Informal caregiving: Cross-cultural applicability of the Person-Environment Model

Rosenberg, Edwin; Jullamate, Pornchai; Azeredo, Zaida

doi:10.5172/hesr.2009.18.4.399

Cited by 8 publications

(25 citation statements)

References 12 publications

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“…leisure, 26, 40, 62 and social activities 9, 25, 26, 30, 40, 54–56, 61, 68 – Dad loves sunshine … we take him for strolls in the courtyard.” 68 …”

Section: Figurementioning

confidence: 99%

“…family and friends 4, 9, 26, 28, 37, 40–42, 44, 49, 51, 52, 55–57, 61, 63, 64, 66, 68, 69, 71, 73, 74, 78, 80, 82 – “..She can’t really be lonely with the contacts she has with her family.” 26 …”

Section: Figurementioning

confidence: 99%

“…finances 4, 24, 28, 30, 35, 36, 40, 46, 51, 55, 56, 61, 63, 65, 73, 74, 77, 78, 84 – “It was a big change in the family! He (stroke survivor) used to be the source of family income and after the stroke, we had no income.” 30 …”

Section: Figurementioning

confidence: 99%

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Needs of Stroke Survivors as Perceived by Their Caregivers

Krishnan

Pappadis

Weller

et al. 2017

American Journal of Physical Medicine &Amp; Rehabilitation

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Objective Caregivers usually are not involved while planning the stroke survivor’s medical and rehabilitation goals and interventions. This review aimed to identify the needs of stroke survivors as perceived by their caregivers. Design A literature search from 2003 until 2014 was conducted using Medline, CINAHL, PsychINFO and Google Scholar. Sixty-six studies were included. Most studies excluded did not encompass caregivers’ perspectives. Four reviewers screened the titles, abstracts, and full texts of the articles for inclusion. The data extracted from these studies were synthetized into meta-themes. Results Fifty-two qualitative, ten quantitative survey, and four mixed methods studies were included in the final synthesis. The studies came from eleven countries. The data synthesis produced three meta-themes: a) body functional needs, including psychological function, physical function, cognitive function, and uncertainty related to function; b) activity and participatory needs, including healthy lifestyle, physical activities, speech, independence, cognitive activities, and uncertainty related to activities and participation; and c) environmental needs, encompassing support, services, safety, accommodation and accessibility, and uncertainty related to environmental factors. Conclusion This scoping review identified a range of needs of stroke survivors as perceived by their caregivers. Incorporating the caregiver’s preference and values into clinical decisions may improve outcomes among stroke survivors.

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“…leisure, 26, 40, 62 and social activities 9, 25, 26, 30, 40, 54–56, 61, 68 – Dad loves sunshine … we take him for strolls in the courtyard.” 68 …”

Section: Figurementioning

confidence: 99%

Section: Figurementioning

confidence: 99%

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Needs of Stroke Survivors as Perceived by Their Caregivers

Krishnan

Pappadis

Weller

et al. 2017

American Journal of Physical Medicine &Amp; Rehabilitation

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“…In order for caregivers to maintain their wellbeing, various studies highlight the need for information in areas including finance, law, and health [39-41]. A qualitative study of informal caregiving provided to elderly stroke survivors in Thailand highlighted caregiver needs for information, assistance, and support [42]. Relevant Thai studies on family caregivers reported social support to be vitally important for both caregivers and care recipients among impaired Thai older adults [43,44].…”

Section: Discussionmentioning

confidence: 99%

Physical and mental health among caregivers: findings from a cross-sectional study of Open University students in Thailand

et al. 2012

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BackgroundCaregivers constitute an important informal workforce, often undervalued, facing challenges to maintain their caring role, health and wellbeing. Little is known about caregivers in middle-income countries like Thailand. This study investigates the physical and mental health of Thai adult caregivers.MethodsThis report derives from distance-learning students working and residing throughout Thailand and recruited for a health-risk transition study in 2005 (N=87,134) from Sukhothai Thammathirat Open University. The cohort follow-up questionnaire in 2009 (N = 60,569) includes questions on caregiver status which were not available in 2005; accordingly, this study is confined to analysis of the 2009 data. We report cross-sectional associations between caregiver status and health.ResultsAmong the study participants in 2009, 27.5% reported being part-time caregivers and 6.6% reported being full-time caregivers. Compared to male non-caregivers, being a part-time or full-time male caregiver was associated with lower back pain (covariate-Adjusted Odds Ratios, AOR 1.36 and 1.67), with poor psychological health (AOR 1.16 and 1.68), but not with poor self-assessed health. Compared to female non-caregivers, being a part- or full-time female caregiver was associated with lower back pain (AOR 1.47 and 1.84), psychological distress (AOR 1.32 and 1.52), and poor self-assessed health (AOR 1.21 and 1.34).ConclusionsAdult caregivers in Thailand experienced a consistent adverse physical and mental health burden. A dose–response effect was evident, with odds ratios higher for full-time caregivers than for part-time, and non-caregivers. Our findings should raise awareness of caregivers, their unmet needs, and support required in Thailand and other similar middle-income countries.

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“…The staff is constantly under work pressure and stress (Yedidia & Tiedemann 2008) due to emotional wear, rotating shifts, the need for specialized training (Rosenberg et al 2009) to treat and attend each resident, etc. Moreover, caregivers are required to record the activities performed by the residents of the nursing home.…”

Section: Introductionmentioning

confidence: 99%

Design of a Predictive Scheduling System to Improve Assisted Living Services for Elders

Soto-Mendoza

García-Macías

Chávez

et al. 2015

ACM Trans. Intell. Syst. Technol.

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As the number of older adults increases, and with it the demand for dedicated care, geriatric residences face a shortage of caregivers, who themselves experience work overload, stress and burden. We conducted a long-term field study in three geriatric residences to understand the work conditions of caregivers with the aim of developing technologies to assist them in their work and help them deal with their burden. From this study we obtained relevant requirements and insights of design that were used to design, implement and evaluate two prototypes for supporting caregivers' tasks (e.g. electronic recording and automatic notifications), in order to validate the feasibility of their implementation in-situ and the technical requirements. The evaluation in-situ of the prototypes was conducted for a period of four weeks. The results of the evaluation, together with the data collected from six months of use, motivated the design of a predictive schedule. Such design was iteratively improved and evaluated in participative sessions with caregivers. PRESENCE, the predictive schedule we propose, triggers real-time alerts of risky situations (e.g. falls, entering off-limits areas such as the infirmary or the kitchen) and, informs caregivers of routine tasks that need to be performed (e.g. medication administration, diaper change, etc.). Moreover, PRESENCE helps caregivers to record caring tasks (such as diaper changes or medication) and wellbeing assessments (such as the mood), which are difficult to automatize. This facilitates caregiver's shift handover, and can help to train new caregivers by suggesting routine tasks and by sending reminders and timely information about the residents. It can be seen as a tool to reduce the workload of caregivers and medical staff. Instead of trying to substitute the caregiver with an automatic caring system, as proposed by others, we propose the design of our predictive schedule system that blends caregiver's assessments and measurements from sensors. We show the feasibility of predicting caregiver's tasks and a formative evaluation with caregivers that provides preliminary evidence of its utility.

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Informal caregiving: Cross-cultural applicability of the Person-Environment Model

Cited by 8 publications

References 12 publications

Needs of Stroke Survivors as Perceived by Their Caregivers

Needs of Stroke Survivors as Perceived by Their Caregivers

Physical and mental health among caregivers: findings from a cross-sectional study of Open University students in Thailand

Design of a Predictive Scheduling System to Improve Assisted Living Services for Elders

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