Influence of truth disclosure on quality of life in cancer patients

Tanida, Noritoshi; Yamamoto, N.; Sashio, Hiroko; Nakamura, Yoshihiro; Sakagami, Takashi; Sawada, Yukio; Shimoyama, Takashi

doi:10.1007/bf00539218

Cited by 12 publications

(15 citation statements)

References 11 publications

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“…The amount of information wanted by people with cancer varies [40][41][42]. Moreover, there are a number of different topics for which information may be required [43].…”

Section: Discussionmentioning

confidence: 99%

Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer

et al. 2010

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Background: Needs assessment is a valuable approach for determining the way health and social services allocate resources to people with cancer and their caregivers.Aim: To assess the reliability, validity and acceptability of a Needs Assessment Tool (NAT) in a palliative care clinical setting.Methods: Psychometric properties of the NAT were initially explored in a pilot study involving filmed simulated advanced cancer patient and caregiver consultations. Further testing was undertaken in a clinical setting to determine the inter-rater reliability, validity and feasibility of the NAT.Results: The results of the pilot study suggested good reliability and acceptability in a simulated setting. Further testing indicated that the patient daily living item was positively correlated with the Resource Utilisation Groups-Activities of Daily Living (r 5 0.74) and negatively correlated with the Australian Karnofsky Performance Scale (r 5 À0.84). Prevalence-and bias-adjusted kappa values also indicated adequate agreement between Palliative Care Problem Severity Score items and the patient physical item (0.48), psychological item (0.45) and caregiver well-being item (0.42).Conclusions: Needs assessment not only facilitates the identification of people who have specific concerns or are dissatisfied with some aspect of their care, but also determines the person's desire for assistance and involvement with services. The NAT is a highly acceptable and efficient tool that can be used by health professionals with a range of clinical expertise to identify individuals' needs, thereby enabling a better match of interventions of specialist services more closely linked to needs.

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“…The amount of information wanted by people with cancer varies [40][41][42]. Moreover, there are a number of different topics for which information may be required [43].…”

Section: Discussionmentioning

confidence: 99%

Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer

et al. 2010

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“…Our research' results implicated disclosure of cancer diagnosis, partly informed of or lack of it, had no significant impact on health related quality of life in cancer patients. Therefore it indicated that physicians could inform the patients of their illnesses and educate them, which would make them understand the cancer well and could get the families, patients and the doctors in charge together to make the personalized and systematic therapy plans and evaluate the prognosis accurately [17] .…”

Section: Implications For Practicementioning

confidence: 99%

The impact of informing diagnosis on quality of life in patients with cancer: A systematic review and meta-analysis

Wan

Luo

MVOGO

et al. 2020

Preprint

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Abstract Objective To assess the impact of informing diagnosis and disease status on the quality of life in patients with cancer Method We searched the follow databases, Pubmed, CENTRAL(Cochrane Central Register of Controlled Trials), PsycINFO, WEB OF SCIENCE, Embase, CBM (Chinese Biomedical Literature database), WANFANG database (Chinese Medicine Premier), and CNKI (China National Knowledge Infrastructure). And the terms used are as follows: neoplasm, cancer, tumour, tumor, carcinoma, disclosure, truth telling, breaking bad news, knowledge, knowing, awareness, quality of life, QOL. Pairs of reviewers independently screened documents and extracted the data. Meta-analysis was conducted by Revman 5.0 software. Results There were 11740 records retrieved from databases and 23 studies were included finally. Meta-analysis of informed and uniformed cancer patients revealed no differences in both the general quality of life and symptoms of fatigue, pain, dyspnea, insomnia, appetite loss and diarrhea (P>0.05). Additionally, no difference in physical function, role function, cognitive activity and emotional function between the above 2 groups(P>0.05) were found. On the vitality area, the patients who were totally informed about their diagnosis had higher vitality than the uniformed patients. However, patients aware about their illnesses seemed to get lower scores in social function. Between the partly informed of the diagnosis and uninformed cancer patients, there were no differences in general quality of life, function domains and disease-related symptoms (P>0.05). Conclusion Informing the cancer patients their diagnosis may not have a bad effect on their quality of life. PROSPERO registration number CRD42017060073.

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“…Most of these discussions are from medical professionals. They argue this issue from such perspectives as patient’s right, patient’s quality of life, patient–family relationship, the less individualistic nature of Japanese people, or physicians’ perceptions about life and death ( Japan Medical Association, 1989; Hattori et al , 1991 ; McDonald‐Scott et al , 1992 ; Miyaji, 1994; Ikegami & Campbell, 1995; Tanida, 1996; Aoki et al , 1997 ; Asai et al , 1997 ; Asai & Fukui, 1997; Asai et al , 1998 ; Tanida et al , 1998 ). From these discussions, one can observe that Japan has been struggling with this problem and finds itself caught between the continuous inflow of Western value concepts and an attempt to retain traditional Japanese ways of thinking.…”

Section: Literature Reviewmentioning

confidence: 99%

Japanese nurses’ perceptions about disclosure of information at the patients’ end of life

Konishi¹,

Davis²

1999

Nursing & Health Sciences

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Information disclosure at the end of life is one of the most debated ethical issues in Japan. This paper, using data from a larger questionnaire survey in which 147 Japanese nurses participated, describes nurses' perceptions about this issue. The nurses perceived that non-disclosure of impending death information to patients was the norm in Japan due to its traditional values. This non-disclosure of information has various impacts on clinical nurses. Tension was evident between the Japanese traditional concepts supported by some nurses and the shift toward Western cultural and ethical values supported by other nurses. The nurses confronted uninformed patients who became suspicious, isolated, angry, or died unprepared for their life's ending. The nurses were placed in the middle between the patient and the family, as nurses became keepers of family secrets, or between nurses' ethical obligations to the patient and those of the institution. The nurses had the belief that at the patient's end of life, it is important to change health professionals' attitude from curing to caring.

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Influence of truth disclosure on quality of life in cancer patients

Cited by 12 publications

References 11 publications

Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer

Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer

The impact of informing diagnosis on quality of life in patients with cancer: A systematic review and meta-analysis

Japanese nurses’ perceptions about disclosure of information at the patients’ end of life

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