Informal and formal care among persons with dementia immediately before nursing home admission.

Ydstebø, Arnt Egil; Benth, Jūratė Šaltytė; Bergh, Sverre; Selbæk, Geir; Vossius, Corinna

doi:10.21203/rs.2.18983/v1

Cited by 1 publication

(1 citation statement)

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“…Indeed, as patients dependency for daily life activities diminishes, the number of hours dedicated to the patient by informal caregivers increases more and more [5][6][7]. A recent study nd out that the mean of hours per month of informal care of individuals with dementia was signi cantly higher when compared to formal care [8]. Informal care is a substitute for formal care services when a certain degree of dementia severity is reached.…”

Section: Introductionmentioning

confidence: 99%

Facing Costs With Dementia: Daily Lives Perspectives From Informal Caregivers

Lindeza¹,

Virgolino²,

Santos³

et al. 2020

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Background: Caregivers of people with dementia report stress, depression and economic burden compared to other caregivers. This study aimed to characterize the daily lives experiences of dementia patients’ informal caregivers and to uncover day-to-day sources of expenses related with dementia care. Research design and methods: Qualitative observational study, following a grounded theory approach. Data were collected with semi-structured focus groups with informal caregivers of persons with dementia. Discussed themes included changes in daily lives, formal care services utilization, quality of life and costs. Content analysis was conducted with Charmaz’s line-by-line open coding procedure.Results: Overall, 14 relatives of persons with dementia were included. Most of participants were female (12) and eight of them were daughters of the patient. Ages ranged from 39 to 84 years and eight had a high degree of education. Four of the caregivers were professionally active and the range of years assuming the role of main informal caregiver varied from two to 15 years. Conclusions: Findings provide insight into the daily life experience of caring for a person with dementia, while revealing the impact on the quality of life of caregivers. The individual sociodemographic and psychosocial characteristics, together with a lack of adapted formal care services and low financial aid leaded to a high burden experience for these caregivers. A multidirectional approach addressing caregivers needs, while improving formal care services and creating social and financial support programmes for families affected by dementia is required to decrease its financial and psychosocial burden.

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Section: Introductionmentioning

confidence: 99%