children with morphea

Body Image in Children with Morphea: A Systematic Review

EADV Taskforce's recommendations on measurement of health‐related quality of life in paediatric dermatology

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